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Aspergers Denial ....As a parent of newly diagnosed 15yr old teen, who denies his diagnosis, I need

Nicole Anderson

New Member
I am very happy to join the forum, and appreciative in the support. My 15yr old son in his first year of highschool was recently finally given a diagnosis of ASD Aspergers. He was cooperative during the process of testing at a University psychological Clinic, but now we are dealing with a great deal of his inner conflicts in that his father and I have shared custody every other week, and his Dad, who I see so much of the signs in, refuses to be involved in his diagnosis telling our son that he sees No issues, that there is nothing wrong with him, and that I paid Doctors to say because I want to complicate his life. Now my son refuses to even talk about the available supports being offered, nor look at any of the books I bought for us. His school teachers are making the accommodating needs, but he has a trigger go off if I even try to talk to him about his feelings or bring up the subject of support for his diagnosis, and he lashes out until I leave the room. His Father wont talk to me about it either. My son does not socialize or communicate with any friends like many other teens do. He isolates completely outside of school into his computer and music world. I try communicate and understand him so much better now as I learn more and see the patterns that have always been in front of me, I was just too blinded by my love for my beautiful, 'Miracle Sunshine Boy' to focus on his 'uniqueness'. I was so thrilled in relief about ASD being suggested and subsequently assessed then diagnosed. It gave me such joy and hope knowing there were tools to support us, so that he may experience happy, healthy, meaningful social relationships and successful connections in life. It's crushing to watch him struggle with conflict of trying to please the two people he loves most in the world, and feel helpless until he realizes himself. Does anyone have any insight on this from any perspective? I know I should just be patient, continue communicating love supportively, and praying, until he figures himself out on his own terms, and makes his own decisions. It just breaks my heart to see him so lonely and full of social anxiety, at 15 years old. It's an age you never forget in life, it should be happy. Thank you so much for your time reading.
 
im 47 i wish id had the support you are offering
sadly if he has to live apart from you it is a big shock but until it happens he'll probably not be grateful
try asking a person he is familiar with to consider what you saying you
 
You have certainly gotten the problem; he cannot please both of you, so he is trapped between these two impossible places.

If he only realized his father is an example of what NOT to do... and maybe he does, but is afraid of losing him.
 
While I have issues with things like sarcasm, I understand idioms reasonably well. Such as "You can lead a horse to water, but you can't make him drink it."

Admittedly it doesn't help to be from a broken home where one parent supports their child's autism while the other is in complete denial. It would be even more tragic if most of the resistance is being generated by his father rather than your son alone. However whether one is an adult or not, the road to self-awareness is a bumpy one. It certainly was for me. I stumbled onto all of this by accident a few years ago when I was in my mid-fifties. And believe me, I had plenty of skepticism and downright denial. Though my sense of logic, perseverance and curiosity ultimately won out over time. To go through life constantly wondering who you are and why...and suddenly getting a real answer. Quite liberating. :cool:

It's unfortunate that your son is in a state of denial. Not surprising though if he's being aggressively enabled by his father who may be in denial over his own autism.

Perhaps with time your son may come to terms with the idea of being neurodiverse. Even better for him to come to communities like this and learn from other fellow Auties/Aspies that being merely different doesn't automatically translate into being deficient. We just project our thoughts and emotions somewhat differently in a society which usually expects us to do so on their terms- not ours.

I can only emphasize that one must ultimately come to terms with this of their own free will before they can really begin to improve their life. But the longer one goes without becoming self-aware, the more difficult life may become. I know firsthand.
 
You have certainly gotten the problem; he cannot please both of you, so he is trapped between these two impossible places.

If he only realized his father is an example of what NOT to do... and maybe he does, but is afraid of losing him.
I agree, I know he is terrified of losing either of our love, so he asks multiple times daily
 
I agree with you whole-heartedly. I'm just going to keep learning for myself to better understand and relate better. I believe our cognitive perspective range in life, is like a "Magic Eye picture", you cant make someone see it clearly, you can only share the process of You broadened your range of focus. Once you figure it out on your own, it really sticks with you, the effort in the individual search for clarity is more rewarding He thinks I'm weird, but that's normal for any .15yr old, and admittedly its true, but I'm honest weird. lol
 
Once you figure it out on your own, it really sticks with you, the effort in the individual search for clarity is more rewarding He thinks I'm weird, but that's normal for any .15yr old, and admittedly its true, but I'm honest weird. lol

Exactly. If this weren't true, few of us would even be here. Let alone show up regularly. ;)
 
I had a child who should have clearly been diagnosed as early as 2 or 3, but due to any amount of reasons (including his father's refusal to admit anything was wrong) -- never was.

After years of counseling, doctors, specialists, etc., it ended up with his doctor overhearing a rage during my phone call to him -- he arranged for him to be "admitted" for seven days (at age 14) to be evaluated.

