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Recent content by Chris_uwd

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    Should our family join a clinical trial?

    This is really kind of you, thank you for making such an effort for us.
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    Should our family join a clinical trial?

    Thank you.
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    Should our family join a clinical trial?

    Yes, I agree. In the current situation, there is no way I would let my daughter take part in a early stages trial, there are simply too many unknowns. However this is a drug which has been used since the 70s for high blood pressure, and already been through 3 trials on children and teens with...
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    Should our family join a clinical trial?

    I understand. Thank you for sharing. I don't really want to get into a discussion about the ethics of animal testing in medical research. Sorry.
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    Should our family join a clinical trial?

    Thank you for taking the time to respond. I'm sorry your daughter has had to deal with gas lighting, it sounds like she is very fortunate to have a parent like you to support and love her. The doctor who has assessed b (we've seen him 4 times now and his team a few more) has given us his email...
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    Should our family join a clinical trial?

    Thank you for taking the time to reply. I'm going to get back to the Dr about results expected, I agree there seems to be a gap between what he said and what is in the papers.
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    Should our family join a clinical trial?

    Thank you for your reply. I have a different perspective on clinical trials, but I understand and respect your position. It's hard to determine the benefits/risk in a particular situation. We have stopped some assessments because we've decided it is asking too much of b for little or no...
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    Should our family join a clinical trial?

    Vivisection? I think we read different papers!
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    Should our family join a clinical trial?

    Thank you for sharing your experience. Being a parent is hard.
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    Should our family join a clinical trial?

    Thank you for your thoughtful reply. It's not an experiment drug, it's been used since the 70s, and all results appear to be entirely reversible within a short period of stopping treatment. Obviously this poses other questions: is the neurodivergent brain wired differently, if so does thus have...
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    Should our family join a clinical trial?

    Thank you for your reply. I agree with you about not medicating a child who can't communicate if the meds are making her feel bad. However there is no suggestion that this medication, which has been used for other purposes (treating high blood pressure) since the 70s, has any side effects...
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    Should our family join a clinical trial?

    Thank you for all the thoughtful responses. Currently at work but will return later!
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    Should our family join a clinical trial?

    I'm not a regular poster so I'll introduce myself first. I am NT with a 6 year old daughter who has autism. She's currently in mainstream school with one on one support (fairly unusual for France, where we live). She's happy at school, has friends who love her with her differences, fab teacher...
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    Autism and children

    I read this whole post before realising it was a year old. Just want to say thank you to everyone who replied, as NT parent to an ND child is been really helpful to read your thoughts.
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    FINALLY!!!!

    Hello Suzanne, I saw your thread featured and so even though it's late I want to say congratulations on getting the diagnosis. Have you had any success with the MDPH? Are you coping with the mess and uncertainty of Brexit ok? Hannah (in the Corrèze)
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