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Halloween tricky for kids on the autism spectrum

AGXStarseed

Well-Known Member
(Not written by me)


The fun of Halloween can be a nightmare for children on the autism spectrum and their families.

Whether it’s dressing in costume at noisy class parties or roaming the neighborhood asking for sugary, dye-coated candy, it all involves straying from the daily routine, which sets off alarms for those with autism.

“He can’t really grasp the concept,” Karen O’Toole, of Aurora, said of her 8-year-old son, Patrick, who has autism. “He’s just not interested.”

It’s not uncommon for children with autism spectrum disorder or other sensory sensitivities to sit out Halloween at school and at home because it’s so overwhelming, experts say. Those who do participate often spend time — sometimes weeks — practicing with parents, therapists and teachers to prepare for what will happen at typical Halloween festivities.

The issue is one more wrinkle for schools looking to mark a holiday that’s grown more complicated. Accommodating children with special needs is just one concern for school officials, along with kids with food allergies or those with religious beliefs that clash with Halloween. The growing complexity has caused some schools to scale back, or even cancel, celebrations.

In Elgin-based School District U-46, some elementary schools do not plan special events surrounding Halloween, said spokeswoman Mary Fergus. Administrators there recognize some students don’t mark the day, and they want to be inclusive of all students, she said.

And in St. Charles Community Unit School District 303, officials have curtailed Halloween celebrations in recent years, said spokeswoman Carol Smith. They simplified activities for a variety of reasons, including an awareness of students with severe food allergies and differences in cultural beliefs, she said.

O’Toole’s son Patrick, who is in a special education classroom at Patterson Elementary School in Naperville, doesn’t have Halloween activities in school this year, she said. In the past, he was given a choice to participate.

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Patrick O'Toole, 8, left, sits in his bedroom closet, which he pretends is an elevator, with his brother, Finn, 10, at their home Thursday, Oct. 26, 2017, in Aurora.
(John J. Kim / Chicago Tribune)


Like many kids on the spectrum, Patrick doesn’t like things that are out of the ordinary, so dressing in costume at school parties or for trick-or-treating is out of the question, O’Toole said. Instead, he stays at home with one of his parents on Halloween night, confused every time the doorbell rings and children he doesn’t know ask him for candy.

Because O’Toole’s older son wants to take part in holiday fun, the family is forced to split up on Halloween. This year, O’Toole’s older son will dress as a hockey player, and she’ll offer a simple jersey as a costume to Patrick to see if he’ll want to join his brother this year, she said. “Really, it’s a game-time decision.”

Katurri Phillips, director of therapy at By Your Side Autism Therapy Services in Burr Ridge, Morton Grove and Schaumburg, said she works with children on the spectrum to practice Halloween activities so there’s a better chance they’ll participate with their families.

“We want them to feel that they’re a family,” she said of her clients. “Even though one individual has different needs, they can still look forward to events.”

Therapists instruct families to practice trick-or-treating and discuss what will occur at school events, Phillips said.

At Kingsley Elementary School in Naperville, special education teacher Jacqueline Bahr reads her students booklets called “social stories.” One describes what will happen at the school’s fall festival celebration, and another focuses on trick-or-treating.

“It helps with expectations for things they might encounter,” Bahr said. She also facilitates a role-playing exercise in which students knock on classroom doors during mock trick-or-treating, and on Halloween, she sets up a calming area in her classroom for any students who need a break from the festivities in their regular class.

“As part of our inclusive practice … it’s good for (special education) students to be a part of (the class parties),” Kingsley Principal Erin Marker said. “But there does come a time when the music and the lack of structure and routine will impact them in a negative way, and they’ll want to go to a place where they can feel regulated.” She added that students can choose not to participate if it’s too overwhelming.

Destiny Puente ,of Naperville, whose 7-year-old son, Ty, is on the autism spectrum, spends each fall preparing him for Halloween. “Every year is different,” she said.

Rationing candy is a struggle, Puente said, explaining how she tries to limit gluten for her son. Special diets are common among children with autism, she said.

Costumes are another hurdle. In the past, Puente has purchased costumes far in advance to be able to try them on Ty and have him wear them a few times before his school’s costume party. This year, she had to exchange a too-small Charlie Brown costume a week before Halloween, so she’s hoping Ty will be OK without as much rehearsing.

“But who knows? That day he might not want to wear it,” she said.

The feel of the costume can agitate children with sensory issues, and most don’t like anything on their face or head, said Ashley Stoffel, clinical associate professor and occupational therapist at the University of Illinois at Chicago. She suggests trying the costume on a stuffed animal before putting it on the child.

Stoffel also said Halloween decorations outside homes or inside classrooms could irritate a child with sensory processing issues. Preparation is again helpful, so parents should describe to their child what they might see, she said.

