Misdiagnosis or...

[Moises]

Hi,

I am a fourteen-year-old teenager who was diagnosed with Aspergers at the age of only five. Being an introvert, I can be quite paranoid with social gatherings and anything that puts me in the "fight or flight" response. Thus, I judge my own actions upon how others perceive me. Sometimes leading me to into depressive states. Otherwise, I'm all fine with the exception of my grades. I always get distracted by the computer, in that I do online school work, and can never "start" an assignment so to speak. If I feel like I can't do an assignment, or don't have the "feeling" to do so, I leave it behind. This leads for the assignment to never be started. I know I am capable, but my habit alters that mindset. All in all, I don't have any self-discipline for work. Anyways, here is a little more about myself.

• I have an obsession with technology and phones, being glued to the screen for hours on end. Almost like a compulsion.
• I am mentally disorganized but seemingly organized. In other words, I am a perfectionist. One small wrinkle on the bed and I am done for. Clothes are always organized by color, and drawers are sectioned for each item. Not to forget about obsessively cleaning my personal items.
• Sadly, I'm obese with an undiagnosed eating disorder. No matter what, I keep eating without knowing whether I'm full or not. It is a coping mechanism for my boredom.
• I understand sarcasm and modern humor. In fact, I even like dark humor!
• I have only close friends, all of which do not know of my disorder. I get along with each very well and quite normally.
  
• Sensitivity to light might be an issue but not as much as compared to sound. The ambiance and talking of students in a class can make me uncomfortable, sometimes having to ask the teacher for a break if needed. More so, crowds talking is my worst stressor next to silence.
• My emotions are quite stagnated when stressed, but are easily conceivable to the normal person. However, this is only coming from my perspective.
• I hate having to answer calls but might call others if needed. However, I don't like to talk to relatives that I don't feel so close to.
• As stated before, I am very well self-aware and conscious of my actions.
• Rarely, but recently, I've felt lost at days not knowing where or who I am. It can scare me at times.
• I still exhibit constant fiddling and sensory stimulation. Clicking pens and constantly having to hold a pencil or similar object.
  
• I have difficulty sleeping and now take melatonin before going to bed.
• Extra: I like music and can be described borderline-audiophile.

I think that I've written enough for my introduction post. Look forward to the responses!
(P.S. the misdiagnosis has to do with the understanding of humor and social things.)

 

[Nemo]

Sounds like me. You could just be high functioning aspergers? I don't think it's a misdiagnosis.

 

[xudo]

Welcome

 

[Southern Discomfort]

You sound no different to a lot of other people on here. You have a lot in common with us.

No matter what, I keep eating without knowing whether I'm full or not.

This one isn't heard of so often but it's got to do with your senses too. I can't think of the name off the top of my head, this one is always the same. But it's also about being aware of thirst and temperature too.

My emotions are quite stagnated when stressed, but are easily conceivable to the normal person. However, this is only coming from my perspective.

It sounds like you have a bit of alexithymia - not always understanding or being aware of your own emotions. Something that is quite common to varying degrees of autistic people.

I understand sarcasm and modern humor. In fact, I even like dark humor!

Both me and my cousin have Asperger's, we are the most sarcastic people you'll ever meet. Too often we don't know when to stop. This can almost be a requirement of Asperger's!

Welcome!

 

[Nemo]

I am so glad I'm subscribed to this thread rn. @Southern Discomfort 's pug has brightened my day.

 

[xudo]

This one isn't heard of so often but it's got to do with your senses too. I can't think of the name off the top of my head, this one is always the same. But it's also about being aware of thirst and temperature too.

Yeah, I overate to the point that I was morbidly obese. In the end only a gastric band got weight off. So far since I had to have it aspirated, I haven't gone back to how I was before, I think because I've retrained myself over the last 3.5 years in how and what I eat.

Both me and my cousin have Asperger's, we are the most sarcastic people you'll ever meet. Too often we don't know when to stop. This can almost be a requirement of Asperger's!

