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Hello everyone!

Starfire1

New Member
Hi, I'm not sure if I'm in right place but here goes!
Until recently I just thought I was a loner who prefered my own company and had largely given up on having friends and socialising. From childhood I only ever had one friend at a time if that, and I was and have become aware that I can be very intense and demanding on that person. It wasn't that i didn't want more friends, and to fit in, but I always found myself alone and looking in from the outside. I couldn't, and can't seem to find a way to join in or introduce myself to anyone or anything, without a keyboard. I feel too awkward and uncomfortable.

My interests which are a great source of refuge and protection for me are computers, the internet, and programming which I learn for fun, horticulture especially bonsai, and locks focusing on the art of lock picking.

I am especially sensitive to noise and sound in general but particularly any low pitched humming, buzzing, bass type sounds, they drive me crazy. I seem to hear and be upset and hugely irritated by sounds that my family claim are barely audible. To me however, they are piercing to distraction. I find artificial light especially fluorescent lighting makes me feel nauseous and again, the low pitched buzzing sound they create is extremely irritating.

I only wear loose fitting clothes made of soft materials such as cotton. I can't bare to feel restricted and the labels must be removed as they feel like sandpaper constantly rubbing against my skin.

I was 45 before I found full time employment. Before that I was unemployed for long periods, or worked in a self-employed capacity. I am fortunate to now be valued by my employer, and I enjoy the regular routine of work. He knows i am very precise and things must be done properly, I don't cut corners where others do, or take short cuts. I have the ability to plan a job, set it out in my mind before I start, I know starting points and measurements before I've looked at a drawing or picked a tape measure up. It sometimes feels like I have software in my mind and that gives me a complete 3D image of a job and I can visualise, pick up and rotate, and see my work from different angles.
I know my work colleagues think I'm odd, I'm often the butt of jokes I don't understand and the first one to have a prank or practical joke played on as I don't see it coming. I have problems taking them and others literally, and often get confused if I don't get clear step by step instructions, and I can't read minds. For example my wife recently asked me to peel potatoes for mash to go with dinner, then disappeared upstairs. I peeled the potatoes then went back to what I was doing. After 20 minutes she returned to ask why I hadn't chopped the potatoes and put them in boiling water. I told her because she asked me to peel them, which I did. "Is it not obvious they needed chopping and put in water?" To me it really wasn't, I did what I was asked. Had I been asked to peel, chop and put in water I would have, no problem, but I wasn't so I didn't. I really wasn't trying to be smart with her, I thought I'd been helpful. This may be a poor example but this type of thing happens to me very regularly and it's extremely draining. I find a lot of things very draining, and I need to be left on my own to recharge myself.

I have kept this as brief as I could, but I'm aware it's an introduction not an autobiography! :)
So am I on the spectrum? I don't know. I am just me. I didn't even know there was a spectrum until very recently when it was suggested I look into it. So I did, and I was really quite shocked when I realised there were other people with similar struggles and difficulties to mine, as well as similar talents.

To conclude, after contacting my local mental health team and writing as requested, a bit about myself, history, difficulties and day to day problems I was accepted onto the waiting list for an ASD assessment. After a wait of months and months, I have been given a date in December for my appointment. I am incredibly nervous about it.
 
Awesome, I totally relate. I am so glad you found a job that suits you as this has been a problem with me too. I hade fluorescent lights, I go bats hit crazy if there is a fly in the house buzzing. The buzzing sound strikes some sort of crazy chord in my brain. I will shout at my husband if he coughs. I can't handle bright lights or too much stimuli from different directions. I find eye contact too intense most of the time unless I am angry with the person and can fix them with an intense glare. I sometimes hate people and their noises and trivialities. I also love some very thoughtful people though. I believe I am on the spectrum but have never been diagnosed. I respond well to routine as I can go nuts without it, get myself into trouble. Anyhow, good to read your autobiography lol
 
Hi Winddatburns, thanks for your reply.
It sounds like we have a lot in common. I can totally relate to what you said. I think I'm not too bad with eye contact unless it's a confrontational type situation which I usually try to avoid at all costs. That's when I particularly find eye contact excruciatingly difficult. Everything else about light and sound I share too. Thanks again for your reply:-)
 
Yes, it does sound as though you're both on the spectrum. I can't get a diagnosis either, as I don't fit the stereotype, but have confirmed it after reading up on the subject. "The Autistic Brain" by Temple Grandin, and "The Autistic Spectrum" by Laura Ewing are especially helpful.
 
Hi Starfire,

Welcome to the forums. I understand so many of your points, they are so like my own feelings. :D

I'm not a doctor but it certainly sounds like you may be on the spectrum. Glad you requested a proper assessment and hope you found out what you want to know from it.

