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Actor Bruce Willis diagnosed with Frontotemporal Dementia

Isadoorian

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Article: Bruce Willis Diagnosed With Dementia After Retiring Due to Aphasia

Article Transcript:

After Bruce Willis’ family announced in March 2022 that the 67-year old actor had been diagnosed with aphasia and would retire from acting, his condition has now progressed into frontotemporal dementia.

His family posted a statement on Thursday about Willis’ latest diagnosis.

“Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD). Unfortunately, challenges with communication are just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis,” his family wrote in a statement on the Association for Frontotemporal Degeneration’s website.

Rumer Willis also shared the news, along with a photo of her father, on Instagram.
Frontotemporal dementia, which is often diagnosed at a younger age than other forms of dementia, can be characterized by personality changes, speech difficulty and motor impairment. It’s the cause of 10% to 20% of all dementia diagnoses, according to the Mayo Clinic.


Willis’ acting career began in the early 1980s with roles in films like “The Verdict,” “Blind Date” and “Sunset.” In 1985, his career boomed with his starring role opposite Cybill Shepherd in the ABC series “Moonlighting” and his iconic performance as action star John McClane in 1988’s “Die Hard.” In addition to starring in four “Die Hard” sequels, he’s had memorable turns in “Pulp Fiction,” “12 Monkeys,” “The Fifth Element,” “The Sixth Sense,” “Armageddon” and more.


During his 40 years of acting, Willis’ movies have grossed more than $5 billion around the world. He’s been nominated for five Golden Globes (winning one for “Moonlighting”) and three Emmys (winning one for “Moonlighting” and another for his “Friends” guest role). In the last several years, he’s only appeared in an assortment of direct-to-video movies. His last major film role was in 2019’s “Motherless Brooklyn” and the M. Night Shyamalan movie “Glass.”

Read the Willis family’s full statement below.

As a family, we wanted to take this opportunity to thank you all for the outpouring of love and compassion for Bruce over the past ten months. Your generosity of spirit has been overwhelming, and we are tremendously grateful for it. For your kindness, and because we know you love Bruce as much as we do, we wanted to give you an update.

Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD). Unfortunately, challenges with communication are just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis.

FTD is a cruel disease that many of us have never heard of and can strike anyone. For people under 60, FTD is the most common form of dementia, and because getting the diagnosis can take years, FTD is likely much more prevalent than we know. Today there are no treatments for the disease, a reality that we hope can change in the years ahead. As Bruce’s condition advances, we hope that any media attention can be focused on shining a light on this disease that needs far more awareness and research.


Bruce always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately. We know in our hearts that – if he could today — he would want to respond by bringing global attention and a connectedness with those who are also dealing with this debilitating disease and how it impacts so many individuals and their families.

Ours is just one family with a loved one who suffers from FTD, and we encourage others facing it to seek out the wealth of information and support available through AFTD (@theaftd, theaftd.org). And for those of you who have been fortunate enough to not have any personal experience with FTD, we hope that you will take the time to learn about it, and support AFTD’s mission in whatever way you can.

Bruce has always found joy in life – and has helped everyone he knows to do the same. It has meant the world to see that sense of care echoed back to him and to all of us. We have been so moved by the love you have all shared for our dear husband, father, and friend during this difficult time. Your continued compassion, understanding, and respect will enable us to help Bruce live as full a life as possible.

-Emma, Demi, Rumer, Scout, Tallulah, Mabel, and Evelyn
 
It is sad to hear that somebody who has worked so hard on a career that provided entertainment for so many would succumb to FTD. I am so afraid of not being myself that my medical directive is draconian when it comes to issues of neurological impairment affecting my personality. I witnessed my father stroke out because of non-hodgkin's lukemia and it was horrible.
 
That sucks. Honestly, I had never even heard of the condition before.

If I ever end up like that and I'm forced to stay alive, I just hope to be heavily-medicated in the process
 
So sad to hear :(
I know. Don’t know if I will read this or just skim on it. I will read it eventually when I’m ready. I know I don’t have to read it, but I can’t unsee what I just seen and might as well just read the post. :(
 
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