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Help needed for research

Clivemaher

New Member
Hey my girlfriend is currently doing a thesis for her doctorate in child physiology and is finding it hard to source material for her research in to communication deficits and the understanding of it particularly in Ireland but any material from any other countries would be truly beneficial especially from people with experience, please help thanks a million.
 
Hi Clivemaher

welcome to af.png


I'm fairly certain you will find many answers to your questions in our archives.
 
I like books and research by Temple Grandin because she is Autistic herself and she has met with the medical field to discuss behaviors and brain scans. I like that she mentions she was fully autistic as a child and her mother put her through “ normal “ experiences and did not let her get away with things just because of her diagnosis. She says people can expect less of a person because of their deficits and not help them excel in strengths they have. She was lucky that she was supported in strengths and she feels that is why she excelled in a career later. Autistics in early years sometimes can understand perfectly but can not express with words until age three or later. She gives an inside view from an Autistic mind and may can refer you to other cases or people. She has a website of her own name, templegrandin.com. So if they can understand but just not speak, valuable brain synapsis may not be formed if positive behaviors are not reinforced and variousnother things. She also goes into how to calm a person with sensory overload. A person shuts down in overload. So a child can communicate better and be calm and stop having meltdowns when their sensory overload is dealt with. As a teenager she built her own squeeze machine to apply gentle pressure to her body to calm herself. I don’t think it is all the way helpful to only study children. There are books on Amazon that cover the struggles of Autism in all aspects of life even in aging as autism can be misunderstood as alzheimer’s and as a person ages these things can get worse with deterioration of health or is they have health issues at any stage. It is not static/stationary throughout a person’s life. If it is for thesis only on children that is fine, but there needs to be mention even if a small mention of the developement of the whole person over the lifespan or you do a disservice to Autistic people. In addition the brain is still developing, then with added other diseases or aging, possible decline. If the thesis is from a purely physicality of the brain and what to look for in a child, touch on progress in brain scans and such in later years and decline in elder years. Touch on how environment and child rearing and schooling affects organic changes in brain and physical development. Temple Grandin was a nonverbal hand flapping child, why is she a sought after engineer and public speaker today? What you write affects others.
 
Temple Grandin because she is Autistic herself

Yep, but one autistic among many, for what it's worth.

I like that she mentions she was fully autistic as a child and her mother put her through “ normal “ experiences and did not let her get away with things just because of her diagnosis.

Her family also had an insane amount of money. That also had a lot to do with it.

I don’t think it is all the way helpful to only study children.

Exactly this.

If the thesis is on child psychology, then it makes sense. Otherwise, a study of autism is not necessarily a study on children.

There need to be way more studies on adults than there currently are, but that may be neither here nor there.

There are books on Amazon that cover the struggles of Autism in all aspects of life even in aging as autism can be misunderstood as alzheimer’s and as a person ages these things can get worse with deterioration of health or is they have health issues at any stage.

Yep. We learn coping behaviors throughout life that really take a lot out of us, so over time it causes more and more stress to keep these up. Also, our brains change as we adapt, until we can do things we're technically not supposed to be able to do. Unfortunately, we lose this ability as we age, and it's somewhat like post polio syndrome.

Temple Grandin was a nonverbal hand flapping child, why is she a sought after engineer and public speaker today?

Same here.

There are a lot of us like that out there.
 
I’m Irish and find it far too difficult to speak to people, so don't (outside my partner and doctors) does that qualify me to assist? I would be willing to correspond through text. Though, of course, I am no longer a child..
 
Probably better if she she comes here herself if she has any questions to ask which haven’t already been addressed. Try the search field, it saves people endlessly being asked and answering the same questions.
 
Yep, but one autistic among many, for what it's worth.



Her family also had an insane amount of money. That also had a lot to do with it.



Exactly this.

If the thesis is on child psychology, then it makes sense. Otherwise, a study of autism is not necessarily a study on children.

There need to be way more studies on adults than there currently are, but that may be neither here nor there.



Yep. We learn coping behaviors throughout life that really take a lot out of us, so over time it causes more and more stress to keep these up. Also, our brains change as we adapt, until we can do things we're technically not supposed to be able to do. Unfortunately, we lose this ability as we age, and it's somewhat like post polio syndrome.



Same here.

There are a lot of us like that out there.
Hey Learned Coward! Are you just saying it is like Post Polio Syndrome just to make a severe analogy? Or in old age do you actually get Post Polio Syndrome actual symptoms. I have a serious reason for asking.

Also, I appreciate your remark that at least some or maybe a lot of Temple Grandins success and higher functionality later in childhood came from access to better care through extreme wealth. I am sometimes concerned with that aspect because there is great stress from political leaders to force the poor to work, even if disabled. But we do not get the supports to make that possible when those things are necessary for some.