I am also ridiculously sarcastic

 

[Nitro]

 

[Streetwise]

Hi,

I am a fourteen-year-old teenager who was diagnosed with Aspergers at the age of only five. Being an introvert, I can be quite paranoid with social gatherings and anything that puts me in the "fight or flight" response. Thus, I judge my own actions upon how others perceive me. Sometimes leading me to into depressive states. Otherwise, I'm all fine with the exception of my grades. I always get distracted by the computer, in that I do online school work, and can never "start" an assignment so to speak. If I feel like I can't do an assignment, or don't have the "feeling" to do so, I leave it behind. This leads for the assignment to never be started. I know I am capable, but my habit alters that mindset. All in all, I don't have any self-discipline for work. Anyways, here is a little more about myself.

• I have an obsession with technology and phones, being glued to the screen for hours on end. Almost like a compulsion.
• I am mentally disorganized but seemingly organized. In other words, I am a perfectionist. One small wrinkle on the bed and I am done for. Clothes are always organized by color, and drawers are sectioned for each item. Not to forget about obsessively cleaning my personal items.
• Sadly, I'm obese with an undiagnosed eating disorder. No matter what, I keep eating without knowing whether I'm full or not. It is a coping mechanism for my boredom.
• I understand sarcasm and modern humor. In fact, I even like dark humor!
• I have only close friends, all of which do not know of my disorder. I get along with each very well and quite normally.
  
• Sensitivity to light might be an issue but not as much as compared to sound. The ambiance and talking of students in a class can make me uncomfortable, sometimes having to ask the teacher for a break if needed. More so, crowds talking is my worst stressor next to silence.
• My emotions are quite stagnated when stressed, but are easily conceivable to the normal person. However, this is only coming from my perspective.
• I hate having to answer calls but might call others if needed. However, I don't like to talk to relatives that I don't feel so close to.
• As stated before, I am very well self-aware and conscious of my actions.
• Rarely, but recently, I've felt lost at days not knowing where or who I am. It can scare me at times.
• I still exhibit constant fiddling and sensory stimulation. Clicking pens and constantly having to hold a pencil or similar object.
  
• I have difficulty sleeping I and now take melatonin before going to bed.

I think that I've written enough for my introduction post. Look forward to the responses!
(P.S. the misdiagnosis has to do with the understanding of humor and social things.)

you are just stressed -depressed stress is very powerful ie i can lift things i shouldnt be able to because of severe stress
but you pay for it if and when it wears off ,i personally think people diagnosedas low functioning can understand and perceive everything they just cant describe it

 

[Moises]

You sound no different to a lot of other people on here. You have a lot in common with us.



This one isn't heard of so often but it's got to do with your senses too. I can't think of the name off the top of my head, this one is always the same. But it's also about being aware of thirst and temperature too.



It sounds like you have a bit of alexithymia - not always understanding or being aware of your own emotions. Something that is quite common to varying degrees of autistic people.



Both me and my cousin have Asperger's, we are the most sarcastic people you'll ever meet. Too often we don't know when to stop. This can almost be a requirement of Asperger's!

Welcome!

View attachment 32822

Thanks. That clears things off. I love that pug gif by the way.

 

[Moises]

You sound no different to a lot of other people on here. You have a lot in common with us.



This one isn't heard of so often but it's got to do with your senses too. I can't think of the name off the top of my head, this one is always the same. But it's also about being aware of thirst and temperature too.



It sounds like you have a bit of alexithymia - not always understanding or being aware of your own emotions. Something that is quite common to varying degrees of autistic people.



Both me and my cousin have Asperger's, we are the most sarcastic people you'll ever meet. Too often we don't know when to stop. This can almost be a requirement of Asperger's!

Welcome!

View attachment 32822

Do you think I might have OCD or ADHD?

 

[Suzanne]

Welcome there young teenager, Moises

Although I am undiagnised, there is no doubt that I do have aspergers. I say that, as a default for you thinking that perhaps you were misdignosed due to understanding humor and being aware in social situations. You actually describe me very well with the social part.

I do not have a montoned voice or a blank face, but I do go into an occasional stare; however, since I am on my own most times, it is not noticed by others.

I doubt very much you were misdignosed, for most of what you hightlight, is to do with having aspergers.

It is funny what you say about being very organised but disorganised the head, because yep that is me too.

I was told told by a chap that I seem to be a bit of a savvy with technology and I have to face the reality, that although I am not obessed with technology, I do see their huge value and can easily get around the system and solve "teething" problems.

