Oh, boy... people just can't get it right, can they? Well, at least, they have memorized the name of the condition. I suppose that shows that they're trying?
Quick question, off topic on autism, but on EDS: you mentioned there were no forums, but have you ever met other people affected?
I attended a presentation today after much coaxing by my mother, from the association that organized the treatment session I'm following the next few weeks. And... I found most of the people to be some of the loudest, most extroverted people I've been around. 40 or so people talking at the top of their lungs, kids running around in spite of their braces and screaming, total chaos. An Aspie's nightmare.
I just needed to share that today because of how intense it was. It seems that they are not aware of the comorbidity between both syndromes. (They seem like good people, I'm not complaining. I'm just... drained)