Hello friends, I'm new to this forum and to the idea of being autistic.
I'm 22, married, and chronically ill with Fibromyalgia. I was heavily emotionally and mentally abused as a kid into my teen years which is why I am only just now realizing some things about myself.
I discovered autism while looking up some things about my overly hyper senses, which at the time I just thought I was being a HSP, and my dyslexia.
I saw a test for autism and took it just because. I scored high. It surprised me. My little nephew is highly autistic, non-verbal, and has many tics and can barely eat. And that's what I thought autism was. But I wasn't like that. I am sole caretaker for my husband who is missing his arms and legs, I'm a fully functioning adult, who drives, shops, and lives relatively normally.
But that test made me stop and think about why I was living normally. My older sister and mom bullied me into hiding my (I think) autistic traits.
Here's the problem though, I think I hide it too well? I've told the three people in my life I'm closest to and they blew me off, not saying anything rude, but essentially treating it like it's something I'd forget about in a week.
So here's where I need help, because I've taken every test I could find that seemed to be legitimate and score very high on every test, but I still can't convince myself I'm autistic because no one beleives me.
Here are some things I think might be autism in my life:
1- I am an incredibly sensory oriented person to the point where I have passed out from lights and noises being too intense for me when no one else even noticed that much, and I'm a ridiculously picky eater. We have a dog and most days I can't stand it if he touches me.
2- I struggled a whole lot in school even though I loved reading and learning and I made good grades, school made me break down very frequently. (I was home schooled)
3- I had what my sis and mom called "baby talk" whenever I got excited my whole childhood into my teens and they bullied me into stopping even though it was very hard and now I don't let myself get excited because I might behave "childishly". (I am working on healing from this )
4- I kept tons of notebooks full of facts about the American Civil War and US politics in my teens because I was obsessed with them.
5- I used to devour every encyclopedia and "fun facts" books from the age of 7 until I had to quit reading due to my health, but reading those kinds of things on the web is still frequent.
6- I cannot talk about how I feel EVER. I mean, not even a "I'm not OK". It takes so long for me to talk about it verbally but if you told me to write it down, I could write a books worth.
7- My dyslexia is really bad, oddly enough reading isn't an issue as much if I can read fast, but if I take it slow or the font is weird I struggle. Typing is hard, numbers are always flipped and messed up in my head, and I cannot for the life of me understand directions like left and right.
8- I get lost often to places I drive to all the time.
9- I am constantly fidgeting and as a kid/teen when I would stress out I would chew on everything, my favorite being paper. I skin pick a whole lot. Pretty often I'll bang my head on walls and hit myself.
10- I cannot live without a routine or schedule. I get so incredibly anxious and near meltdown if plans change unexpectedly and I didn't prepare.
11- I have to be on time. Like, to the minute. Or else I'll be incredibly stressed.
12- I see patterns and themes everywhere and for years I thought everyone did. I notice license plates and car headlights a whole lot, and could tell you if I've seen those exact headlights before and will remember a license plate or bumber sticker for days after seeing it. (I don't know why cars are a thing for me haha). I'll remember patterns on fabrics really well too.
13- if I don't get into my car the same way I always do I'll get frustrated, or if I do things out of order to how I normally do I'll get upset.
14- I didn't have crushes growing up and didn't understand attraction. I think the only reason I am married is because he was a soulmate and understood me like no one else.
15- my voice is unnaturally loud and as a kid it was even more so.
16- I had to practice to understand how to be social. I'd sit in the mirror and practice my reaction faces, I had to do a lot of trial and error to get how to interact with others to not make them feel "bored" or like I talked too much about myself.
17- I can't see faces in my memories or dreams, and if I haven't seen someone in five minutes there face is just blurry, but I recognize people really well anyway.
18- I can't maintain eye contact at all. I worked on it for years and finally I am able to make simple, quick contact, but the only person I can maintain for longer is my husband.
19- music helps me figure out what I am feeling like all of the time.
20- if I don't get up immediately to do what I need to do I cannot focus on anything else, even if it's just like grabbing a coke from the kitchen.
21- My favorite past time is to sit and think about how things work. Like a fan, a light bulb, a garbage truck, the aerodynamics of birds or cars, how buckets are made or basically anything within eyesight. Even though I took no form of science in school, figuring out how things work is like my comfort thoughts.
22- I can't watch any kinds of violent, intense, or scary movies/TV shows. Marvel and Lord of the Rings is as intense as it can get for me. I watch a ton of kids shows and movies, listen to movie soundtracks from kids movies, and will obsess over the characters.
23- I love soft stuffed animals, those squishy noodle things, cloud slime, basically any nice textures. They actually calm me down. I have this Keychain that has this really nice texture and it is like my favorite thing right now.
24- I react very physically to strong emotions, clapping/squealing/dancing for excitement, hitting myself/the wall for frustration, hurting myself (twisting/biting) when I am sad. But never in front of other people, only when I'm alone.
25- I have loved nature my whole life, for the textures and colors, the way the wind on my face felt, the water flowing between my toes, rubbing a soft leaf between my fingers, all those kinds of things.
26- I hated rule breaking as a kid to a ridiculous extent.
27- I can't stand like most clothes or shoes and unless it's comfy, I DO NOT wear it.
28- I am constantly aware of my face and body when around other people, how it looks and what I am "saying" with my body language.
29- even though I am really empathetic and will absorb your emotion in an instant, I can't tell what you're feeling based off of body language or voice tone. I've gotten better over the years but I sucked at it a whole lot as a teen and I'm still learning how to appropriately speak to others when I am tired.
So there you go. Please, if you have any insight or thoughts, for or against if I'm autistic, please share!!
I'm really tired of being in the inbetween.
Thanks!!
