• Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

Hello, A wife of a potential ASD partner. Needing advice

Is this how to get a diagnosis?


  • Total voters
    1
  • Poll closed .

H47137

New Member
Hello!
I am a bit nervous as I have never been on a forum before!
So I have been with my husband for 7 years, and it has only been this year that I have realised that my husband might have Asperger or high functioning autism. I think he also displays some behaviours of PDA. His family and close friends agree that he has, and he has agreed to go to the GP to get a formal diagnosis. I just wanted some advice on gaining a diagnosis and if my presented case below would be enough to get him a ref feral, let me know what you think! My apologies for it being so long.

About Marlon and his behaviours-What they are, why a diagnosis could help and the life struggles we have.

Marlon has had a firm diagnosis of OCD as a young teenager and was seeing a Psychologist. They we going to explore the route of other diagnosis but at the time Marlon did not want anymore labels, and did not have the correct support network around him. Marlon is intelligent and will socialise with others but is very clever at manipulating. Marlon has managed his OCD himself throughout his life, and feels like he has control over it, however there are times this is tested and he can revert back to old habits.

Marlon has followed a vegan diet up until the start of this year, which is when he decided to eat anything. Since this switch in diet it has become more apparent that he could be on the spectrum and possibly have signs of PDA.

I have been with Marlon for 5 years and married for 7 and I had noticed little things about him that I just found quirky at the time, but recently certain situations can be unbearable and our marriage has been on the line. This then lead me into looking up some of his behaviours as I work in SENCO myself, and I strongly believe that Marlon could have high functioning Autism(Aspergers) and some traits of PDA. I have approached Marlon about High functioning Autism and although it has been hard for him to understand, he feels that his life makes more sense if he was to have this. I had also contacted his Nan who he grew up with and he has contacted some very close friends to ask them their thoughts, they all came out with a definite answer that Marlon has Autism, or some form of this. The following is a list of his behaviours.


*Confusion when making decisions-overthinking and analysing.

*Out bursts, these are verbal but can feel like emotional abuse as this is normally directed at myself as I am the closest person to him. He gets in a rage going from 1 to 100 with no warning. He will shout, swear and blame me for lots of things, along with name calling. Afterwards he then doesn’t realise what he has said, along with not meaning it either.

*One of Marlons triggers is noise. We have moved house 5 times or more due to Marlon not being able to cope with certain noises. If we are out and about or in the home, if he hears noises like a motorbike he gets verbally aggressive again and completely flips out not being able to control himself. It can be any noise from something falling off a table or dropping on the floor. Marlon can sometimes been seen covering his ears. This has also affected Marlon at work.

*Marlon has always had trouble sleeping, he doesn’t seem to switch off very easily and has to allow 1 to 2 hours to try and fall asleep, then even when he does he gets up in the night to urinate and unusual amount of times.

*Marlon is unable to see anything from my point of view or the point of view of others. He can appear self centred and struggles to have a conversation unless it is something he is able to relate to or is interested in. Marlon can not understand my feelings, will very rarely feel the need to apologise for anything, and can seem emotionless.

*Marlon can not seem to self regulate or control his emotions. He seems to have spikes of being very happy to very grumpy, almost childlike.

*Marlon has his set routines and when broken or in a rush, can become verbally aggressive and difficult. Marlon likes to take his time over his routine in getting ready and making sure all of the switches are off in the house before leaving.

*Marlon does not like being told what to do, he can be very manipulative to try and get out of situations and will also become verbally aggressive and put the blame on the other person. This has affected him in jobs. Marlon normally has to be right and does not take criticism well.

*Marlon notices tiny little things about his environment that I will not notice, this leads him to getting very angry with me due to his lack of understanding that what he observes is different to mine.

*Marlon can take some sayings literally and does not like small talk and thinks it is pointless. It is not uncommon for Marlon to walk off or completely ignore you.

*Marlon has always been obsessed with fitness and physique, he knows all fitness routines and nutritional information and will memorise it. He is super strict with his routine and obsessed with calories. He has recently become obsessed with my fitness routines and my weight, often calling me fat and lazy despite working out and being in my BMI. Marlon is obsessed with perfecting fitness.

*Marlon has childlike behaviour with friendships. Recently he has made a best friend, the first time in years. This other girl has OCD and Autism so he must be able to relate to them well as it sounds like they are pretty similar. It is not uncommon with a group of friends for Marlon to be stood facing his best friend, even when others are there and he has his back to them, He seems possessive about the friendship due to being so intense and gets frustrated when people may not realise that they are best friends. He wants other people to know that he knows her better and that she is his best friend. He will not let me meet his friend due to hime being worried that I will make friends with her as well. He said if this was to happen they cannot be friends.

