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My symptoms thread

Suzette

Well-Known Member
V.I.P Member
Hello,
As many of you know I am still evaluating whether or not I am on the spectrum. This is no easy thing to decide as I am 54 and have learned to compensate, hide or ignore many of my personality traits in an effort to find my hsppiest life. I also have a life time of both negative and positive life experiences that probably have influenced my behavior. The "trick" of course is to sift through it all to understand what is my core self.
I have been imspired by member Ken to post a list of symptoms. Please feel free to comment. In some cases my symptom may not be related at autisim, please point it out if you see something.
So, in no particular order:
1. As a child I would only wear black patten leather mary janes.

2. I have an obsession with little boxes and "kits". I don't have the money or space for a collection but I love looking at others creations and collections on line. When I need to self soothe I imagine boxes and kits I would make if I were a crafts person. I do have a small collection of boxes though, prayer boxes, pill boxes and cosmetic boxes. The smaller the better.

3. I have very little inate sense of direction. I get lost easily without specific instructions. I will always study a map of where I am going even if I have been there before. The only exception would be to my job, home, neighborhood grocery etc.

4. I really don't like talking on the phone. I find I interupt people when I don't intend to and I find it difficult to understand what others are saying. And I just don't have enough to say to keep a conversation going.

5. Crowds of people wear me out. Just being in a mall, large store or farmers market makes me feel physically tired after an hour or so.

6. Anywhere there are a lot of people I become overwhelmed by the constant chatter of voices. It is not how loud they are but how distracting everone talking at once is. I hear every voice distinctly, if the voices would all blend into indistinct babble it would be better.

7. I was painfully shy until my 20s. Meeting new people as a child and in my teens would give me panic attacks.

8. I wet my bed until 8. I still had an accident here and there until I was about 13.

9. I have discalculia. I was unaware of it until I started getting in trouble at work for inacuracies. I pretty much sucked at math in school.

10. Often when others tell me about an experience they have had, I will tell the about my similar experience. It is my belief that sharing my experience I am showing I can relate and understand their story. But I have recently discovered that most people think I am trying to turn the attention to myself. Since I have learned this I try not to do it but I still do sometimes.

11. I often feel like a babe in the woods. I don't know how to behave or what to say in most new situations.

12. I have learned to make eye contact but it is not easy. I still don't know how long I am supposed to look, if my eyes are supposed to be doing something when others look me in the eye. I find the whole experience unnerving. I usually glance for a second then look away. See #14

13. I can not watch others eat. I can sit at the table while we are all having a meal but I can't look at others faces when they are eating. I usually stare at my plate. See #14

14. In most situations that make me feel uncomforable my vision becomes disassociated to my conscious mind. I am conscious of where I am and what I am doing but not what I am viewing.

15. I have a very good imagination and can picture objects as 3d in my mind. I can rotate them and see how their parts work with other parts.

16. I am very good with pattern recognition

17. I never forget a face and can tell you when and where I have seen that face before but I won't remember their name easily.

18. I have bisual snow syndrome and tinnitus

19. I trip over my own feet a lot and always seem to hit things off the counter with my elbows. It is so bad that I will move things in other peoples houses just to save their belongings and my embarassment. But please don't move things in my house because I have arranged things to be out of the elbow zone. This is not unlike the way a blind person organizes their house.

20. I dislike one on one conversations with most people because there is too much pressure to participate. Rarely I will find that me and another person can converse well together but it does happen sometimes.

21. I need loads of alone time. At least 6 hours of alone time every day.

22. No matter what I am doing I make a visual plan in my head before I do it. Even simple things like getting a glass of water will be mapped in my mind. Once I start following my plan I can get derailed if I am interupted. This is especially true for multi step plans like cooking dinner or completeing a chore. I feel very panicky if I am temporarily stopped in the middle of my plan.

23. I don't always get the point of jokes, sometimes I don't understand the punch line and the whole joke just ends up being baffling nonsense.

