Hello

[AdultAspie69]

Hi, my name is Earl. I'm 47 yrs old. Live in yemassee, SC. I've been in the mental health system since 1986, but the mental health professionals never really discussed my diagnosis with me. Having trouble tracking down my records, had to self diagnose aspergers. Doctors seem to think i wouldn't understand, so they don't bother discussing details with me. Sorry if this is going too long. Just signed up on this site.

 

[Dadwith2Autisticsons]

Hi Earl. Welcome to this forum. We hope you feel comfortable here. I know you will get lots of support and direction.

You are definitely entitled to know what they diagnosed you with, and to have them explain any treatments and other things with you.

Is there anyone like a family member or friend you know who you would feel comfortable with giving authorization to get this medical record information, if those medical people continue to not listen and cooperate with you?

Sometimes medical people may fear giving information to the actual patients, if they think that information could cause you further harm if you heard or read it, but if you had a representative to act on your behalf, they would likely worry less being forthright and turning records over.

Regardless, you would think after all that time they at least could give a diagnosis to the patient, and explain things. It would certainly bother me. You have a right to know. It is not their right to assume you could not understand, and benefit from such information.

 

[Nitro]

 

[xudo]

Welcome

 

[Danny 74]

Helloooo adultaspie69....!

 

[Streetwise]

I felt the same about the notes the nursing home had for my mother
she had mnd(Lou gehrigs disease) and COULDNT speak so i COULDNT know if she was unwell they rarely called the doctor

 

[tree]

 

[AdultAspie69]

Hi, thanks for the replies.
I'm currently living with my sister. had to move here from another state, leaving behind everything that was familiar (routines and people i knew). moved from CT to SC, so i'm at least 1,000 miles from my hometown. Lived in the same neighborhood in the same town for 45 years. I form stronger emotional connections to places than to people (nobody seems to understand that). i'm feeling alot of grief about losing it all. what makes it worse is that we have to sell the house i've lived in all my life. it's been a real setback to my self confidence. I am trying to get into a support program in this state but they want to know my diagnosis. i don't yet have any counselors or therapists here. there doesn't seem to be much in the way of support programs near where i live now.

My sister is currently my representative and feels the need to speak for me and oversimplify everything they tell her. one thing that really bothers me is how people speak to me like i'm a small child. some people even talk to me like i'm some kind of pet. i sent a request for my records from where i lived before and i'm waiting for them in the mail, hopefully they will have my diagnosis in them.

Sorry for rambling, don't really have anyone to talk to here. Thanks for listening.

 

[Streetwise]

I was the same when id overdosed- the police took me to hospital they no nothing about how drugs affect speech they thought i had a learning disability,i nearly lost everything when my mam had to go into a nursing home ,in the UK if you own a house you have to sell it to pay for the nursing home .so it meant i was on on the streets all i cared about me mam was dying

Hi, thanks for the replies.
I'm currently living with my sister. had to move here from another state, leaving behind everything that was familiar (routines and people i knew). moved from CT to SC, so i'm at least 1,000 miles from my hometown. Lived in the same neighborhood in the same town for 45 years. I form stronger emotional connections to places than to people (nobody seems to understand that). i'm feeling alot of grief about losing it all. what makes it worse is that we have to sell the house i've lived in all my life. it's been a real setback to my self confidence. I am trying to get into a support program in this state but they want to know my diagnosis. i don't yet have any counselors or therapists here. there doesn't seem to be much in the way of support programs near where i live now.

My sister is currently my representative and feels the need to speak for me and oversimplify everything they tell her. one thing that really bothers me is how people speak to me like i'm a small child. some people even talk to me like i'm some kind of pet. i sent a request for my records from where i lived before and i'm waiting for them in the mail, hopefully they will have my diagnosis in them.

Sorry for rambling, don't really have anyone to talk to here. Thanks for listening.[/QUOTE

 

[Dadwith2Autisticsons]

Hi, thanks for the replies.
I'm currently living with my sister. had to move here from another state, leaving behind everything that was familiar (routines and people i knew). moved from CT to SC, so i'm at least 1,000 miles from my hometown. Lived in the same neighborhood in the same town for 45 years. I form stronger emotional connections to places than to people (nobody seems to understand that). i'm feeling alot of grief about losing it all. what makes it worse is that we have to sell the house i've lived in all my life. it's been a real setback to my self confidence. I am trying to get into a support program in this state but they want to know my diagnosis. i don't yet have any counselors or therapists here. there doesn't seem to be much in the way of support programs near where i live now.

