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On invisibility (First posted 14th December 2015)

"People with Asperger's are Difficult." An ambiguous statement and the default position of many, I am sure. What does it mean? I have heard it applied to me on several occasions and I am sure it has been applied out of earshot on countless other occasions. To my understanding, it can mean any number of things, many of which I see as positive traits: Unwilling to follow blindly, enjoying different pastimes to others, challenging convention, not giving up, being tenacious, to name a few. However, the question: "Why must you be so difficult?" is rarely asked merely out of curiosity. I’ll admit to being confused about it, mainly because it is very difficult for me grasp what "easy" might look like.
I react poorly to things that are illogical. Why would I lie about having had a bad weekend if someone asks me "how was your weekend?". Surely, they should add a caveat at the time of asking: "… but, only tell me if it was really good." It appears to me that most neurotypical people spend a great deal of their time looking for this 'easy option'. After all, to challenge, to question, to understand requires effort. Additional effort is unnecessary: One can live quite happily without knowing the answers, background, reasons, or explanations for things (or so neurotypicals are wont to say.) This is to me, however, the antithesis of 'easy'. Not knowing, not understanding…. this is stressful, tiring and difficult. This creates quite the impasse, socially. I have never successfully explained to any neurotpical person that to ‘put my feet up and relax', 'let my hair down', or 'be myself', can be terrifying prospects. Attempting to explain how constant intellectual activity can be calming is unsuccessful at best and incendiary at worst. It’s simply too much trouble for most people with their busy lives (which is too short, I am told.) Throw the inevitable problems with reciprocity into the equation and the result is often 'invisibility'.
This unwanted invisibility is a condition I have suffered from over many years. It has affected all elements of my life; most noticeably, professionally. I have been passed over for promotion numerous times, omitted from group invitations, left out of training schedules…. I remain unthanked for most of the contributions I have ever made in a professional capacity. With a career spanning 25 years – this soon adds up. It is such a pity that most neurotypicals don't realise what astonishing rewards could be waiting for them in recognition of their consideration and trouble, were they to take the time and make the effort. I have counted no more than 3 colleagues in my professional career (and there have been hundreds) who have persevered with my 'difficult' behaviour long enough to reap the benefits of an Aspie's focus, creativity and tenacity. The analogy that springs to mind is that of a neglected vintage car, rusting away in the corner of an old shed until someone recognises its potential. Some time, care and attention later and your gleaming E-Type Jag is ready for the road. It may not be as economic as other cars. It may break down every now and then. Maintenance may be difficult, parts difficult to source. But as any vintage car enthusiast will tell you, it's ultimately worth the trouble…

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Chris Russell
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