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Hello ! And a question... :)

Els

Well-Known Member
Hi, I'm not a diagnosed autist nor a self-diagnosed one - I'm just having the exact same life story than other Aspies. Is it asperger in me also? Who knows.
For the most shared thing (amoung others), I learned about the eye-contact thing at 18, and spent several months practicing in different situations in order to understand how that thing was working (the timing, the places, the different people, sex, age, etc, in some instances eye-contact practicing put me in some odd situations lol).

As a kid, I wasn't playing with others because I couldn't understand the concept. At 2 years old I was accepting to eat only sausages and milk (strictly), this lasted for many months 'till my uncle got so angry that I remember fearing for my life (really tragic). And so on, for about everything in my life, I've got plenty of those stories. I read people having the syndrome talking about their way through life and I'm all the time... astonished. Even tiny odd behaviours I never connected... are present in others. The main thing, is that what seems to come naturally for other people is an enigma to me and I'm extremely bad at adapting and respond to something unexpected. The first time I heard about a woman talking about her life with asperger, I cried and laughed. I had no idea other people were struggling like me. I don't have a diagnosis, but I don't really care about. My struggles are the same than people with the syndrom, that's the only useful thing to me. Now am I one? It doesn't make any practical difference to my mind.

I'm 27 now and I can say that I somewhat successfully managed.
I have become good at reading other people, responding somewhat accordingly (if there's nothing out of the ordinary), good at spotting lies and manipulations (really useful skill), somewhat good at communicating, being aware and conscious of my own emotions, handling my sensitivity and tiredness about rapid movements and lights, etc. I seem quiet normal; still shy and somewhat avoidant in relationships through (but relationships and communicating are tiring for me, especially because people need to be read rather than just telling things straight). I became mostly aware that most "normal" people are doing huge mistakes all the time too, but one big difference is that they just look sure of themselves.

I realized some weeks ago that I actually grew up and have collected so much knowledge through the years that I'm not that deficient anymore if nothing out of the ordinary happens (that being said... out of the ordinary happens everyday). I'm overall okay and know how to deal even if I still fail here and there, think that I can (or could've) adjust(ed) this or that behaviour/answer/social code/etc; or have to learn/understand new details/patterns about other people's expressions. I just realized that at the moment, all those stuffs are just adjustements I need to make, that's not anymore so huge that I want to disappear. I feel more comfortable in life, but not that comfortable. Especially because of my copying mechanisms taking me a lot of energy, while I could actually just calm down compared to the huge work it's been as a kid and teenage and as a young adult.

So here's finally my question - sorry for the book I wrote.
Is there anyone with asperger who feels almost fully comfortable in (with) his/her life in the end? Is it possible or do you still feel all the time uncomfortable or scared/anxious as if it was a second skin, because there's always something not automatic/predictable that will arise?

I am so bored to feel uncomfortable all the time. I feel like my copying mechanisms were extremely useful as a child/teenagegirl/young adult; but now at 27 I actually objectively deal with most things quiet well... (That wasn't always the case, but I have a lot more understanding and knowledge now). Yet, those mechanisms and this feeling of being uncomfortable are staying...

Just an example : today I was on my bike and 2 people asked me out of the blue where to find supermarkets. I live out of the city, so I tell them where is the nearest city. Then I think that there's no real supermarket there. So I start a dissertation as to why they should actually go to the second city and how to go there. The guy told me "ok thanks" repeatedly and I didn't get that cue... but it actually didn't matter.

I spent some hours thinking about decoding their behaviour, and trying to adjust what I could've said or done differently to seem more normal and understand and act in a better way; etc. All of this has no point to be done anymore. As a small girl, yes, it was a question of survival. Now at 27, it doesn't matter - and nobody cares. But I'm still doing such stuffs and feeling weird and uncomfortable with all that, like a second skin.

Does that ever leave? Is there an asperger living and being comfortable with those stuff? Pleaaaaase?? Ahah.
 
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Welcome. This is why so many of us Like being alone because we don't always have the correct tools for social interaction. I just have good and bad days. I accept that now. On my bad days, l remind myself to limit social interaction and say less. On my good days - l am a powerhouse. Some of us have more bad days than others. The higher you land on the spectrum means better at social interaction.
 
I get your post the constant strain of adjust and over thinking and for me it hasn't gone away but it matters less than it has and my self acceptance has improved, so my advise be kind to YOU know who you are and work with how life is on a day to day basis, welcome to the forum.
 