Korki
P. S. I can share my Raads score or Cat-q if needed
I'm 22, married, and chronically ill with Fibromyalgia. I was heavily emotionally and mentally abused as a kid into my teen years which is why I am only just now realizing some things about myself.
I discovered autism while looking up some things about my overly hyper senses, which at the time I just thought I was being a HSP, and my dyslexia.
I saw a test for autism and took it just because. I scored high. It surprised me. My little nephew is highly autistic, non-verbal, and has many tics and can barely eat. And that's what I thought autism was. But I wasn't like that. I am sole caretaker for my husband who is missing his arms and legs, I'm a fully functioning adult, who drives, shops, and lives relatively normally.
But that test made me stop and think about why I was living normally. My older sister and mom bullied me into hiding my (I think) autistic traits.
Here's the problem though, I think I hide it too well? I've told the three people in my life I'm closest to and they blew me off, not saying anything rude, but essentially treating it like it's something I'd forget about in a week.
So here's where I need help, because I've taken every test I could find that seemed to be legitimate and score very high on every test, but I still can't convince myself I'm autistic because no one beleives me.
Here are some things I think might be autism in my life:
1- I am an incredibly sensory oriented person to the point where I have passed out from lights and noises being too intense for me when no one else even noticed that much, and I'm a ridiculously picky eater. We have a dog and most days I can't stand it if he touches me.
2- I struggled a whole lot in school even though I loved reading and learning and I made good grades, school made me break down very frequently. (I was home schooled)
3- I had what my sis and mom called "baby talk" whenever I got excited my whole childhood into my teens and they bullied me into stopping even though it was very hard and now I don't let myself get excited because I might behave "childishly". (I am working on healing from this )
4- I kept tons of notebooks full of facts about the American Civil War and US politics in my teens because I was obsessed with them.
5- I used to devour every encyclopedia and "fun facts" books from the age of 7 until I had to quit reading due to my health, but reading those kinds of things on the web is still frequent.
6- I cannot talk about how I feel EVER. I mean, not even a "I'm not OK". It takes so long for me to talk about it verbally but if you told me to write it down, I could write a books worth.
7- My dyslexia is really bad, oddly enough reading isn't an issue as much if I can read fast, but if I take it slow or the font is weird I struggle. Typing is hard, numbers are always flipped and messed up in my head, and I cannot for the life of me understand directions like left and right.
8- I get lost often to places I drive to all the time.
9- I am constantly fidgeting and as a kid/teen when I would stress out I would chew on everything, my favorite being paper. I skin pick a whole lot. Pretty often I'll bang my head on walls and hit myself.
10- I cannot live without a routine or schedule. I get so incredibly anxious and near meltdown if plans change unexpectedly and I didn't prepare.
11- I have to be on time. Like, to the minute. Or else I'll be incredibly stressed.
12- I see patterns and themes everywhere and for years I thought everyone did. I notice license plates and car headlights a whole lot, and could tell you if I've seen those exact headlights before and will remember a license plate or bumber sticker for days after seeing it. (I don't know why cars are a thing for me haha). I'll remember patterns on fabrics really well too.
13- if I don't get into my car the same way I always do I'll get frustrated, or if I do things out of order to how I normally do I'll get upset.
14- I didn't have crushes growing up and didn't understand attraction. I think the only reason I am married is because he was a soulmate and understood me like no one else.
15- my voice is unnaturally loud and as a kid it was even more so.
16- I had to practice to understand how to be social. I'd sit in the mirror and practice my reaction faces, I had to do a lot of trial and error to get how to interact with others to not make them feel "bored" or like I talked too much about myself.
17- I can't see faces in my memories or dreams, and if I haven't seen someone in five minutes there face is just blurry, but I recognize people really well anyway.
18- I can't maintain eye contact at all. I worked on it for years and finally I am able to make simple, quick contact, but the only person I can maintain for longer is my husband.
19- music helps me figure out what I am feeling like all of the time.
20- if I don't get up immediately to do what I need to do I cannot focus on anything else, even if it's just like grabbing a coke from the kitchen.
21- My favorite past time is to sit and think about how things work. Like a fan, a light bulb, a garbage truck, the aerodynamics of birds or cars, how buckets are made or basically anything within eyesight. Even though I took no form of science in school, figuring out how things work is like my comfort thoughts.
22- I can't watch any kinds of violent, intense, or scary movies/TV shows. Marvel and Lord of the Rings is as intense as it can get for me. I watch a ton of kids shows and movies, listen to movie soundtracks from kids movies, and will obsess over the characters.
23- I love soft stuffed animals, those squishy noodle things, cloud slime, basically any nice textures. They actually calm me down. I have this Keychain that has this really nice texture and it is like my favorite thing right now.
24- I react very physically to strong emotions, clapping/squealing/dancing for excitement, hitting myself/the wall for frustration, hurting myself (twisting/biting) when I am sad. But never in front of other people, only when I'm alone.
25- I have loved nature my whole life, for the textures and colors, the way the wind on my face felt, the water flowing between my toes, rubbing a soft leaf between my fingers, all those kinds of things.
26- I hated rule breaking as a kid to a ridiculous extent.
27- I can't stand like most clothes or shoes and unless it's comfy, I DO NOT wear it.
28- I am constantly aware of my face and body when around other people, how it looks and what I am "saying" with my body language.
29- even though I am really empathetic and will absorb your emotion in an instant, I can't tell what you're feeling based off of body language or voice tone. I've gotten better over the years but I sucked at it a whole lot as a teen and I'm still learning how to appropriately speak to others when I am tired.
So there you go. Please, if you have any insight or thoughts, for or against if I'm autistic, please share!!
I'm really tired of being in the inbetween.
Thanks!!
Korki
P. S. I can share my Raads score or Cat-q if needed