There is. an autobiography of a man who was a quadaplegic who works.
He is from a wealthy family. Someone married him and she helps run himself insurance business. When he had to attend company schools or seminars they brought him in my medical air flight and an ambulance. The. he went on to brag about he was blessed to have never been in the government system. It almost made me want to send him a not so sweet letter. But I figured people like that are pointless to waste time on, that it was probably political on purpose for his cause.

Only reason I mentioned Temple is she touches on physiological differences she researched with medical staff, not psychology. The poster posted physiology. Maybe they will respond back to us for clarification. Cheers!
 
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This is a field?

Also, autism definitively causes physiological differences?

Perhaps you mean child psychology.
I studied Anatomy and Physiology. Anatomy is the parts of the body, bones, muscles, nerves, teeth. Physiology is how all these parts of the body function normally together.
 
Hey Learned Coward! Are you just saying it is like Post Polio Syndrome just to make a severe analogy? Or in old age do you actually get Post Polio Syndrome actual symptoms. I have a serious reason for asking.

Actual post polio symptoms, more or less. I haven't known that many aging Aspies, considering, but I know several who seem to be in states of severe decline. The extent of this decline is explainable by other factors, so I'm not sure how much is related to being on the spectrum and how much is genetics, unhealthy lifestyle, other issues, etc.

I'm trying to read up on this but am not coming to any clear conclusions. Adult autistics, especially senior citizens, have not really been studied, and it's hard to find a decent sample size for senior citizen autistics because they tend to either be undiagnosed or closeted.

I studied Anatomy and Physiology. Anatomy is the parts of the body, bones, muscles, nerves, teeth. Physiology is how all these parts of the body function normally together.

Is child physiology a thing?

Also, what are some physiological differences that are directly related to autism? Are you including stuff like dysgraphia and dyspraxia, hypotonia, Ehlers-Danlos/Marfan traits, etc? These are mostly comorbid. Or are you saying sensory issues, perception differences, cognitive differences are physiological? I would consider these differences to be neurological but not necessarily physiological, but I'm no expert.
 
I’m no expert on Anatomy and Physiology. It was just a nursing class I took but I would think neurological symptoms are definitely included. Sensory, perception, would be included in a way that relates to the physical body. Like is dysgraphia caused by a specific neuron maybe? I’m just speculating here. Because everything in the body must function together in synergy. Just a guess. Think about amputees still feeling their limb that no longer exists.

But Im very interested in anything Post Polio syndrome. So private email me with what you find and maybe we will need a thread on that. I took polio vaccine by sugar cube when it was invented in the 60’s. Some of those were live viruses and some were not. There was one particular bad batch that gave mild polio and it was stated it was contained to a particular school where it was administered, I think. Some were by injection, some by inoculation. Was too long ago when I read the article to remember.

I have tons of neurological and pain syndromes. But I usually attribute it to borderline diabetes, obesity, thyroid disease, and transformations that happened at menopause. Because all my symptoms happened at menopause. I was working under severe stress, menopause happened at same time I was stressed at work. All my hormones and my thyroid completely crashed. Thyroid TSH was supposed to be around 3 to 5 and mine went to 57. It happened quickly and almost killed me. I went from skinny to obese and chronically ill in a year. I wasn’t diagnosed Aspie and still not but I feel I have some traits and have full autistic relatives in the latest generation after me. Family members have aspie traits in my opinion. I am trying to sort out disease versus personality traits versus possible aspie traits. I wonder if Post Polio is thrown in the mix as well and I wondered that before you posted. It also shows up later in life. I was born before the vaccine came out and took the early invented ones. Everyone was terrified of Polio and were dying daily. It was mass panick. Everyone was desperate for a vaccine. I have neurological symptoms almost daily but I don’t have severe fixed rigidity and the usual post polio type symptoms. Mine are more like internal shocks, parasthesia, peripheral vision loss, extreme airway and lung sensitivity, severe chronic fatigue and fibromyalgia, weak muscles, extreme skin sensitivity. hearing either more like deafness or loss and other days severe hearing acuity, muscle spasms, lots of autoimmune issues.

The doctors said that because of childhood abuse that I could function as long as i was not under too much stress but that at midlife people like me usually crash and become disabled and not able to continue working. There have been some mention of aspies wearing out over time as well because they work so terribly hard at functioning and so did I and still do. Keep me posted on these aspects please. I am uber interested.

Here is a link on polio. It states live polio virus was discontinued in 1988 because a few people contracted polio from it. I took live vaccine twice. It also states you can develop polio without symptoms or it can manifest as a flu like sickness.

http://www.immunize.org/catg.d/p4215.pdf

So many mysteries.
 
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Neurology issues can have physical causes either chemically in the body of physically. Such as blood sugar and Lupus damages nerves and affects the brain. Damaged nerves can be from spine damage or a blown disc or damaged nerves can cause a disc to blow. Either or, can go both ways.
 

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