Apparently, he was a perfect patient, with no obvious behavioral disorders. Someone felt inclined to diagnose him with ADD and to medicate him, which greatly improved his behavior and outlook. (By then, his father was no longer in the home & had NO custodial or other rights regarding mental healthcare or anything else).

Looking back at old medical and psychological reports which included discussions with "Patient's Father," I saw time after time that "Mom is only person who reports a problem," "Father claims issues are non-existent or over-exaggerated, etc."

Now, 20+ years later, I have a child who went from 12 years of SPeD education (Again, Dad didn't agree) ..... I never expected him to finish High School or be gainfully employed. He graduated college with a 4-year Conservation Law Enforcement degree (Game Warden) without using any of the SPeD resources at his college.

His life is wonderful ...... but it's only come to my attention relatively recently that raising him created yet another PTSD situation in my own life.

Of course, understanding now that I am also on the ASD spectrum is helpful in realizing how/why things created "trauma," as my anxiety level has always been extremely high. Living in a home full of constant stress and erratic behavior and having no one agree that "you are right" in what you are doing, saying, or thinking -- can be defeating.

I may have lost focus during your post, but I think this is applicable. Don't worry about whether his Dad agrees or disagrees with you, as long as he's not depriving him of his medication or doing anything that is inherently dangerous or unwise.

As for your son (like I've said, I wasn't diagnosed until 57) -- don't worry about the books. Don't try to "teach" him about his issues. If and when they arise, you can -- to the level that HE is concerned -- but otherwise, don't worry about it.

Concentrate on helping him do as much as HE feels he can, at the pace HE is comfortable. If you "notice" he appears socially awkward, and HE is bothered by it, approach it delicately -- usually by education with people, not from a book.

Education and references about anything these days is wonderful, but you also have to realize that some (not all) people writing them are not living with ASD issues. Even those who do, are only writing from their own perspective, or from those they've communicated with.

No two people are alike. When I was diagnosed, I was thrilled, because I have the time and energy (and interest) to look into the phenomena that many of us haven't been diagnosed, yet went on to have relatively normal, "diagnosis free" lives.

However, back when I was 13, 14, 15, etc. I was more concerned on getting through high school as a loner who couldn't figure out why I was "different" than others. I gravitated toward a group of similar friends and they, indirectly, exposed me to wonderful things such as: foreign languages and cultural exchanges, "platonic" friendships that last a lifetime, a love of theater and performance art, and a way to look at (and write) about my life with humor.

We are all very anxious (inwardly or outwardly), and "words" burn into our brains; sometimes out of context; always remembered at the wrong time. If I had to walk around with words like "Autism" or "Asperger's" (which weren't even topics when I was young), it would have added yet another dialogue for me to remember, misunderstand, take out of context, etc.

Especially today, with information so widely available, people look up symptoms (or syndromes) and just assume the worst. If your son is computer (or phone) literate and has access to the internet, chances are he's doing his own research. If he is not that functional, it's likely not all that important for him to know at exactly the time you "learn" it -- (i.e. diagnosis).

Consider watching him and educating yourself at the same time, because chances are in a year -- you'll understand a great deal more than you do now (about both of you). Each year, you'll learn more. When the time is "right" (if ever) for him to learn or know (or whatever), you'll probably know that it's time to start a discussion.

Even then, you want to "suggest" some things that might be affecting (or upsetting) him, without assuming ".... that's part of Asperger's, like we talked about..." No one wants to be labeled, because truly, we are all individuals.

I'm extremely outgoing and comfortable with people, and most who meet (or know) me wouldn't have any idea I was on the spectrum until they realize how formally I write or answer questions. (My lack of ability to stay on target is ADHD)

The most important thing is to take each day (even if it means hours or minutes) as they come; there is no instruction manual.

Looking back, again, I would suggest you seek out a support group for parents of children on the spectrum. You are likely to need an emotional support system of others who know EXACTLY what you are speaking about -- even if they can only relate it to their own lives.

Good luck -- parenting children is difficult. Parents with families that are more challenging than others are teaching us how we should treat the next generation TO MAKE A BETTER FUTURE.
 
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I am sure I will be the one sole dissenter. I got sick at 14 and refused to believe it, too. All I wanted was to be normal. I ate foods that made me sick and turned away from therapy. However, even when i went back to therapy, it did not help.

In the end, I am glad I walked my own path because the path others had for me may not have been any better than the one I walked. I branched out and did things I would not have done. I explored things and tried to fit in. I would have failed if I had accepted being sick or not.

The ONLY thing acceptance would have helped would be if EVERYONE in the entire family accepted it, friends, too and even aquaintances. But that only happens on TV.

I was deeply ashamed to be different (and still am). THe abuse I suffered would have happened if I were acepting my illness or not. Accepting or not accepting does notmake climbing up a greased mountain with huge birds pecking at you and other people stomping your fingers when you get a grip......no , accepting does not make this easier at all. It just means you will let go and stop climbing sooner.

I was not ready to stop climbing that greased mountain sooner. I still am not ready to stop.
 

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