You might find it interesting to do the RAADS online testing quiz. It is not a firm diagnosis but it can give you a good idea about possible Autism qualities. :cool:

http://www.aspietests.org/raads/
 
Hi Katherine, thank you for your reply.
Whether I'm on the spectrum remains to be seen, I won't know for sure officially one way or the other until December. I'm surprised how many people seem to struggle to even get an assessment, nevermind a diagnosis. I think I must have been very lucky, I found it relatively easy to get on the waiting list. It maybe because I bypassed my GP as it seemed illogical to wait for a GP appointment, then put myself through the unnecessary stress of asking to be referred, then wait to be told if the practice budget could accommodate the finances for an appointment etc etc, and see my request drag on and on. My GP practice may not be happy that I didn't follow protocol, and give them the opportunity to fob me off in an attempt to save funds, which appears relatively common as regards requesting ASD assessment referrals. That however is not my concern, I am not asking for anything I'm not entitled to.
 
Hi StephF, thank you for your reply.
I'm glad you too share similar points, it was kind of you to let me know. I have reached nearly 50 years old and have always isolated myself as much as possible because I know that people find me different/odd. I don't think I am, I just need to do things my way, even if it's not perhaps how most people would do things. It's nice for me now however, to read what you and others have written, and to see that other people have the same or similar differences, or 'eccentricities' for want of a better word.

I took your advice and followed the link to the test that you shared. My score was 205 whatever that means. That's the best score I've ever had in a test, I wish I was as successful when I went to school all those years ago! :-)
 

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Hi Starfire :)

I am also just discovering whether I am an aspie... I'm going to broach the subject when I start therapy in December.

Like you lights disturb me, but only strobey/flashing types... Soft, slow moving or twinkly light I enjoy.

Sounds aswell - Shouting, screaming, motorbikes/large lorries, banging/crashing etc all agitate me immensely.

Theres lots of other things that point me in that direction, but I won't waffle!

Welcome :) xx
 
Hi Ksheehan88, thanks for the reply and warm welcome!

I agree strobe and flashing type lights are very disconcerting and can make me feel nauseous and give me a headache. Soft or twinkly light that doesn't offend the eyes sounds good, that could be quite relaxing in the right environment.

Shouting and screaming I find very upsetting and disconcerting. As for lorries, banging/crashing etc, I cope reasonably well with during the day as I work in construction so I have learned to deal with those types of sounds. I also know what they are, and that they are appropriate for that environment, but it doesn't mean I like them. I can however now tolerate them at my work place. It helps if I can see what's being done so I can gauge how long they are likely to persist for. If I was to hear similar sounds at home though, I would find them very upsetting. My neighbour went through a DIY phase a couple of years ago and I never knew when it would start, stop, or how long it would last. He really drove me nearly insane and I was very upset with it all going on. I think it was the anticipation as much as anything. Don't get me started on neighbours however! It is my dream in life to live in a detached house by the coast with the nearest neighbour at least one mile away. It must also have high speed internet though!

:-)
 
Thank you so much Judge!

You're right I am indeed finding much in common with many people. I'm actually quite overwhelmed by the kind responses I've received and what I've read so far on the site. It seems there are so many 'different' people here that different is typical and normal, and that's wonderful! If that makes sense.
 
Thank you so much Judge!

You're right I am indeed finding much in common with many people. I'm actually quite overwhelmed by the kind responses I've received and what I've read so far on the site. It seems there are so many 'different' people here that different is typical and normal, and that's wonderful! If that makes sense.

And that "different" doesn't translate into deficient.

But it is nice to discover we aren't in a social vacuum of sorts. That we are not alone in this struggle. :)
 
"And that "different" doesn't translate into deficient"

Exactly! Actually, in my opinion different in no way correlates to deficient.

"But it is nice to discover we aren't in a social vacuum of sorts. That we are not alone in this struggle"

Gosh, it's quite astonishing to find this website and the people here, I really am totally blown away! I definitely was, and am in a "social vacuum" but I had learned to live with that and my interests compensated and shielded me from it.
 
"And that "different" doesn't translate into deficient"

Exactly! Actually, in my opinion different in no way correlates to deficient.

"But it is nice to discover we aren't in a social vacuum of sorts. That we are not alone in this struggle"

Gosh, it's quite astonishing to find this website and the people here, I really am totally blown away! I definitely was, and am in a "social vacuum" but I had learned to live with that and my interests compensated and shielded me from it.

Yeah, I found it startling at first, but quickly came to accept it all positively that I wasn't so unique in being constantly surrounded by NTs I couldn't really relate to. That while we may feel like we're from another planet, it's good to know there are others as well who are "stranded here". ;)
 

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