24. I can't wear any clothes that bind or fit closely. My clothing must be loose, even over sized sometimes. I am very sensative to fabric texture and prefer soft fabric like cotton but not too soft like satin (that just feels icky).

25. I have a very good head for trivia and will remember bits of information about a wide variety of topics. When I was younger I had a habit of correcting people when their facts were wrong even over inconsequential things. People don't like that do now I only correct people if life or limb depends in the right answer.

More later
 
Near enough. Whaddaya want? It often takes a few years of flip flopping before people feel sure. Up to you.

Boxes are nice.

oh and NVLD is probably the next nearest condition, but I don't think there's much in the way of forums/support there, well not for adults. I also considered Schizotypal PD cos I'm 'off with the pixies' and seeing unapparent connections a lot, looked at some other PDs, but autism is the best fit for me.
 
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I feel connected to you because I think we joined the forum at about the same time and both were questioning whether we had ASD/Asperger's. In the month or so that I've been on this forum, I've gone from 50-50 to almost certain that I am on the spectrum. I actually think I'll receive an official diagnosis this week but in some ways, it feels anti-climatic. It just makes sense and it connects many of the pieces of myself that I didn't understand or never guessed might be related. Your contribution to this forum has been an important part of that realization for me so in some ways, I'm surprised you're still questioning! I think you're definitely on the spectrum but like me have learned to compensate and mask to the extent that you question what is right in front of your face and likely always has been.

I can relate to a lot of what you said. As a kid, I usually wore boots. I was actually nicknamed "Combat" because of my preference for combat boots. I also share similar experiences as a way to connect but recently understood that this might come off as attention-seeking. Checkmarks for pattern recognition, alone time, loose-fitting clothes, not getting jokes. dislike of crowds, novel social situations, talking on the phone, etc.

I think the biggest difference for me is that I prefer one-on-one situations. I realize I struggle more in less structured situations. When there are more people, there is inevitably less structure. My biggest issue with one-on-one conversations is figuring out when to end them. I'm always trying to figure out whether I'm boring someone or keeping them from some other task.
 
I feel like we are family. Some days, loose clothing is so important. I will pull elastic totally out if to tight in pants waistband.

Phone calls can be hit or miss. I do stim to self-comfort myself. Play with my hair or touch and rub a corner of my shirt or pants or rub my feet together.

Patterns, patterns and patterns in everything. The holy grail is patterns and l must find them all like a Pokemon.

I use to get headaches when l went downtown when l was a teenager. It hit me hard. My grandmother also suffered in large crowds.

Maybe you can feel better now☺
 
Hello,
As many of you know I am still evaluating whether or not I am on the spectrum. This is no easy thing to decide as I am 54 and have learned to compensate, hide or ignore many of my personality traits in an effort to find my hsppiest life. I also have a life time of both negative and positive life experiences that probably have influenced my behavior. The "trick" of course is to sift through it all to understand what is my core self.
I have been imspired by member Ken to post a list of symptoms. Please feel free to comment. In some cases my symptom may not be related at autisim, please point it out if you see something.
So, in no particular order:
1. As a child I would only wear black patten leather mary janes.

2. I have an obsession with little boxes and "kits". I don't have the money or space for a collection but I love looking at others creations and collections on line. When I need to self soothe I imagine boxes and kits I would make if I were a crafts person. I do have a small collection of boxes though, prayer boxes, pill boxes and cosmetic boxes. The smaller the better.

3. I have very little inate sense of direction. I get lost easily without specific instructions. I will always study a map of where I am going even if I have been there before. The only exception would be to my job, home, neighborhood grocery etc.

4. I really don't like talking on the phone. I find I interupt people when I don't intend to and I find it difficult to understand what others are saying. And I just don't have enough to say to keep a conversation going.

5. Crowds of people wear me out. Just being in a mall, large store or farmers market makes me feel physically tired after an hour or so.