I am a huge believer that I should know how to do something, so that if I am ever in a situation where I need to know something, I am not in the dark. Yesteday, for example: I watched a wheel being replaced and now, could do it on my own. I was with another female, when she stopped the car and said: it is either a very bumpy road or I have a flatty and sure enough it was the latter. She does not know how to change a tyre and if it were not for her finally being able to contact her husband, who duly came along and changed the tyre, we would have been in a difficult position, but now, I know how to change one, with both our strengths, if it happens in the future I can change the tyre.

I believe in being prepared for things, which apparently is more a male thing, but I am certain not a male lol so it has to be an aspie thing.

 

[Suzanne]

You sound no different to a lot of other people on here. You have a lot in common with us.



This one isn't heard of so often but it's got to do with your senses too. I can't think of the name off the top of my head, this one is always the same. But it's also about being aware of thirst and temperature too.



It sounds like you have a bit of alexithymia - not always understanding or being aware of your own emotions. Something that is quite common to varying degrees of autistic people.



Both me and my cousin have Asperger's, we are the most sarcastic people you'll ever meet. Too often we don't know when to stop. This can almost be a requirement of Asperger's!

Yes, I can be terribly sarcastic. Once, when we were doing our home up, we had some visitors and they asked if we had a toilet, and I am afraid that wickedness got a hold of me, so I apologised in advance and said: well, you have to go around the back and cross the field, but mind the sheep and right at the bottom, you need to climb over a fence and you will see the toilet. Oh dear, I was believed. I got a shocked and incredulous look and: are you serious and I nodded my head in sadness and said: it is very hard when you badly need to go to the toilet. But, my senses returned and I quickly said I was teasing and just follow me and I got a lot of: oh you, naughty girl etc etc but with laughs.

Welcome!

View attachment 32822

 

[toothless]

you are just stressed -depressed stress is very powerful ie i can lift things i shouldnt be able to because of severe stress
but you pay for it if and when it wears off ,i personally think people diagnosedas low functioning can understand and perceive everything they just cant describe it

the very essence of low functioning classic autism is that we have intellectual disability which makes our autism present differently to you guys,i am happily oblivious and struggle when it comes to understanding the world and everything that stems from it [ie people and when they speak to me,especially if they use complex or big words and big sentances-i cant process much information],i dont however struggle with animals or computers,i am the most happy when with them.

 

[toothless]

@Moises hi moises welcome to AC!
having your own kind of sense of humour is actually very typical of being on the spectrum,its very old research that told specialists we cant have a sense of humour,be aspie and proud!.

i am LFA and have a rude sense of humour,i have simple but toilet type humour, i dont understand jokes or saracasm though,theyre concepts ill never get i think.

 

[Moises]

@Moises hi moises welcome to AC!
having your own kind of sense of humour is actually very typical of being on the spectrum,its very old research that told specialists we cant have a sense of humour,be aspie and proud!.

i am LFA and have a rude sense of humour,i have simple but toilet type humour, i dont understand jokes or saracasm though,theyre concepts ill never get i think.

It's ok. I mean, I never could understand sarcasm 5 years ago. Now, it is part of my life. I guess I matured quickly in a sense. From being bad at reading, to learning more vocabulary. I read pretty well but still hate having to read most of the time lol.

 

[Moises]

Welcome there young teenager, Moises

Although I am undiagnised, there is no doubt that I do have aspergers. I say that, as a default for you thinking that perhaps you were misdignosed due to understanding humor and being aware in social situations. You actually describe me very well with the social part.

I do not have a montoned voice or a blank face, but I do go into an occasional stare; however, since I am on my own most times, it is not noticed by others.

I doubt very much you were misdignosed, for most of what you hightlight, is to do with having aspergers.

It is funny what you say about being very organised but disorganised the head, because yep that is me too.

I was told told by a chap that I seem to be a bit of a savvy with technology and I have to face the reality, that although I am not obessed with technology, I do see their huge value and can easily get around the system and solve "teething" problems.

I am a huge believer that I should know how to do something, so that if I am ever in a situation where I need to know something, I am not in the dark. Yesteday, for example: I watched a wheel being replaced and now, could do it on my own. I was with another female, when she stopped the car and said: it is either a very bumpy road or I have a flatty and sure enough it was the latter. She does not know how to change a tyre and if it were not for her finally being able to contact her husband, who duly came along and changed the tyre, we would have been in a difficult position, but now, I know how to change one, with both our strengths, if it happens in the future I can change the tyre.

