I worry about things a lot. This can make me seem pessimistic and paranoid, but it is something I struggle to control. It’s something that has been with me for as long as I can remember. Whenever I had an unsatisfactory exchange with a family member, another student, or teacher at school, (a misunderstanding, perhaps, or failure to notice and comment on a new haircut) I would worry for days, if not weeks about it, literally losing sleep over it, and it would often lead to my avoiding the person in question thereafter.
Equally, if I had a pleasant and successful exchange, (a long conversation with someone who shared one of my interests, for instance) I would soon begin to worry about the potential for a misunderstanding (on my part) to bring about the end of a burgeoning friendship, leaving someone I cared about hurt and confused. I am blessed with a singularly vivid imagination and the graphic nightmares that accompany this anxiety are cinematic in nature. This anxiety, this self-doubt has never left me and still colours every exchange.
This fear is an issue that is well known among people with Asperger’s, and it can be crippling. I am lucky in that I have people to help me to find the courage to keep trying: I have the support and understanding of my wonderful husband who’s outgoing personality continues to put opportunity after opportunity for socialising in my path. I also have the added incentive to be a strong and confident role model for my son.
Decoding everyday exchanges in a purely intellectual way is extremely hard work and riddled with danger. (This is the reason for my usual frown of concentration; putting on a smile is just another thing I have to remember.) I work in a large school and have to tackle hundreds of such exchanges every day. Granted, it is easier with children, as they are usually more honest, predictable and transparent in their exchanges than are adults. To engage at all, I have had to become a student of language myself (researching colloquialisms, idioms, turns of phrase, body language and the like.) Unfortunately, I didn’t realise until after I had embarked on this course of action, that learning to ‘navigate’ creates a vicious circle of its own: The better you cope, the less understanding people show when things go wrong. The longer you can keep up; the more ‘normal’ you appear, the more likely that misunderstandings will be judged as willful or deliberately hurtful. It is EXHAUSTING.
The endlessly sophisticated and ingenious intricacy of human communication navigated intuitively by neuro-typicals is mind-boggling. Most people can have no awareness of the sheer volume of observations, decisions, judgments made, hints, clues, signals given in a matter of seconds during a casual chat. It is an enormous barrier to understanding those of us who do not possess this intuition. It was this realisation that led me think more about the handful of people that I can truthfully call ‘friends’, and appreciate the patience they show and efforts they make in merely putting up with me! Not giving myself enough credit, you think…? No. I have no illusions about that. I am patently aware how different things might have been…
Anyone with Asperger’s will know about the ever-present companion to anxiety: Depression. It is a constant battle not to give up the effort, close the door and surrender to self pity, exhaustion and the inevitable spiral into depression. I have had many periods of deep, damaging depression in my life, and I am immensely proud and pleased that I have not had a major episode for the four years since my diagnosis.
I am sorry if this post seems to concentrate too much on the negative, but that is a necessity when you discuss feelings like fear, doubt, anxiety and depression. They are an ever-present part of my reality. Don’t worry! I will write another post shortly about some of the amazing gifts and joys that also share my everyday life.
Equally, if I had a pleasant and successful exchange, (a long conversation with someone who shared one of my interests, for instance) I would soon begin to worry about the potential for a misunderstanding (on my part) to bring about the end of a burgeoning friendship, leaving someone I cared about hurt and confused. I am blessed with a singularly vivid imagination and the graphic nightmares that accompany this anxiety are cinematic in nature. This anxiety, this self-doubt has never left me and still colours every exchange.
This fear is an issue that is well known among people with Asperger’s, and it can be crippling. I am lucky in that I have people to help me to find the courage to keep trying: I have the support and understanding of my wonderful husband who’s outgoing personality continues to put opportunity after opportunity for socialising in my path. I also have the added incentive to be a strong and confident role model for my son.
Decoding everyday exchanges in a purely intellectual way is extremely hard work and riddled with danger. (This is the reason for my usual frown of concentration; putting on a smile is just another thing I have to remember.) I work in a large school and have to tackle hundreds of such exchanges every day. Granted, it is easier with children, as they are usually more honest, predictable and transparent in their exchanges than are adults. To engage at all, I have had to become a student of language myself (researching colloquialisms, idioms, turns of phrase, body language and the like.) Unfortunately, I didn’t realise until after I had embarked on this course of action, that learning to ‘navigate’ creates a vicious circle of its own: The better you cope, the less understanding people show when things go wrong. The longer you can keep up; the more ‘normal’ you appear, the more likely that misunderstandings will be judged as willful or deliberately hurtful. It is EXHAUSTING.
The endlessly sophisticated and ingenious intricacy of human communication navigated intuitively by neuro-typicals is mind-boggling. Most people can have no awareness of the sheer volume of observations, decisions, judgments made, hints, clues, signals given in a matter of seconds during a casual chat. It is an enormous barrier to understanding those of us who do not possess this intuition. It was this realisation that led me think more about the handful of people that I can truthfully call ‘friends’, and appreciate the patience they show and efforts they make in merely putting up with me! Not giving myself enough credit, you think…? No. I have no illusions about that. I am patently aware how different things might have been…
Anyone with Asperger’s will know about the ever-present companion to anxiety: Depression. It is a constant battle not to give up the effort, close the door and surrender to self pity, exhaustion and the inevitable spiral into depression. I have had many periods of deep, damaging depression in my life, and I am immensely proud and pleased that I have not had a major episode for the four years since my diagnosis.
I am sorry if this post seems to concentrate too much on the negative, but that is a necessity when you discuss feelings like fear, doubt, anxiety and depression. They are an ever-present part of my reality. Don’t worry! I will write another post shortly about some of the amazing gifts and joys that also share my everyday life.
