Irishmammy
New Member
hi!
Just looking for some advice. My son is 10 was diagnosed 4 1/2 years ago with aspergers, dyspraxia and SPD. He's a great kid and while things have been tough they haven't been as tough for us at home than it has for him. He's super smart, kind, and funny He Struggled so bad when he first started school just even to sit still in school was an ordeal. He's gone from that to being the youngest kid in his school to get on their quiz team ..now his second year on the team which is he is over joyed about! Couldn't be prouder of how well he copes and works so hard...Anyway his meltdowns over the last few months have become bad again ( they were bad from age 3 to 6 ) , he has a 7 yr old and 4 year old brothers. He gets on great with the 7 year old and to be honest the 7 year old really looks out for him as he struggles with friends especially where we live he has no one that will play with him as he can overtake games etc not his fault, where 7 year old is mr sociable and always includes him...he has a few very close friends in school and all his class understand him and they all love him dearly! He doesn't get on with the 4 year old at all and it's worrying now constantly shouting at him fighting with him calling him names etc now this is where I need advice...he has terrible issues with his bowels and has been hospitalised twice in three years because so backed up ..the last one was November for 4 days, he is soiling non stop and I know it's effecting his moods and causing frustration with all of us... He won't clean himself etc so myself and husband constantly cleaning him up he's had to wear pull ups at one stage so bad leaking ..I've had calls from his class helper to get him from school because he's running to the loo up to 20 times a day ..he's been on movicol for years times he just refuses to take it, tried all other laxatives etc and while they work for a short period they stop then as he refuses them!!...his last app in hospital was last week and I said look he's soiling again even while he's asleep the doctor just felt tummy not backed up and said to up the movicol that was it!?!?! I was stood there saying look we need more help he said he's just constipated .so he's constipated for the last what 7 years?!?!???!? ...I don't know what to do ...he's getting older but the whole toilet issue is getting worse...we have changed him to more high fibre foods which he's picky eater anyway so trying him on even new veg is so hard he's very small and underweight ..he's been tested for Crohns, colitis and celiac because they thought maybe could be that as size etc but isn't.. He was warned his bowel is so stretched at this stage it could be trouble for him down the line ...we've also had him keep diary, reward charts send him to the loo 15 mins after eating etc but he goes mad says I don't need to go etc... We've taken Xbox away, tablet etc... Anyone any ideas what to do??? He kicked me the other morning as well because he was walking around in pants full of poo and I had given out to him asking him why he hadn't told me ...this often happens but I rarely give out but it's taken a toll on all of us!!! Also the 4 year old told him he stank the other day and he had a meltdown now the 4 year old doesn't understand he said why is he not going the toilet like me so we are slowly trying to explain best we can ..the 7 year old is super understanding and knows the story and will discreetly tell him if smell if they are with friends etc which is why I think they are so close ... Sorry for the big rant... I know aspie and toileting issues go hand in hand but I just feel like we are going around in circles .... Thank you
Just looking for some advice. My son is 10 was diagnosed 4 1/2 years ago with aspergers, dyspraxia and SPD. He's a great kid and while things have been tough they haven't been as tough for us at home than it has for him. He's super smart, kind, and funny He Struggled so bad when he first started school just even to sit still in school was an ordeal. He's gone from that to being the youngest kid in his school to get on their quiz team ..now his second year on the team which is he is over joyed about! Couldn't be prouder of how well he copes and works so hard...Anyway his meltdowns over the last few months have become bad again ( they were bad from age 3 to 6 ) , he has a 7 yr old and 4 year old brothers. He gets on great with the 7 year old and to be honest the 7 year old really looks out for him as he struggles with friends especially where we live he has no one that will play with him as he can overtake games etc not his fault, where 7 year old is mr sociable and always includes him...he has a few very close friends in school and all his class understand him and they all love him dearly! He doesn't get on with the 4 year old at all and it's worrying now constantly shouting at him fighting with him calling him names etc now this is where I need advice...he has terrible issues with his bowels and has been hospitalised twice in three years because so backed up ..the last one was November for 4 days, he is soiling non stop and I know it's effecting his moods and causing frustration with all of us... He won't clean himself etc so myself and husband constantly cleaning him up he's had to wear pull ups at one stage so bad leaking ..I've had calls from his class helper to get him from school because he's running to the loo up to 20 times a day ..he's been on movicol for years times he just refuses to take it, tried all other laxatives etc and while they work for a short period they stop then as he refuses them!!...his last app in hospital was last week and I said look he's soiling again even while he's asleep the doctor just felt tummy not backed up and said to up the movicol that was it!?!?! I was stood there saying look we need more help he said he's just constipated .so he's constipated for the last what 7 years?!?!???!? ...I don't know what to do ...he's getting older but the whole toilet issue is getting worse...we have changed him to more high fibre foods which he's picky eater anyway so trying him on even new veg is so hard he's very small and underweight ..he's been tested for Crohns, colitis and celiac because they thought maybe could be that as size etc but isn't.. He was warned his bowel is so stretched at this stage it could be trouble for him down the line ...we've also had him keep diary, reward charts send him to the loo 15 mins after eating etc but he goes mad says I don't need to go etc... We've taken Xbox away, tablet etc... Anyone any ideas what to do??? He kicked me the other morning as well because he was walking around in pants full of poo and I had given out to him asking him why he hadn't told me ...this often happens but I rarely give out but it's taken a toll on all of us!!! Also the 4 year old told him he stank the other day and he had a meltdown now the 4 year old doesn't understand he said why is he not going the toilet like me so we are slowly trying to explain best we can ..the 7 year old is super understanding and knows the story and will discreetly tell him if smell if they are with friends etc which is why I think they are so close ... Sorry for the big rant... I know aspie and toileting issues go hand in hand but I just feel like we are going around in circles .... Thank you
