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Late diagnosis - 36, UK

superawesomeme

Well-Known Member
Hi, I'm Shaun, 36 from the UK.

Just thought I'd join this group to read up (and hopefully contribute where I can) on the condition I was recently diagnosed with.

I apparently have very high functioning Aspergers Syndrome (it's still called that in the UK although I did notice it was referred to as ASD in some of the paperwork I was given).

It's been a challenging 36 years and although a diagnosis will make it easier to explain my condition and access support, I know it's not a silver bullet.

Over the years I've had a number of doctors give me a number of different diagnoses including BiPolar Affective Disorder and Borderline Personality Disorder. Apparently when you're "high functioning" it can be difficult to diagnose autistic spectrum disorders (of course they may have just said this to appease me).

My main challenges are:

- social interaction: I find it difficult to "chat" to people unless it's about a subject I'm interested in. I avoid most social situations like parties.

- basic empathy and understanding emotion: I can pick up if someone is obviously sad, happy, etc, but I don't really know what to do in that situation and I struggle to appreciate how they feel.

- black and white thinking: I'm very much a right or wrong, good or bad, left or right kind of guy. I prefer to think of it as binary thinking than black or white. I struggle to compromise or change plans in the middle.

- narrow (often peculiar) interests: I'm a massive IT nerd, I've built my own computers, game consoles, TV systems, etc. I know all about different operating systems, Linux distributions, etc. I watch foreign tv, listen to podcasts and can spend hours just installing and configuring things.

- obsessive thoughts and behaviours: mainly in relationships, I'm very much a deep-end first guy. When I fall, I fall hard and fast, usually scaring the other person off then obsessing over when they won't speak to me. This trait also carries into my interests and hobbies where I will "binge" on a particular interest or topic to the point of near-perfection then drop it because I'm bored. Like making large novelty cakes, designing websites, studying, etc

Well I say "my challenges" but really they're usually more challenging for the people around me.

I prefer to see my "funny little ways" as things that make me and my life more creative and interesting.

Anyway that's me... So Hi!
 
Welcome Shaun. I am also in the UK, 34 (female), and in my case I am awaiting diagnosis. I was told I would be sent my second assessment appointment by early July but have not yet. I relate a lot to what you have said, especially the obsessiveness in relationships and interests.
 
Welcome Shaun. I am also in the UK, 34 (female), and in my case I am awaiting diagnosis. I was told I would be sent my second assessment appointment by early July but have not yet. I relate a lot to what you have said, especially the obsessiveness in relationships and interests.
It took a while to get my appointment through. Nearly 6 months in all. I think they have a long waiting list. The assessment took 2 hours and it's mostly just answer questions and talking about yourself... which I'm fairly good at :)

I got the diagnosis before I left though and was given some helpful resources to read.

Hope your assessment comes through soon and goes well.
 
Welcome! I'm twenty years older, in the US, and just got diagnosed. In my case I'm so good at social no one suspected until the effort started to burn out the fuses in my brain :)
 
Welcome! I'm twenty years older, in the US, and just got diagnosed. In my case I'm so good at social no one suspected until the effort started to burn out the fuses in my brain :)
Pretty much the same here. I think I maybe caused a lot of the misdiagnosis by trying too hard to appear NT.
 
It took a while to get my appointment through. Nearly 6 months in all. I think they have a long waiting list. The assessment took 2 hours and it's mostly just answer questions and talking about yourself... which I'm fairly good at :)

I got the diagnosis before I left though and was given some helpful resources to read.

Hope your assessment comes through soon and goes well.
In this area they usually have three assessments one being the ADOS(?) but not always, if they are convinced one way or the other after the second assessment then the third appointment is merely a follow up. If they don't contact me in the next week or so I may call them, as they said the current wait in this area for the second assessment is no more than eight weeks so just need to make sure no letters went AWOL. :)
 
Hi Shaun, welcome to AC. You sound a lot like me in many ways. I was also a late bloomer, diagnosed at 54.
I also got the Borderline diagnosis but I feel a lot happier now that I know who/what I am.

Enjoy the forums :D
 
If they don't contact me in the next week or so I may call them, as they said the current wait in this area for the second assessment is no more than eight weeks so just need to make sure no letters went AWOL. :)

Wow Astroganga , eight weeks ? I had to wait 2 years ! :eek: Although they do prioritise those who are severely affected.

I wish you good luck and a favourable outcome. :cool:
 
Wow Astroganga , eight weeks ? I had to wait 2 years ! :eek: Although they do prioritise those who are severely affected.

I wish you good luck and a favourable outcome. :cool:
Thank you :) this NHS trust have made a specific adult autism service and prioritised funds and resources for it, so I am lucky to live here. It took 4 weeks from GP appointment to first assessment appointment.
 
That's a really nice crimson colour. :relaxed:

I was diagnosed back in highschool, so never had to go through all the crazy waiting times they have now. But I know one of the ladies I work with is going through the process at 42 and has waited about 18 months so far. I'm not sure if I would want to go through all of that just to get an official label. I didn't get any extra help after being diagnosed as a teen. I was already in and out of doctors and psychiatrists and had more practical help from teachers and people around me. Although I guess it does help to have a term for what's wrong so you can seek out specific advice online or other people in a similar boat.
 

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