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Chronic Pain

Raggamuffin

Well-Known Member
V.I.P Member
Better out than in as they say. I find getting it off my chest helps somewhat.

I've always felt old before my time. In many ways I have a mindset of a cantankerous old man. Much like an older person I've been no stranger to constant aches and pains. These started in my mid 20's when anxiety hit home hard and became a full blown disorder - especially around my (supposed) ill health.

I used to think a hypochondriac was someone who just thought they were ill. I didn't realise if you were stressed out enough in the mind, your body could follow suit. Not only was I terrified of keeling over at any moment - my body constantly felt as if it was about to.

Daily aches, pains and symptoms for over 10 years, the first 5 being almost constant. Symptoms born of stress, which I reacted to with more stress. A bit like trying to put out a fire with petrol.

The usual culprits were chest pains, palpitations, lump in throat, dizziness, nausea and stomach aches etc. As the years went on it graduated to muscular aches all over my body, headaches lasting weeks at a time and intense derealisation that left me feeling like I was living in some sort of alternate reality.

When people see my art and "wish" they had my imagination, I wonder if they see beyond the colourful pictures I draw and realise imagination has a much darker and self-destructive side to it. A well of limitless playfulness and never-ending catastrophes.

I suppose the variety of aches, pains and fears kept me on my toes. When I eventually traced it all back to anxiety and stress rather than my assumptions it was something else (and sinister) causing the pains, they eventually calmed down in duration and frequency.

Still to this day I can't go a day without multiple aches and pains. Towards the height of my anxiety I began a year long bout of epididymitis. Inflammation of the tubes to the testicle. A horrible experience - to have a constant ache in that area. It made life pretty unbearable when I spent 6 months of this year on antibiotics.

I was wiped out, and excessively anxious. The condition was eventually diagnosed as chronic - which means no cure. And I was told it would eventually "burn out" which it did, after 12 months. Now it comes and goes a handful of times a year. Usually a few hours or days at a time.

This time round it's stayed put and is on both sides now, not just one. 3 week wait to see a GP? A 3 day wait to see a doctor at a sexual health clinic. So I go to the hospital. The usual rudimentary exams and a month long prescription of high strength antibiotics. The de ja vu of this experience was exhausting in of itself.

I saw another GP yesterday, demanded an emergency appointment twice and managed to get one on the second call. Again, rudimentary tests, an agreement on antibiotics, even though there's no other symptoms other than pain and studies specifically state not to treat chronic cases with antibiotics.

Got a referral for an ultrasound and appointment with a urologist. I can't help but feel like this is only the tip of the iceberg. The GP said he could prescribe me pain killers because over the counter meds don't even touch this pain and discomfort. But I have an all or nothing personality and I don't want to enter the world of opiates.

So here I sit - constantly feeling like I've just been kicked in the balls. I've not looked happy today. Got that age old annoying comment from a passer by "cheer up, it might never happen."

It already did.

Ed
 
Last edited:
Sorry to hear you are in pain, this is tough for you. Very frustrating when it's not well understood, sounds like you are just getting a basic service from Doctors, who may have no useful experience of the issue. Can you find someone more specialist, a consultant?
 
I hope the urologist can offer some advice. I've been trying to keep occupied at home and it's been helping with reducing the pain. I think this could be as simple as distracting me from what's been pre-occupying my mind for so long. It's harder at work - being sat in an office chair that exacerbates the discomfort and with the expectation of having to concentrate for hours on end.

It has been rather hard to focus to be honest. I'm trying to get into the mindset that this is just another temporary flare up. But the antibiotics, the referrals and the amount of "what if's" make it feel like a stab in the dark to assume all is well and that this will pass of it's own accord.

Ed
 
I'm sorry to hear about this. Aside from the epididwhateveritis, sounds like your whole-body pain could be fibromyalgia?

I have fibromyalgia. For the most part the pain is minimal these days. I learned how to manage it. I hope you can too. This thing in your testicles sounds different, and I hope you can get that fixed soon.

It's very important to be gentle on yourself mentally, because being stern with yourself just makes body pains worse. I found resting when needed, as well as things like meditation, yoga, massage, etc., were helpful.
 
I wish I had good, helpful advice for this one, but my solution to dealing with chronic pain has always been along the lines of "get angry at random objects" so that probably isnt very useful.

But yeah, I'm there with you in terms of having pain every day for no bloody reason. For me it's my back/neck/arms. Legs too if it gets bad. It's all a tendon & nerve thing, see. And apparently some arthritis too, because why not. I'm not even 40 yet.

And it's frustrating. Just.... frustrating. And the "cure" is basically summed up as "deal with it". Bah.

Irritating, all of it. I dont even have much more to say about it beyond that. As it sounds like you already fully understand.
 
I hope you get the answers you're looking for.

I don't have testicles so I can't imagine what that's like for you,
I do have 24hr nerve pain in one arm.
It's constant and I'd consider it a good method of torture :)
Drive a person insane if they let it.

How are you at visualisation and believing your own thoughts?

There's a thing in a Taiji class I went to once.
(please bare with me, I'll do my best to articulate this)

you know it's your epididymis so you will concentrate your focus on that small area. It's inflamed and radiating pain signals outwards.

This is the tricky bit :)

Forget the focus on the epididymis for a moment and just focus on the feeling of pain.

Have you ever seen a car windscreen or car window shatter?
Thousands of tiny pieces of glass make up the whole?

As you breathe in for a count of four you're accepting the pain into the rest of your body then,

just before you breathe out for a count of six,

you visualise shattering that 'pain' into thousands of tiny particles and on breathing out,
you're pushing those particles down and outwards toward the ground.

It is a mind trick :)
The brain believes anything you tell it.
It works if you believe it does.

There's also the possibility of the breathing technique triggering a natural endorphin release.

If you don't want to jump onto opioids in the interim between appointments,
try some natural endorphins instead ? :)
Good luck with your ... err...
problem ! Ed :)
 
I have Fribromyalgia, arthritis, neuropathy and a knee that needs a joint replacement.
So there is always a certain amount of pain going on.
Also, I know the stress and emotionally abusive person I rely on for a place to live has torn my
body down. Wasn't like this before.
Stress and anxiety sure plays a role in the whole body.
Excessive cortisol and inflammatory cytokines that your body will produce in response starts the
domino effect. Then immune systems starts to go.

I have guided imagery and meditation CDs I listen to daily which help.
It's part of my morning routine. Also playing ambient music through the house as I work helps too.
I don't take anything for pain either. Don't want to get into that.
Don't know how cannabis would do as I've never done drugs.
 

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