6. Anywhere there are a lot of people I become overwhelmed by the constant chatter of voices. It is not how loud they are but how distracting everone talking at once is. I hear every voice distinctly, if the voices would all blend into indistinct babble it would be better.

7. I was painfully shy until my 20s. Meeting new people as a child and in my teens would give me panic attacks.

8. I wet my bed until 8. I still had an accident here and there until I was about 13.

9. I have discalculia. I was unaware of it until I started getting in trouble at work for inacuracies. I pretty much sucked at math in school.

10. Often when others tell me about an experience they have had, I will tell the about my similar experience. It is my belief that sharing my experience I am showing I can relate and understand their story. But I have recently discovered that most people think I am trying to turn the attention to myself. Since I have learned this I try not to do it but I still do sometimes.

11. I often feel like a babe in the woods. I don't know how to behave or what to say in most new situations.

12. I have learned to make eye contact but it is not easy. I still don't know how long I am supposed to look, if my eyes are supposed to be doing something when others look me in the eye. I find the whole experience unnerving. I usually glance for a second then look away. See #14

13. I can not watch others eat. I can sit at the table while we are all having a meal but I can't look at others faces when they are eating. I usually stare at my plate. See #14

14. In most situations that make me feel uncomforable my vision becomes disassociated to my conscious mind. I am conscious of where I am and what I am doing but not what I am viewing.

15. I have a very good imagination and can picture objects as 3d in my mind. I can rotate them and see how their parts work with other parts.

16. I am very good with pattern recognition

17. I never forget a face and can tell you when and where I have seen that face before but I won't remember their name easily.

18. I have bisual snow syndrome and tinnitus

19. I trip over my own feet a lot and always seem to hit things off the counter with my elbows. It is so bad that I will move things in other peoples houses just to save their belongings and my embarassment. But please don't move things in my house because I have arranged things to be out of the elbow zone. This is not unlike the way a blind person organizes their house.

20. I dislike one on one conversations with most people because there is too much pressure to participate. Rarely I will find that me and another person can converse well together but it does happen sometimes.

21. I need loads of alone time. At least 6 hours of alone time every day.

22. No matter what I am doing I make a visual plan in my head before I do it. Even simple things like getting a glass of water will be mapped in my mind. Once I start following my plan I can get derailed if I am interupted. This is especially true for multi step plans like cooking dinner or completeing a chore. I feel very panicky if I am temporarily stopped in the middle of my plan.

23. I don't always get the point of jokes, sometimes I don't understand the punch line and the whole joke just ends up being baffling nonsense.

24. I can't wear any clothes that bind or fit closely. My clothing must be loose, even over sized sometimes. I am very sensative to fabric texture and prefer soft fabric like cotton but not too soft like satin (that just feels icky).

25. I have a very good head for trivia and will remember bits of information about a wide variety of topics. When I was younger I had a habit of correcting people when their facts were wrong even over inconsequential things. People don't like that do now I only correct people if life or limb depends in the right answer.

More later
As you can see each person is an individual !and what I say will guarantee to offend one of the members ,can you remember very early child hood, this is not !to prove to me what you are ,but it could solidify what you believe (try and find as many memories as possible ,not just for a therapist but to teach yourself what is true), I had one very telling photograph and a comment from my mother.
I call autism ' I thought everybody was like that'!
Nearly 6 years after underwhelming diagnosis the word is just another I personally can't grasp
 
@Streetwise, yes I am reviewing my memories and I have spoken with my mom. I'll post more on this list in the future. Right now I have other things capturing my attenion. Thank you.
 
As I have commented on your other post I can relate to what you are saying so well. I self identify as on the spectrum because it's the first time in my life I have met people who are "like me" and being on the spectrum finally checks all the boxes, not just some, of why I am the way I am. I spent quite some time going back and forth but I was comparing myself to males on the spectrum not females. When I began learning how women present differently than men and the ways they present then I was finally able to accept that I too, besides my other family members, am on the spectrum. They have an official diagnosis while I do not. Still learning to take my mask off and be who I am.
 
