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Aspergers... ? Warning... Depressing post!

HBLH29

New Member
Hi there everybody,

First off, I don't think I've posted on an internet forum since I was 12 so I-m a bit new to this...

I guess I'm just hoping for some advice/thoughts if anyone's kind enough o spare a moment.

I haven't been diagnosed with anything... Id heard about Aspergers a couple of times in my life for one symptom or another and wondered if I had it because of that symptom, but then dismissed it because I thought it was 'The Genius' disease and guess I thought the idea arrogant of myself. I didn't actually look into all the symptoms, so basically spent my whole life dysfunctional for various separate things. This is where I do the listing symptoms thing if anyone wants to skip the next part!

As a child I was extremely sensitive to other peoples emotions and often thought they were my own. This led to me suffering trauma as a child because I was living the symptoms of other peoples' trauma.
Apart from fleeting instances I had no friends either at primary school or secondary school, although ironically got on very well with an Autistic kid and other kids with severe learning difficulties because I felt like I understood what they felt though they weren't communicating it.
I had the crap bullied out of me at secondary school. Aged 10 the teachers held meetings about how to get me to make friends. I would sit on the chair outside the classroom and read waiting for lunch to end. At one point I began jumping from one end of the bench to the other repeatedly unti they called people on me because I was acting weird. At secondary school I hid in the library because of the bullying.
I dropped out of school aged 12 and spent the next 4 years in severe depression during which time I rarely left the house. Partly this was because I developed massive and diverse OCD which beside washing my hands endlessly involved spraying anti-bacterial spray at people when they came near me because I thought their energy had contaminated the space and being neither able to take a step or eat food when specific thoughts were in my head. This was agony for my 3 siblings who had to deal with my stress outbursts and refusing to eat food cooked by anyone.
Aged 15 I began seeing a homeopath and, after a year, enrolled in college. I had no GCSEs of course but insisted on doing A levels. College was totally different. People nicknamed me 'random' for the ideas and thoguhts that came out of my head, found me hilarious and totally accepted me. For one year I had a social life. Then I became a recluse geek by choice, adhering to a rigi, highly controlled study routine that resulted in me getting straight As and being featured in the local paper, wherein I was asked to jump so they could take the shot with me in the air which as a side note seemed ridiculous.

I went to uni and first year was depressive but I became obsessed with a drum n bass club and absolutely transfixed by how much I could lose myself dancing in the music. Dance literally saved me whilst in severe depression. This became a pattern for all years thereafter.

I dropped out of uni with depression after 2 years. Got therapy, went back 2 years later. My mum got diagnosed with cancer. Thankfully by now I no longer had depression but was exhausted looking after my mum and being in final year, worked my ass off and got a distinction / best mark in the year. I took languages.. sorry, not Astrophysics or maths or anything. As a high/school drop out I actually don't know any maths.

My mum died just after I graduated from uni, so I cant ask her and my dad and I were not in contact while I was growing up.

Understandably, given my background, I've had a lot of symptoms I just thought of as due to my background:
The OCD
A tic whereby I clench my stomach muscles or shrug my shoulders about every 15 seconds
Feeling stressed when in social situations.

But I also have a lot of other symptoms
Absolute intolerance to noise. Its agony. I cant sleep when I hear people. Or study. Or think. I take earplugs with me everywhere.
I cant go to shopping centres, beaches, crowded places, the uni library... theres people everywhere and they are so so loud and consequently I spend most of my time hating people
I'm very honest with people. I'll say things like 'How does it feel to be old>[ or when a teacher asks why Im absent mid-class respond that 'I'm bored' and get kicked-out. I constantly offend people by accident then get shouted at.
I take things very literally and and become increasingly distressed when people don't communicate clearly and literally with me.
People ask me why I separate my food then eat it sequentially. I hadn't noticed.
I'm obsessive about particular topics. I think about them in the bath, at breakfast, on the bus, while people talking, while Im having sex. Im a Masters student now and I start at 9am then read until midnight. I don't answer my phone. I cancel plans because I don't want to go out because I'm too interested in what I'm doing. I know I should live a balanced life but I don't want to because I like what I'm doing.
People have minimal interest to me unless I can learn from them... and fast. Usually my conversations begin about a book Im reading. If someone doesn't engage, or at least tell me aboutn something really interesting they know about, Im bored and Ill ignore them forever after. People describe me as aloof and rude. Partly I just don't find them interesting, partyly the noise in social places is agonising, partly I just forget they exist because Im reading. But I do feel lonely, ALL the time and wish I had more friends. But then I start reading and after a few days realise I have 6 people writing to me and I just ignored them.

I do have friends, but I see them rarely and usually on a one/to/one basis, with reluctance.

I was okay in my life until my amazing boyfriend... who says he loves me for my brain... got a repeated boll"***** off me because he would arrive late and we'd miss plans and I would banish him for a weekend saying things like 'Go away. You are too emotional for me right now' while he would cry and think we were breaking up.

Amidst all this I googled Aspergers again and it started to look familiar. I spokem to my sisters. One of them told me that our mum had mentioned she thought I might have a form of autism but no one mentioned it to me. I spoke to my other sister, and she said in a conversation with our dad he had told her not to get mad at me for getting mad at her about time/management because apparently he thought I was some kind of autistic aswell. Again nobody mentioned it.

