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It's been a rough year.

Pats

Well-Known Member
V.I.P Member
I hope everyone is well. It's been probably a year since I've been on here. My health has been an issue and I'm so sick of doctors. It started when I was telling my regular doctor that it was my heart that's going to take me out and probably just going to explode one day. She sent me to a cardiologist who sent me for this test and that test - but did cancel the stress test because he said my heart wouldn't take it. My breathing had gotten bad, was having to sleep leaning against the back of the couch. I texted my daughter in law at work and asked her if maybe when she got off work to come home and take me to the e.r. My mind was thinking I'd go and come home with hospice for comfort measures. She came right home, said I was gray. Well, they kept me and took off about 12 pounds of fluid. Fluid backed up into my lungs. Anyhow, I had to wear this stupid defibrillator for 3 months - then I just sent it back and said I was done with it. Then a few months ago had to get this bi-ventricular pacer with defibrillator implanted.

The worst part to all this is my sisters. They say if you're feeling better then you feel like meeting us here and there. I try to explain that, yes, I feel better than I did when I was dying. Weekly I'm getting calls and texts trying to get me to go places and it's stressful. A cruise - no interest, I would hate it. Florida - not driving and can't fly. My one sister laughs and says well, it'd be like holding your breathe for an hour and I tell her to hold her own breathe for an hour. So now they're looking at closer places. I don't want to. I've tried to get them to come here but they always come up with excuses. I was supposed to go to my daughter's 2 hours away and relieved that it wasn't going to work out (some of them had covid last week). I was really glad I didn't have to go anywhere, and then my sister texts wanting me to meet her this weekend 2 hours in the opposite direction. Arghhh! I need to get them mad at me again so they will stop trying to get me to go places. lol

Anyhow, I think I'm back. Maybe not every day like I used to be. :) Missed a lot of ya'll.
 
Hey you! I wonder where Ms Pats went.

Geezers, that sounded very complicated what you went thru. Glad you went to ER. It's sad we do less and less with age and health issues. If l feel stress these days, l will not leave the house until l feel better.

Maybe your family is in denial about your health issues. Next they will sign you up for 10K run. Families are so good at ignoring our wishes. Lol
 
Hey you! I wonder where Ms Pats went.

Geezers, that sounded very complicated what you went thru. Glad you went to ER. It's sad we do less and less with age and health issues. If l feel stress these days, l will not leave the house until l feel better.

Maybe your family is in denial about your health issues. Next they will sign you up for 10K run. Families are so good at ignoring our wishes. Lol
I don't like to leave my house either. I did better when they were mad at me and stopped inviting me anywhere. :)
 
I hope everyone is well. It's been probably a year since I've been on here. My health has been an issue and I'm so sick of doctors. It started when I was telling my regular doctor that it was my heart that's going to take me out and probably just going to explode one day. She sent me to a cardiologist who sent me for this test and that test - but did cancel the stress test because he said my heart wouldn't take it. My breathing had gotten bad, was having to sleep leaning against the back of the couch. I texted my daughter in law at work and asked her if maybe when she got off work to come home and take me to the e.r. My mind was thinking I'd go and come home with hospice for comfort measures. She came right home, said I was gray. Well, they kept me and took off about 12 pounds of fluid. Fluid backed up into my lungs. Anyhow, I had to wear this stupid defibrillator for 3 months - then I just sent it back and said I was done with it. Then a few months ago had to get this bi-ventricular pacer with defibrillator implanted.

The worst part to all this is my sisters. They say if you're feeling better then you feel like meeting us here and there. I try to explain that, yes, I feel better than I did when I was dying. Weekly I'm getting calls and texts trying to get me to go places and it's stressful. A cruise - no interest, I would hate it. Florida - not driving and can't fly. My one sister laughs and says well, it'd be like holding your breathe for an hour and I tell her to hold her own breathe for an hour. So now they're looking at closer places. I don't want to. I've tried to get them to come here but they always come up with excuses. I was supposed to go to my daughter's 2 hours away and relieved that it wasn't going to work out (some of them had covid last week). I was really glad I didn't have to go anywhere, and then my sister texts wanting me to meet her this weekend 2 hours in the opposite direction. Arghhh! I need to get them mad at me again so they will stop trying to get me to go places. lol

Anyhow, I think I'm back. Maybe not every day like I used to be. :) Missed a lot of ya'll.
Welcome back Pats.
 
Hi Pats, we haven't met. I am sorry your year was so tough. But it does sound like you are feel better and that is a very good thing indeed!
I think you should get yourself a wheel chair and oxygen mask. Each time your sisters pressure you send them back a pic of you in the chair with your oxygen mask on. "I would love to join you. Perhaps we can climb Matchupichu together this summer! Do you think you will be able to get my chair over the rough spots?"

In other words, they are treating your health issues in a rediculous fashion so get rediculous in your fesponses. Have fun with it and just keep telling them no but you would love to have them visit.

Here is hoping you continue to get better every day!
 
Pats dear you need to let youre sisters etc... know that you DONT want to leave youre house at this stage due to you had a rough year and need to stay home and relax due to it it's that simple. If they want to meet you and youre up to it its THEM that needs to come to YOU my friend and it's up to them to accept this. (+ with this we all know what traveling and meet others is NOT advisable either, with or without shots)

And of course i meant to say

THANK GOD you got help in the nick of time as it seems Pat

Do get better my friend (HUG) My dad was actually close to leave as well from a MASSIVE stroke (and apparently had a smaller one before that and didn't felt or noticed it) last year & is still in rehab and in wheelchair & now also have a pacemaker & hopefully he will get up from that wheelchair as soon as possible. & Full recovery is expected thank God.
 
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Welcome. I joined while you were away, and it is good that you are receiving appropriate care. I hope the long term outcome will be good.

Sometimes it is hard to be an advocate for your medical care as providers sometimes do not provide complete information. I am facing surgery and my specialist wanted to do a procedure that results in dysfunction 75% of the time. I did a lot of searching in MedLine and found a robotic procedure that is less damaging and results in virtually no long term dysfunction. Then found a provider in my state that performs it.
 
Welcome. I joined while you were away, and it is good that you are receiving appropriate care. I hope the long term outcome will be good.

Sometimes it is hard to be an advocate for your medical care as providers sometimes do not provide complete information. I am facing surgery and my specialist wanted to do a procedure that results in dysfunction 75% of the time. I did a lot of searching in MedLine and found a robotic procedure that is less damaging and results in virtually no long term dysfunction. Then found a provider in my state that performs it.

Good luck with this. Sounds like your research paid off. Sometimes what is initially suggested by the medical community needs to be under a microscope and pharma and insurance companies may pressure us to something not in our best outcome.
 
Welcome back! You were always a bright presence here and I am glad you are back :-)
 

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