My sister is currently my representative and feels the need to speak for me and oversimplify everything they tell her. one thing that really bothers me is how people speak to me like i'm a small child. some people even talk to me like i'm some kind of pet. i sent a request for my records from where i lived before and i'm waiting for them in the mail, hopefully they will have my diagnosis in them.

Sorry for rambling, don't really have anyone to talk to here. Thanks for listening.

I do not have Aspergers, but have two children with Autism, a one verbal higher functioning 7-year old, and a nonverbal mild-moderate 5-year old. I have researched lots thus about such Autism-related conditions, and know from our children's experiences their signs and symptoms, and with detailed knowledge how their conditions affect them, including their limitations, preferences, needs, talents, and abilities.

If you ever feel comfortable sharing more about why you think you have Aspergers Syndrome, please share such, as then others could relate or have some advice. And if you can, feel free to talk a little more about your likes, dislikes, your personality, interests, and the signs and symptoms you are experiencing. You seem like a great guy that wants support and answers, and we would be more than glad to assist.

I relate to your attachment to your former place you lived, besides the medical wrongs you dealt with, as I loved the former state and area I grew up. I did not want to leave, but for the sake of our children that needed a more home-schooling friendly state, we had to. I had lots of anxiety at the moving, and as I was leaving my close brother behind, too. Both aspects really bothered me.

In your situation, it must be really hard as you loved that area and had a need for that sameness, and as you felt you had more support programs where you lived. I cannot promise you will feel things will be very soon better where you are now, but I can only say for me things got better.

The fact your sister seems to want to help could be good, but make sure you are persistent in getting those answers you need through her, as again you deserve that information and to make the right choices.

Change can be scary, especially for short-term for me, but you have a nice forum here that would be glad to try to make things easier.

Feel free to write me privately anytime, too..

 

[Streetwise]

Hi, thanks for the replies.
I'm currently living with my sister. had to move here from another state, leaving behind everything that was familiar (routines and people i knew). moved from CT to SC, so i'm at least 1,000 miles from my hometown. Lived in the same neighborhood in the same town for 45 years. I form stronger emotional connections to places than to people (nobody seems to understand that). i'm feeling alot of grief about losing it all. what makes it worse is that we have to sell the house i've lived in all my life. it's been a real setback to my self confidence. I am trying to get into a support program in this state but they want to know my diagnosis. i don't yet have any counselors or therapists here. there doesn't seem to be much in the way of support programs near where i live now.

My sister is currently my representative and feels the need to speak for me and oversimplify everything they tell her. one thing that really bothers me is how people speak to me like i'm a small child. some people even talk to me like i'm some kind of pet. i sent a request for my records from where i lived before and i'm waiting for them in the mail, hopefully they will have my diagnosis in them.

Sorry for rambling, don't really have anyone to talk to here. Thanks for listening.

I was looking at info on your town and i saw a ruined church i looked like a place i could go to and sit
do you know sheldon church everybodys done something to it

 

[AdultAspie69]

how do i write someone privately? i don't really use forum sites that much.

a little about me...
I grew up in the 70's, so nobody really knew much about aspergers/autism. they just called me shy and introverted, something i'd grow out of. only had a couple of good childhood friends in the neighborhood that would spend time with me. had a rather difficult childhood.
in elementary school, they had me with the regular students. my poor communication/interactive skills often made me feel overwhelmed in class. noisy crowded rooms really bother me. the teachers would let me go to the nurses office to lie down or to the school library in the quiet. sometimes they would let me help the custodian deliver milk to the cafeteria and the kindergarten classes. the teachers and staff were really supportive of my needs. i did have some speech therapy in school, but it caused a lot of frustration and anxiety. i've always had a speech impairment(very quiet voice/slurred speech) when i talk to people, i have to repeat myself several times before they understand me. i have trouble pronouncing certain word sounds (R sounds), my first name happens to have a word sound i have trouble with. high school was the worst, with all the bullying.

not very comfortable with physical contact and eye contact. the feel of other people's skin really creeps me out. there's always been a delay in my responses to people's questions, it takes longer than normal to put together the words in my mind before responding. people sometimes think i'm ignoring them or i don't know the answer, i've been called "rude' on several occasions. often times i forget to say please and thank you (it doesn't occur to me to say these things).