Welcome! Whether formally diagnosed, self-diagnosed, neither, or just looking, there is a lot of good info on this forum. I hope you find this forum as welcoming and useful as I have.

To answer your question: I feel like I am comfortable with my life. I will always have my awkward moments, my anxieties, difficulty dealing with change and surprises and the like. I don't expect my life to be filled with rainbows, bunnies, and unicorns all the time. But overall, I am comfortable with who I am and how I get along. I feel like I've been able to make a decent living using the gifts God gave me, and I feel like a lot of people around me understand me (especially my family).

Getting diagnosed was like unraveling a hundred knots - suddenly so much made sense, and I feel more freedom to be myself and mask less. It also helps to know that the anxiety I sometimes feel is coming from inside my head and not from outside reality - it's helps dispel it some.
 
Hi, I'm not a diagnosed autist nor a self-diagnosed one - I'm just having the exact same life story than other Aspies. Is it asperger in me also? Who knows.
For the most shared thing (amoung others), I learned about the eye-contact thing at 18, and spent several months practicing in different situations in order to understand how that thing was working (the timing, the places, the different people, sex, age, etc, in some instances eye-contact practicing put me in some odd situations lol).

As a kid, I wasn't playing with others because I couldn't understand the concept. At 2 years old I was accepting to eat only sausages and milk (strictly), this lasted for many months 'till my uncle got so angry that I remember fearing for my life (really tragic). And so on, for about everything in my life, I've got plenty of those stories. I read people having the syndrome talking about their way through life and I'm all the time... astonished. Even tiny odd behaviours I never connected... are present in others. The main thing, is that what seems to come naturally for other people is an enigma to me and I'm extremely bad at adapting and respond to something unexpected. The first time I heard about a woman talking about her life with asperger, I cried and laughed. I had no idea other people were struggling like me. I don't have a diagnosis, but I don't really care about. My struggles are the same than people with the syndrom, that's the only useful thing to me. Now am I one? It doesn't make any practical difference to my mind.

I'm 27 now and I can say that I somewhat successfully managed.
I have become good at reading other people, responding somewhat accordingly (if there's nothing out of the ordinary), good at spotting lies and manipulations (really useful skill), somewhat good at communicating, being aware and conscious of my own emotions, handling my sensitivity and tiredness about rapid movements and lights, etc. I seem quiet normal; still shy and somewhat avoidant in relationships through (but relationships and communicating are tiring for me, especially because people need to be read rather than just telling things straight). I became mostly aware that most "normal" people are doing huge mistakes all the time too, but one big difference is that they just look sure of themselves.

I realized some weeks ago that I actually grew up and have collected so much knowledge through the years that I'm not that deficient anymore if nothing out of the ordinary happens (that being said... out of the ordinary happens everyday). I'm overall okay and know how to deal even if I still fail here and there, think that I can (or could've) adjust(ed) this or that behaviour/answer/social code/etc; or have to learn/understand new details/patterns about other people's expressions. I just realized that at the moment, all those stuffs are just adjustements I need to make, that's not anymore so huge that I want to disappear. I feel more comfortable in life, but not that comfortable. Especially because of my copying mechanisms taking me a lot of energy, while I could actually just calm down compared to the huge work it's been as a kid and teenage and as a young adult.

So here's finally my question - sorry for the book I wrote.
Is there anyone with asperger who feels almost fully comfortable in (with) his/her life in the end? Is it possible or do you still feel all the time uncomfortable or scared/anxious as if it was a second skin, because there's always something not automatic/predictable that will arise?

I am so bored to feel uncomfortable all the time. I feel like my copying mechanisms were extremely useful as a child/teenagegirl/young adult; but now at 27 I actually objectively deal with most things quiet well... (That wasn't always the case, but I have a lot more understanding and knowledge now). Yet, those mechanisms and this feeling of being uncomfortable are staying...

Just an example : today I was on my bike and 2 people asked me out of the blue where to find supermarkets. I live out of the city, so I tell them where is the nearest city. Then I think that there's no real supermarket there. So I start a dissertation as to why they should actually go to the second city and how to go there. The guy told me "ok thanks" repeatedly and I didn't get that cue... but it actually didn't matter.

