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gotta push this question out there.

1911

Active Member
Ok, I mom was talking to me a few days ago. She told me that when i was 2 the doctor wanted to do a aspergers test. Her and my dad refused because I already was showing signs of it. They say they refused the test because they didn't want me labeled.

So, growing up, they insisted that I fit in to the norm. Think, act, and behave like an average person of my age.

So, should I be angry about it? Was it a favor to me, or them?
 
I don't think there's any point in being angry about it. It happened; it was most likely wrong; and there's nothing you could have done. How are you faring these days? How old are you?

Welcome, by the way. :)
 
27 years old.

I guess I'm fairing ok. Until now the only time I've even heard about aspergers was an episode of southpark. Maybe going out on a limb here, but I doubt it was a good source of information.

But looking into it some, it does explain a lot of what I do.
 
We have a Resources section that is chock-full of books and other media dedicated to Aspergers and Autism - Asperger's & Autism Resources | AspiesCentral.com

And there are plenty of online tests you can take as well. And of course you can stick around here; I don't doubt you will learn many things from the lively conversations. :)
 
27 years old.

I guess I'm fairing ok. Until now the only time I've even heard about aspergers was an episode of southpark. Maybe going out on a limb here, but I doubt it was a good source of information.

But looking into it some, it does explain a lot of what I do.

I saw that episode. Not too flattering to say the least. This site is very helpful. Many different personalities here. Ready for your questions.
 
Welcome :)

I don't know what your upbringing was like, so it's hard to judge. If they knew about it, I assume they would have tried to help raise you in a way that you could adapt. Some people on this forum, who were diagnosed as a child, seem to have mixed feelings. Some say it was a blessing, as it helped them be more sure of themselves. Some say it caused them to be severely bullied, and hated their label. I suppose you can't know how it would have been for you, but it helps you to realise it's different for everyone.
 
I can't say what their intentions were. Just based on what you said, it sounds like your parents may have at least partially been trying to protect you - labels can become a self-fulfilling prophecy, and perhaps they didn't want those kind of limits placed on you. Like i said, I'm not your parents so i can't say anything about what they did or didn't want, only guess. Its perfectly fine if you feel angry about it, you're entitled to your own emotions. Just don't make the mistake i have and ruminate about what could've or should've been, cause you can't change the past. If it bothers you a lot I would encourage you to try and talk to your mom about it, if that's feasible option for you. For me, knowing about it has helped me understand myself better and what i've always perceived as being failures or inadequacies on my part. However, I do know that one guy i went to school with who was diagnosed young was severely bullied all through school. So its different for everyone, I guess.
 
Good points. Being mad about something over 20 years ago, that i cant even remember myself wont get anything done.

So, for curiosity, are there any ideas on what causes it? I have read that it is genetic. But is it a bio-chemistry abnormality, a structural abnormality? And is it a defect, mutation, or something else similar?
 
Good points. Being mad about something over 20 years ago, that i cant even remember myself wont get anything done.

So, for curiosity, are there any ideas on what causes it? I have read that it is genetic. But is it a bio-chemistry abnormality, a structural abnormality? And is it a defect, mutation, or something else similar?
It's not clear what the causes are. That's still a matter of dispute. But it often seems to run in families.
 
Good points. Being mad about something over 20 years ago, that i cant even remember myself wont get anything done.

So, for curiosity, are there any ideas on what causes it? I have read that it is genetic. But is it a bio-chemistry abnormality, a structural abnormality? And is it a defect, mutation, or something else similar?

No one knows what causes it. There's lots of theories and data but no real known cause. But like the above poster said, it can run in families so there is likely some genetic component to it. Because its neurodevelopmental in nature, i would think that something pre-birth in the womb could cause it while the brain is still forming and developing.
 
Hello,

I was forced to be normal but in a much more negative fashion, which I won't get into. In a way there were some pros and cons from that. The pros is that I can now easily behave as an NT and have adapted fairly well to the environment. I do many things I would not have done as a child. However, the main cons are in the fashion that it was done. It seems your parents had good intentions and without knowing more it is hard to judge but hopefully it did not leave too many loose ends. But if you are aware of it, than it is possible to work on problems and side effects of being told to be normal.

Autism spectrum disorders (ASD) (which now includes aspergers) does tend to run in families so there is a genetic component. But some theories have suggested there are structural changes in the brain. One suggests some cases are missing mirror-neurons which would explain the trouble aspies can have with theory of mind (guessing what someone else is thinking or how they might act). But there is a lot of variation. So nothing in particular has been pinpointed. Perhaps a number of things can go wrong and leads to different forms of ASD and severities, making it hard to say exactly what causes ASD.
 
I had no idea about Asperger's until I was 29 when I was young my family were very dysfunctional and abusive so there was no time for anything other then survival.
 
So, should I be angry about it? Was it a favor to me, or them?

