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Hello all

Paul1969

New Member
My name is Paul and I am almost 50 years old, sigh. I came to this forum not for myself, but for my daughter Lotte who will turn 16 in 10 days as of today. She was diagnosed with ASS at a very young age, can't remember exactly when but she was having challenges in her life since going to school (4 in the Netherlands where we live). I guess her "spectrum-behaviour" was there even before that, but less apparent.

A few years into school she was diagnosed with "a mild form of ASS", which is such a large container that we didn't really pay a lot of attention to it. However with age her issues didn't go away but grew larger. So about a year ago she went into 2 separate therapies: one for her depression/autism and one for her eating disorder. I skip the 10 years in between where she had several therapies that all resulted in disappointments.

The good news is that due to the eating disorder therapy Lotte is now showing progress in what she is able to swallow. For example she doesn't eat any fruits or vegetables at all and/or anything she doesn't already know. (Her diet on a daily basis consists of 1100 calories and lacks all the required elements like vitamins, minerals, proteins, fat, iron, etc. )

And the autism therapist also made some progress. First she explained to me that Lotte doesn't have "a mild form of ASS", but is probably an Aspergirl. She gave me a few books to read and that has been eye-opening. After reading those books, talking to the therapist and obviously also talking to Lotte, Asperger seems much more likely than classical autism.

The reason I came to this forum is that I still have some questions or rather I am in need of advice on stuff that I couldn't find in the books. I hope to find them here.
 
Welcome! There have been many people like yourself who've come here to seek guidance in understanding their loved ones who're on the Spectrum.
 
Hi Paul

welcome to af.png
 
Welcome Paul!

Maybe your daughter would like to come here too?

The only difference between classic autism and Aspergers is thecwuestion of language delay.
Language delay plus the other autism symptoms equals classic autism.
No language delay plus the other symptoms equals Aspergers.

The other symptoms considered necessary are social communication difficulties (reading body language etc) and "stereotyped repetitive behavors//restricted interests" (stimming in autistic ways//special interests or passions).

Barely squeaking by with just enough autistic symptoms equals pdd-nos or pervasive developmental disorder not otherwise specified.

The Americans have lumped everything together into one category. My understanding is that some other countries have not.

Then there is BAP or broad autistic phenotype (sometimes referred to as sub-clinical autism) with even less features than pdd-nos.

Two adults who use voice to talk-- put together one Autie and one Aspie-- are pretty much indistinguishable.

Auties and Aspies present differently in childhood for sure.

Anyway, questions are always welcome. Some of us tend towards long answers though.

I wish you and your daughter the best.
 
Hi. It's wonderful that you are willing to come here for your daughter.
Don't worry so much about her diet. I had people get mad at me because when my daughter would go to their house she wouldn't eat anything healthy like vegies. I was forced to eat things that made me gag so I would never try to make my kids eat something they didn't think they could handle. Actually, kind of funny. I'd try to talk them into tasting something and they'd turn their heads in disgust, But other times one of them would try to get me to taste something and I'd react the same way - noooooo. lol Anyhow, to move on - one dad brought my daughter home saying she was not welcome there any more (all the family members were obviously good eaters and my daughter was this puny little thing that ate probably a total of 6 things). So one of her regular check ups I asked the doctor to check her labs to see her nutrition levels and they were fine so whenever someone would complains after that, I'd tell them she was apparently getting what she needed and I had labs to prove it. :)
 
Wow, you've been through a lot. Which seems to be a requirement for finding this place.

Sort of like Narnia. :eek:

I'm glad you're here!
 

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