I spent some hours thinking about decoding their behaviour, and trying to adjust what I could've said or done differently to seem more normal and understand and act in a better way; etc. All of this has no point to be done anymore. As a small girl, yes, it was a question of survival. Now at 27, it doesn't matter - and nobody cares. But I'm still doing such stuffs and feeling weird and uncomfortable with all that, like a second skin.

Does that ever leave? Is there an asperger living and being comfortable with those stuff? Pleaaaaase?? Ahah.

Hi Els!

You sound a lot like me when I was your age. I am now 61, have had a reasonably good career, and have been married the past 28 years. Also, I was diagnosed with ASD by a psychiatrist this past January. For the most part, I am satisfied with my life and accept my limitations. To the extent possible I avoid or eliminate outside sources of conflict. For example, extracurricular activities involving people who prove to be contentious.

I can't add much to the advice you have already received. I did not seek a diagnosis, but I have accepted it and agree with it. Understanding the social anxiety and sensory input issues has enabled me to get better control of these issues. Welcome to the forums.
 
... The first time I heard about a woman talking about her life with asperger, I cried and laughed. ...

I spent some hours thinking about decoding their behaviour, and trying to adjust what I could've said or done differently to seem more normal and understand and act in a better way; etc. ... Is there an asperger living and being comfortable with those stuff? Pleaaaaase?? Ahah.

This was like when I read the autobiography of an autistic lady! I was then "diagnosed" by (workplace) educationalists.

Above all - it's great to be thoughtful: this is a wonderful strength in us, waiting to take pride of place! :) :) :)
 
Welcome Els.

I relate to the things you posted on.
The eye contact thing I never accomplished, but, it was just so uncomfortable I never really tried.
And now I'm 63, so none of that stuff really matters now.
It mattered when I was employed, so I learned to mask very well.

I was happy with immediate family as a group. Parents and grandparent. Had no siblings.
I can't say I am comfortable with the end results of my life since I was never comfortable with other
people and not happy totally alone.
Family is deceased now so I have no people to feel comfortable with and it makes me feel alone.
I don't like that.
But, all in all, I've lived a comfortable life for many years. Just feeling the loneliness and problems with
physical disablilities also now.

Some find they adjust and have a pretty comfortable life, others not so much.
We're all different with different life circumstances.
 
I'd think they thought you appeared normal or they wouldn't have asked you those questions. Or they were doing a skit out in public, a really really peculiar skit...

IMO, you don't have to be perfect in interactions though. Don't worry about it.

No, I'm not comfortable at all. ever.
 
Hi and welcome. Everyone has stuff, is the way I see it. Some have dyslexia , dyspraxia, brain difference, diagnoses, some have depression, disabilities, hereditary conditions, mental illness, physical illness, combinations of all the above... Some have challenges from social conditions, stigma, prejudice, social unrest or wars. Oh yes and pandemics. We are all up against stuff is what I mean. It's normal. If you didn't have the stuff you have, you'd be somebody else with other stuff.

Useful? Or irritating... Anyhew, I have tackled my issues determinedly over many decades, powered by a focussed ability probably produced by the autistic traits I didn't know of, and I had a reasonably ok time. Ups and downs. Good employment and trainings I enjoyed. Challenges on the relating fronts. Therapy and self development has helped a lot.

Be kind to yourself, and use the knowledge of how you are to work out good strategies for yourself. Don't brood or over focus on stuff, we can get caught up in that, it's a dead end. Distract yourself.

I hope you enjoy it here, people are friendly.

:herb::blossom::leafwind::sunflower::seedling::cat:
 
Thanks everyone for welcoming me, your answers, and for sharing your experiences :blush: I enjoyed to read them and happy to join.
Menander, I don't know how to get tested so I might start to look into that, but it seems stressful... I'm not really sure I want to deal with that... I'm scared to be told that this isn't what I've got because it's not visible (and indeed it's not visible at all, from choosing my clothes to the smallest eye-contact made, I take extreme care of no being caught :D ), or to be distressed by the whole proceedure, or I don't know. It seems hard to get diagnosed (I live in France). I don't really know.
 
Only if it is needed in order to open doors not being opened meantime by you & people you mix with / read about. Some forum members had one young, and it helped with schooling.
 
Yes, I think it would've been more helpful if I was younger, school was a nightmare. I hope it gets better for other children as they get diagnosed. I'm happy I survived and the diagnostic might make their survival less difficult, at least I hope so. Now at my age I don't really know. I will start by checking it out and go slowly.
 

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