All for now, i'll write again soon about my likes/dislikes etc.

Earl

 

[AdultAspie69]

I was looking at info on your town and i saw a ruined church i looked like a place i could go to and sit
do you know sheldon church everybodys done something to it

are you referring to yemassee? i've only been living here since November 2016. don't really know this area.
i don't drive, so i have to rely on my sister or her husband for transportation to the closest major town Walterboro. it's about 25 miles from my house. i only get into town a couple times a week. i'm living in a wilderness area that used to be a rice plantation. it's a mile and a quarter walk from the house to the mailbox, down a dirt road (i have to watch out for venomous snakes whenever i go outside)

 

[Streetwise]

are you referring to yemassee? i've only been living here since November 2016. don't really know this area.
i don't drive, so i have to rely on my sister or her husband for transportation to the closest major town Walterboro. it's about 25 miles from my house. i only get into town a couple times a week. i'm living in a wilderness area that used to be a rice plantation. it's a mile and a quarter walk from the house to the mailbox, down a dirt road (i have to watch out for venomous snakes whenever i go outside)

Yes it said its near it

 

[Streetwise]

IVE never been to the usa you're a lot closer!

Yes it said its near it

 

[Streetwise]

My towns 1 mile away i go every couple of months i haven't left my town for 16 years

IVE never been to the usa you're a lot closer!

 

[Dadwith2Autisticsons]

how do i write someone privately? i don't really use forum sites that much.

a little about me...
I grew up in the 70's, so nobody really knew much about aspergers/autism. they just called me shy and introverted, something i'd grow out of. only had a couple of good childhood friends in the neighborhood that would spend time with me. had a rather difficult childhood.
in elementary school, they had me with the regular students. my poor communication/interactive skills often made me feel overwhelmed in class. noisy crowded rooms really bother me. the teachers would let me go to the nurses office to lie down or to the school library in the quiet. sometimes they would let me help the custodian deliver milk to the cafeteria and the kindergarten classes. the teachers and staff were really supportive of my needs. i did have some speech therapy in school, but it caused a lot of frustration and anxiety. i've always had a speech impairment(very quiet voice/slurred speech) when i talk to people, i have to repeat myself several times before they understand me. i have trouble pronouncing certain word sounds (R sounds), my first name happens to have a word sound i have trouble with. high school was the worst, with all the bullying.

not very comfortable with physical contact and eye contact. the feel of other people's skin really creeps me out. there's always been a delay in my responses to people's questions, it takes longer than normal to put together the words in my mind before responding. people sometimes think i'm ignoring them or i don't know the answer, i've been called "rude' on several occasions. often times i forget to say please and thank you (it doesn't occur to me to say these things).

All for now, i'll write again soon about my likes/dislikes etc.

Earl

Hi Earl. Thanks for the additional information. So far, it sounds to me you are showing signs of Autism or Aspergers Syndrome, as your two posts combined reveals some sensory issues, routine needs, poor eye contact, lack of social skills, few friends, and possibly hard time reading non-verbal cues.

You also said you had difficulty remembering, and suggested disorganized thoughts in processing information timely. Many with Autism can have attention difficulties, if not additional dual ADD type diagnosis.. Your speech enunciation issues could either be Autism or Aspergers related, or a separate speech impairment, or just from lack of voice conditioning from speaking so quietly or softly, or not too often.

I used to have a very quiet vocal tone growing up, and so my voice was not the clearest from lack of use over extended duration. People always asked me to repeat things. I resorted to tongue twisters to help that a bit, but I am unsure if your speech impediment is from lack of voice conditioning and proper use too.

There is a way to talk on this forum through private conversation, by clicking on ones profile and finding that conversation link, and there is a chat room too to click on in this forum. In my case, I am fine with emails too. My email address is [email protected].