Yet when I asked my best friend, and siblings and boyfriend about it, they seem really against the idea of me having Aspergers.My best friend first said 'You don't have that you can make eye contact those symptoms describe me not you. Then, youre not a genius like Einstein you cant have it. I asked my boyfriend and he was like, well those symptoms describe me, I I organise my CDs alphabetically and clean everything and love numbers you're just normal. And when I told my sister I didn't know about doing the diagnosis she didn't even respond she jsust said 'yeah I've got loads of learning disorders (about herself).

I'm feeling discouraged by the way people have reacted and thinking maybe its not worth 90 pounds for an assessment if I'm just being a hypochondriac.

I realise this sounds a big whine, but I'd be grateful to hear anyone's thoughts, pretty much on this!

Thank you!
 
That sounds like possible ASD with maybe some other OCD tendencies and anxiety issues comorbid. I see some executive functioning problems that are strongly possible in my mind, and sensory issues.

The cost of the assessment, I think, would be worth it even if you are not on the spectrum, it may be other issues causing your symptoms but, the assessment will tell you that and, once you know, you can begin working of solutions and coping skills more easily. Knowing, one way or the other certainly is better than flying blind and not knowing why you are the way you are. once you know, you can readily find advice and ideas that work for others with similar issues for similar reason and, you can find an appropriate support network.
 
Welcome aboard :)
I am glad that you have joined our friendly community here.
Lots of people will resist the idea, with late diagnosis, and give uninformed opinions how it simply cannot be. For me it was something I had to do for myself, to better understand who I am.
Best wishes
image.jpg
 
Virtually me, but for a few things ie numbers, well, guess that is why: virtually lol

I am not officially diagnosed, but there is no doubt I am and I am now comfortable sharing that knowledge. Have a few friends now, but still have trouble with the concept of friendship and because my situation as enabled ones to get to know me, they accept me and one friend teases me when I get a bit too excited, by waving her hand up and down.

You will find peace here, because we all echo what you go through with how others react.

As for eye contact. If on a good day, have no problem, but other times, struggle horrendously. So, if I met someone for the first time, on a good day, they would laugh at the notion that I have aspergers, that is, when I am inane enough to blurt it out ie the need to be honest.

You will come across this saying on here. You meet one aspie.....you meet one aspie

Hope your loneliness will ease up soon.
 
You suspecting it isn't unreasonable at all. Your own parents suspected it so it seems very reasonable to get assessed.

And wait, £90? The NHS means you can get assessed for free right? I got assessed in the UK for free. That must be private healthcare if they're charging for it right?
 
It does sound like Aspergers is quite high on the possibilities list. With that set of symptoms I would be surprised if it was not.

Aspergers does not have a set group of symptoms/behaviors. You can't say all Aspies do this, or do not do that, etc. It is more like Aspie symptoms are a large set of ingrediants that each Aspie has most or some of. Some ingrediants are more common then others, like discomfort in social settings. But there are even exceptions to that, the so called 'Extrovert Aspies'

Something to remember is that Aspergers and similar conditions are High Functioning autism and even within itself comes in a range, light to severe.

So forget the sterotype. Once you investigate it fully and are sure (either thru formal or self-diagnosis) you'll see there is is as much variety in Aspies as NTs, although the differences are based on different models so to speak. Others, like family, bf, friends will have a harder time getting past it however, if they are NT. Its a hard thing to understand if you do not experience it yourself. For them it will be a learning process.

P.S. The free online self-tests can be helpful.
 
People nicknamed me 'random' for the ideas and thoughts that came out of my head, found me hilarious and totally accepted me
I need to know more people like this (which kinda describes me and my humour).

I became obsessed with a drum n bass club and absolutely transfixed by how much I could lose myself dancing in the music.
Yer D&B music rocks!!

I'm obsessive about particular topics. I think about them in the bath, at breakfast, on the bus, while people talking, while Im having sex.
Multi-tasking at it's best....I think o_O

People have minimal interest to me unless I can learn from them... and fast. Usually my conversations begin about a book Im reading. If someone doesn't engage, or at least tell me aboutn something really interesting they know about, Im bored and Ill ignore them forever after. People describe me as aloof and rude. Partly I just don't find them interesting, partyly the noise in social places is agonising, partly I just forget they exist because Im reading. But I do feel lonely, ALL the time and wish I had more friends.
Somehow I find you interesting

I was okay in my life until my amazing boyfriend... who says he loves me for my brain... got a repeated boll"***** off me because he would arrive late and we'd miss plans and I would banish him for a weekend saying things like 'Go away. You are too emotional for me right now' while he would cry and think we were breaking up.
Sorry but this made me laugh a tad.

I'm feeling discouraged by the way people have reacted and thinking maybe its not worth 90 pounds for an assessment if I'm just being a hypochondriac.
You shouldn't be needing to pay, go through the NHS and get a referral from a therapist.
Yet when I asked my best friend, and siblings and boyfriend about it, they seem really against the idea of me having Aspergers.My best friend first said 'You don't have that you can make eye contact those symptoms describe me not you. Then, youre not a genius like Einstein you cant have it. I asked my boyfriend and he was like, well those symptoms describe me, I I organise my CDs alphabetically and clean everything and love numbers you're just normal. And when I told my sister I didn't know about doing the diagnosis she didn't even respond she jsust said 'yeah I've got loads of learning disorders (about herself).

Sorry but often NT's (those not on these forums or medical professionals) are clueless and oblivious to these sorts of things. Just the way you've typed this post tells me you're quite possibly an aspie, let alone the content itself.
Whereabouts in the UK do you hail from then?
 

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