*After a busy day Marlon needs at least 2 hours to himself doing his own thing. Can be very distressed if disturbed.

*Marlon has a very good memory and will struggle to understand why I do not. He is unable to see that he can see and do things differently that others cannot.

*Marlon has an extreme fear of flying.

*Marlon has started to suffer with random panic attacks.

*Has suffered with bad stomach, IBS type of thing.

*Marlon will tap his fingers - his form of stimming I think.

*Marlon can repeat words people say or get stuck on a sentence.

The reason we both feel a diagnosis would be beneficial, is due to our marriage nearly ending. We want to stay together and make it work but are unsure what strategies we need to put in place, along with some support. The behaviours especially the verbal outburst are emotionally draining for myself and can be very hurtful. I feel I can not support him until I know what I am doing and know where to get support from. I feel Marlon needs some form of counseling, especially if he does get diagnosed, maybe medication to help calm him. Marriage counselling may help to as I have no idea on how to cope when Marlon is not having a good day, which is quite regular. Marlon can not process noise properly which affects him every day and ruins his quality of life, along with many of the other things listed above.

We would really appreciate some help and support as both of our quality of life at the moment are not good. Please point us in the right direction.


GP’S RESPONSIBILITIES
In Wales, your GP should be following NICE guideline 142 and be aware of the Autistic Spectrum Disorder Strategic Action Plan.
 
I'm married and exhibit many of the same behaviours.
I did get diagnosed as being spectrum/high functioning.

The diagnosis:
- put a label on it
- has helped my wife and i understand the why
- but has not magically changed my behaviours

The only real benefit i have had from the diagnosis:
- i've learned to recognise when things are starting to go wrong and develop actions to help me avoid further escalation
- my wife has learned that many things are just not going to change, so we have adjusted, pe going out to dinner outside of peak hours, book holidays outside of season, not get insulted if i need to block out noise or be alone for a while...
- realising its important to listen to my wife, i may not always understand her points of view, or agree with them, but she is entitled to them and i have decided to be with her, so i have to listen to her comments and needs respectfully
 
I'm married and exhibit many of the same behaviours.
I did get diagnosed as being spectrum/high functioning.

The diagnosis:
- put a label on it
- has helped my wife and i understand the why
- but has not magically changed my behaviours

The only real benefit i have had from the diagnosis:
- i've learned to recognise when things are starting to go wrong and develop actions to help me avoid further escalation
- my wife has learned that many things are just not going to change, so we have adjusted, pe going out to dinner outside of peak hours, book holidays outside of season, not get insulted if i need to block out noise or be alone for a while...
- realising its important to listen to my wife, i may not always understand her points of view, or agree with them, but she is entitled to them and i have decided to be with her, so i have to listen to her comments and needs respectfully
It is so nice to get a reply from someone on the opposite side to me. It helps me understand what my expectation should be. Part of going for a diagnosis is to help him come to terms with it more. I want him to be confident to say hes autistic and not be ashamed and embrace it and I would like to help with this. It is hard to get the support you need, how do you manage this with your wife?
 
Sorry, I don't have time at the moment, to read through your post, but, if by 'PDA' you mean Pathological Demand Avoidance, just so you are aware, it is pretty much part and parcel to ASD. Some to a far lesser degree, and with some, it is the bane of ASD.

No I did not realise that it was part of it. I had a lady who i work with mention that he sounds as if he has PDA, so if linked, he could have traits of this as well.
 
It is so nice to get a reply from someone on the opposite side to me. It helps me understand what my expectation should be. Part of going for a diagnosis is to help him come to terms with it more. I want him to be confident to say hes autistic and not be ashamed and embrace it and I would like to help with this. It is hard to get the support you need, how do you manage this with your wife?

a lot of talking,
i'm continuously trying to minimise emotional stress situation, to achieve this i have learned that it is more efficient to have an actual conversation, rather than start to judge, be convinced i'm right but have to spend hours fixing the mess it has made, i don't always succeed but i try
 
PDA, it is great that society comes up with so many labels to describe what is wrong with us. Hell, we don't need anymore labels. What we need is some unconditional love and understanding for a change. If I display PDA behavior, it is due to the fact that I'm exhausted trying to survive in a world not set up to meet the needs of someone with ASD. Many with ASD are exhausted and put forth tremendous effort, yet it never seems to be enough.
 

New Threads

Top Bottom