I believe in being prepared for things, which apparently is more a male thing, but I am certain not a male lol so it has to be an aspie thing.

Cool to know that there are other Aspie's like me. I actually believed in those statistics and "medical" symptoms, which is why I questioned a misdiagnosis. Otherwise, the Aspie community is awesome!

 

[Southern Discomfort]

Do you think I might have OCD or ADHD?

I'm not a doctor but I wouldn't say you have either from what you've stated. Being an orderly kind of person and having the need for cleanliness isn't OCD unless you think something very bad is going to happen if you don't do it, these can be irrational things like someone will die; there's always an underlying baseline of anxiety with OCD, it is not just eccentric neediness for order because you like it. That's what a lot of people don't understand about it. People with Asperger's can be very orderly in the sense of having it be a part of a routine and therefore any disturbances to that routine may cause anxiety. If this is the case for you then a doctor needs to determine if it's either Asperger's or OCD.

ADHD is primarily to do with not being able to stay focused on a task, like school work or chores or being messy. And/or having a hyperactive behaviour, the stereotypical one is not being able to stay sitting down for very long. ADHD is also known for challenging behaviour although that's not always the case. My brother has ADHD and he was known for his anger outbursts as a child, which was directed at me quite often. People with ADHD can also be known for taking risks and sometimes illegal activity.

You can have both OCD and ADHD with Asperger's but it's more likely that your symptoms that you think might be related to either two are to do with Asperger's. All three of these conditions can be hereditary, if you know a family member with one of these conditions then you stand at a higher risk or having or developing (in the case of OCD) one of these.

 

[Moises]

I'm not a doctor but I wouldn't say you have either from what you've stated. Being an orderly kind of person and having the need for cleanliness isn't OCD unless you think something very bad is going to happen if you don't do it, these can be irrational things like someone will die; there's always an underlying baseline of anxiety with OCD, it is not just eccentric neediness for order because you like it. That's what a lot of people don't understand about it. People with Asperger's can be very orderly in the sense of having it be a part of a routine and therefore any disturbances to that routine may cause anxiety. If this is the case for you then a doctor needs to determine if it's either Asperger's or OCD.

ADHD is primarily to do with not being able to stay focused on a task, like school work or chores or being messy. And/or having a hyperactive behaviour, the stereotypical one is not being able to stay sitting down for very long. ADHD is also known for challenging behaviour although that's not always the case. My brother has ADHD and he was known for his anger outbursts as a child, which was directed at me quite often. People with ADHD can also be known for taking risks and sometimes illegal activity.

You can have both OCD and ADHD with Asperger's but it's more likely that your symptoms that you think might be related to either two are to do with Asperger's. All three of these conditions can be hereditary, if you know a family member with one of these conditions then you stand at a higher risk or having or developing (in the case of OCD) one of these.

I definitely get distracted when doing school work.

 

[toothless]

It's ok. I mean, I never could understand sarcasm 5 years ago. Now, it is part of my life. I guess I matured quickly in a sense. From being bad at reading, to learning more vocabulary. I read pretty well but still hate having to read most of the time lol.

it just shows you have a a lot of intelligence to be able to adapt and progress in the way you have done, it doesnt mean you arent aspie/ autistic because you have been able to progress quite quickly, it just means you are an intelligent,wonderful person [thats what you come off as to me] and should be proud of yourself of how far you have come!
i hope that doesnt sound patronising as i think we all need to recognise our journey to teen and adulthood as it is so much harder for us.

 

[Southern Discomfort]

I definitely get distracted when doing school work.

Yeah. Again, that could be done to Asperger's too. With Asperger's you have a narrow range of interests, often if something doesn't interest you it really won't interest you. Teachers always said about how I did the minimum amount of work in a lot of subjects that didn't interest me. My Year 11 teacher said that if I was any more laid back I'd fall off my chair.

You might also be distracted by sounds or sights as part of the sensory problems people with Asperger's can face; we can really struggle to filter out information in our surroundings.

There is of course a general level of being distracted from work across a lot of pupils at school.