Nisha Kakodkar of Naperville said that’s a problem for her 9-year-old daughter with autism.

“She’ll probably last four or five houses (while trick-or-treating), whereas her little sister wants to keep going,” she said, adding the same is true of her wanting to leave parties early because of the noise. “This is true for any event, but especially for Halloween.”

[email protected]

Twitter @knthayer


Source: Halloween tricky for kids on the autism spectrum
 
I have never done anything for Halloween even when I was younger and parties in general have always been one of my most hated events (I've been to a couple in my whole life when badgered to and I'm 48), in the UK Halloween isn't such as big thing as in the USA, but in more recent years it has grown due to marketing companies wanting to make more money from it (that's what it all comes down to really, marketing). I don't even do anything for Christmas as an adult let alone for Halloween and the change in routine + noisy build up just annoys me, especially all the people drinking and busy shops Etc. As a child I used to like Christmas, but only because I wasn't at school which I hated and could do my special interest all day, and I liked the presents too, but that was all. Similarly with New Year's Eve I never do anything different, I always see in midnight on my PC as usual, but the fireworks now annoy me (they annoy me even more running up to November 5th as people start weeks early these days). Fireworks were never a standard tradition for normal families on New Years Eve / Day, only for a couple of major special events, but again it comes down purely to marketing and the desire to make more money, fireworks were intensely marketed for the new Millennium and companies used this to change tradition and to now sell extra fireworks every year.

In fact marketing companies are constantly pushing for more and more "special" days to celebrate and to make a bigger and bigger thing out of them to make more money. For instance St. Patrick's Day (St. Patrick is Ireland's patron saint). St Patrick's day was never celebrated in England when I was younger and since it's England why should it be a big thing? Well this didn't stop Guinness who started heavily marketing it with posters in numerous pubs and countdowns to St. Patrick's Day which was marketed as a day for drink and celebrations. It worked and soon St. Patricks Day became a major drinking day in England and of course no-one cares who St. Patrick was or anything about any tradition. Now there's parades on St. Patrick's Day and it's become a really big thing and of course they sell lots of Guinness, drink and much more, they even sell masses of large St. Patrick's Day Guinness hats (I hate the whole thing). In fact Irish pubs (which are now also a much bigger thing in England due to marketing and are seen on most high streets) are often not only celebrating a St. Patrick's Day, but it's now become a St. Patrick's Week and often events run at the nearest weekend as well as on the actual day (some events like parades are now even often sponsored by the local council). It's PURE marketing and when will it ever end? Well they keep trying to also promote St. Georges Day which so far hasn't been too successful in England even though St. George is England's patron saint so should be celebrated over St. Patrick's Day if anything was celebrated at all. There's already a Mother's Day and Father's Day which are both another marketing created day for selling presents, cards and services (E.g. restaurants), but they tried to create a Grandparents Day too, they are clever as they make people feel guilty if they don't buy a card / present on these marketing created days. Valentine's Day is mainly celebrated due to marketing too and Halloween is certainly celebrated much more due to marketing.
 
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It's also tricky for adults on the spectrum too. Noisy flaming kids knocking the door repeatedly.
 
Here’s a genious solution, from a genious mom (me): skip the whole thing. Drop it. Get over it. Let him skip school that day if you think the teachers will be offended if he doesn’t put on a costume. Don’t take him to the halloween party if he doesn’t want to.

And live happily ever after, or live happily that day. And stop torturing the poor kid making him do something that he doesn’t like.

My son absolutely does not like to dress up, trick-or-treating, any of the candies he collects, the mayhem of the kids, nothing. I, in the other hand, love halloween, and my daughter used to love it when she was smaller. I tried every trick under my sleeve in the past to make him like halloween, and nothing.

So I happily gave up.

There is one thing he likes though. Every year we buy a pumpkin, carve it and put a candle inside (I used to decorate home for halloween, not anymore). He likes that.
 
It's also tricky for adults on the spectrum too. Noisy flaming kids knocking the door repeatedly.
I enjoyed Halloween as a child. My two older children love dressing up and going trick or treating, but my youngest isn't interested so I'll be staying home with him because I do not want to be wandering around waiting for the other two to have enough. I've got a note to put on the door telling people not to knock and leaving a bowl of sweets outside. Dog barks every time the door goes and it drives me mental.
 
It was easy on me when I was a kid. My family lived in a rural area where no one ever came to the door for Halloween. When I was very young my parents took me trick or treating to a relative or two. That was it.
Where I live now Halloween is huge. A parade and a couple of thousand trick or treaters. All the chaos last till about 9. We haven't given out candy since I have been here but this year, with an extra person around, it looks like we may, (well not me actually, but the other two in the house). Woke up scared and had bad dreams all night. At least fireworks are not a Halloween thing.
 

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