I get the feeling that this is similar to a transgendered person's fate being determined exclusively by a parent, regardless of what their child wants. That in their minds they may honestly think they're doing you a favor. Perhaps like a form of "tough love".

Should you be angry about it?

I would be. On the flip side though is the reality that few Neurotypicals really understand what it means to force an autistic person to constantly attempt to adapt to a Neurotypical world. That there are some things you can do to improve the situation, but also that there are some which are insurmountable.

In my case it wasn't my parents who let me down. They thought there was something different about me socially, and sought a doctor's opinion. Unfortunately at the time Dr. Asperger's research wasn't well known, and I essentially "slipped through the cracks". Not knowing any better leaves you like me. Although I struggled for more than twice your lifetime and found out about it only now.
 
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Ok, I mom was talking to me a few days ago. She told me that when i was 2 the doctor wanted to do a aspergers test. Her and my dad refused because I already was showing signs of it. They say they refused the test because they didn't want me labeled.

So, growing up, they insisted that I fit in to the norm. Think, act, and behave like an average person of my age.

So, should I be angry about it? Was it a favor to me, or them?
Being a parent, I have to believe that they did what they thought was best for you. They came from a different time, when the stigma was much greater, and the social understanding and acceptance were just not there. In a big way they were right. So it appears to me that their motives were just and in your best interest. I think you should Love them.
 
27 years old.

I guess I'm fairing ok. Until now the only time I've even heard about aspergers was an episode of southpark. Maybe going out on a limb here, but I doubt it was a good source of information.

But looking into it some, it does explain a lot of what I do.

I blamed my mother for not accepting my diversity and wanting me to fit in as everybody else... My dad on the other side was quite distant, but always understood that I was "special", and helped me a lot to cope with my diversity (probably inherited from him, which my bet is that he's in the spectrum too).

Truth is that her attempt was a miserable failure, I grew up despising most of those that surround me, for their "mediocrity" (which for me it is a synonym of normality), And never well integrating into the group. Still today I consider cattle most of humanity.

I never integrated at school, I had always one or two close friends with whom I shared passions (be it aquariums, electronics, or other) and had almost no relationship with anybody else.

Granma teach to me to read/write before I was 3, and I did like reading a lot! So by the time I got in primary school I was litteraly surrounded by ignorants, how could I consider these folks my peers. Thus I often found great hostility towards me due to my knowledge being not accepted (e.g. On my first Christmas at school the very fact that most of Santa's myth seemed illogical to me drove me into a crash course with my mates which could not accept the fact that Santa story[1] was simply logical and resisted to death their beliefs. Yes, I got beaten at 6 for denying the existence of Santa!).

High school was my break-point with society, at that point I had grown the idea that besides me, my dad and some of the professors that befriended dad, few other people were worth a more than few pennies for me. The fact that I found TV programming incredibly dull, and thus spent my time on books, drifted me away from most. Why the hell should I care about celebrities, soccer and other trivial non-trascendental things that these guys enjoy... For the most HS had no knowledge to give me, it was meant for thos mediocre ones that weren't able to be educated by themselves, they needed a teacher that said all thing that I already knew.

I left HS 2 years before graduation and got myself into programming (C and assembler). I had an income by the age of 16, I worked at home. at 18 I was out. (I finally got my HS diploma at 28 to be able to get hired at my first non-freelance job).

At work they accepted me professionally, because I was the troubleshooter and I was the one that saved the day when no one else could. Still I never really integrated.

The question that remains unanswered is: Should my mother accepted my diversity and I had gone thru special education, surrounding myself with people I may had related better... things would had been better for me? I still do not have an answer for that and trully I'm not looking for it. I'm fully agnostic so I live better with doubts than potentially wrong convictions.

Is still profoundly believe that negative thoughts have a negative impact on you... Hate and anger harm you.

"We are shaped by our thoughts; we become what we think. When the mind is pure, joy follows like a shadow that never leaves." -- Buddha

[1] Dad thought that lying to a child to coerce his behaviour was simply immoral and anti-educative so he debunked my mothers attempts at inculcating Santa's myth in me, which weren't that good anyway, as she never fully convinced me.
 
The big question is, did you feel normal and act like the other kids? If so, you should probably be thankful for your mom not sharing with you until now.

My mom didn't tell me about mine until 3-4 years after my diagnosis (I was 6 when I was diagnosed). Then I felt betrayed because I felt like I could've done something to attempt to be normal. Ever since then, I have tried to be "normal". It's working.
 
The big question is, did you feel normal and act like the other kids? If so, you should probably be thankful for your mom not sharing with you until now.

My mom didn't tell me about mine until 3-4 years after my diagnosis (I was 6 when I was diagnosed). Then I felt betrayed because I felt like I could've done something to attempt to be normal. Ever since then, I have tried to be "normal". It's working.
What is normal anyway?
I would rather delight in being myself, than to work to hide in a facade.
 

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