Dissociation in ASD
Well-Known Member
Hi everyone! Two years ago, I posted here to recruit participants for a research study on dissociation in autism spectrum disorders. I got a lot of interest and responses! I'm still analyzing some of the data, including the free response descriptions of how autistic adults experience dissociation. It turns out that we were right to think that dissociation is common in autism; the vast majority reported experiencing clinically elevated levels of psychoform dissociation (e.g., feeling unreal, feeling distanced from yourself, having trouble remembering stressful experiences, not knowing who you are, or feeling fragmented), and almost one-third reported elevated levels of somatoform dissociation (e.g., experiencing headaches, difficulty moving, or other physical symptoms as a response to emotional stress).
Another major thing that immediately stood out from the data collected was how many participants had experienced interpersonal trauma (IPT; physical assault, sexual assault, or other unwanted or uncomfortable sexual experiences). After analyzing data from the 687 participants who filled out the trauma or posttraumatic stress questionnaires in the survey, my co-authors and I found that 72% of participants reported at least one of these experiences. IPT not only drastically increased the risk of experiencing both psychoform dissociation and somatoform dissociation, it also almost doubled the risk of meeting criteria for posttraumatic stress disorder (PTSD; 50% vs 28%). Cisgender women and gender minorities were more likely to experience sexual IPT and meet the criteria for PTSD compared to cisgender men. There were no significant differences between autistic people with versus without a formal autism spectrum disorder diagnosis.
If these findings are of interest to you, please check out our article published in Autism in Adulthood! It's currently free to access and will be at least through the end of April.
Thank you again to everyone who trusted us with your responses! Please reach out to me if you have any questions!
Another major thing that immediately stood out from the data collected was how many participants had experienced interpersonal trauma (IPT; physical assault, sexual assault, or other unwanted or uncomfortable sexual experiences). After analyzing data from the 687 participants who filled out the trauma or posttraumatic stress questionnaires in the survey, my co-authors and I found that 72% of participants reported at least one of these experiences. IPT not only drastically increased the risk of experiencing both psychoform dissociation and somatoform dissociation, it also almost doubled the risk of meeting criteria for posttraumatic stress disorder (PTSD; 50% vs 28%). Cisgender women and gender minorities were more likely to experience sexual IPT and meet the criteria for PTSD compared to cisgender men. There were no significant differences between autistic people with versus without a formal autism spectrum disorder diagnosis.
If these findings are of interest to you, please check out our article published in Autism in Adulthood! It's currently free to access and will be at least through the end of April.
Thank you again to everyone who trusted us with your responses! Please reach out to me if you have any questions!