You are on a positive path of self-discovery. The great thing about it is YOU decide what's comfortable for you and how far you choose to continue or when to end your journey. Meaning, if based on your own research and how it aligns with an autism diagnosis you're confident you are autistic, you're free to stop there and consider yourself a self-diagnosed autistic person. We'll fully support you in that here and accept and recognise you as such (self-diagnosed). Or, you may decide to further your journey of self-discovery and at some point seek a professional autism assessment. As you could expect, we'll support you here in that as well.

It's exciting to hear about your journey and thank you for sharing!
 
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I'm glad that you get the alone time, I also need lots of that. Preferably more than six hours a day, more so like eight hours. When I was back in school I would go up to my bedroom after it happened and only come down during dinnertime.

I also hate talking on the phone. It's incredibly anxiety causing for me. Meanwhile I don't mind one on one conversations as much, I absolutely hate being in a crowd because there's just so many things to look at I can never stop looking all at once at everyone because of how much sensory there is. Same with the voices-it's very hard to listen to people if there's music playing and loud conversations going on.

I'm extremely shy in real life, to the point where if I panic I will shut down and be unable to talk when I am upset and people will think I am having an allergic reaction because of how visible it is but I actually am not because it's just my anxiety.

I only watch what others eat if the food I am having is something I have had before. If it isn't then I will solely pay attention to the food and I might hiss at people if they try to talk to me. I just can't help it.

I trip over my own feet so often I always have to walk with my head down or else if I pick it back up I will trip and nearly fall. I have injured myself on many separate occasions with this. Same with my elbows, I also have to look where my arms are if I'm walking in a close hallway or by doors. I've forgotten the amount of arm bruises I've had. It's a wonder that I've never broken any of my elbows.

I'm a very visual person as well, exceptionally when reading. I visualize a story when I will just look at a page and I will see things happening in it in my mind before I read a part closer because I took it all in at first glance. The same is true with many other things I will see. If I don't visualize something, I'm often clumsy while doing it.

I love loose clothing. Tight clothing I can't stand and often makes me panic if I wear it for even a second so then I have to take it right off otherwise I might get an attack. I do think you're somewhere on the spectrum definitely.
 
I'm a very visual person as well, exceptionally when reading. I visualize a story when I will just look at a page and I will see things happening in it in my mind before I read a part closer because I took it all in at first glance. The same is true with many other things I will see. If I don't visualize something, I'm often clumsy while doing it.

That is very interesting! That is how I read as well. I am kind of lost in the movie of the story I am reading rather than seeing words. I didn't know other people did that.

Temple Grandin talks about visual thinking. I had never thought about how I think before I heard her talk about it. I definately do this to a degree. Like today we went to the grocery store. When I made a list of what to buy I pictured each item. Then I mentally walked the isles so I would know where each item was in the store. I also had images of driving to the store and the location and apperance of the restaurant where we had lunch.
But more abstract thoughts I am not really sure how I think about them. Many of those kind if thoughts come to me almost as a form of inution and "feeling". I say "feeling" but I don't mean emotion. I am trying to pay attention to how these thoughts present them selves but it is difficult to do. Abstract thoughts like the previius sentances. How did those thought present themselves? I am not really sure. I am typing the words but I am not consciiusly think of the words. Sometimes when I sm expressing an idea like this it almost feels like a form of automatuc writing. I am detached and watching the words form on the screen.
 
Thank you, Suzette, for your list. It is very enlightening to me, connecting dots and revealing that my list is far from complete.

As I have mentioned, many, if not most of my symptoms were unknown to me until I discovered that other people are not like that.

I have many of your listed symptoms, some exactly the same and some slightly different.

#3 Sense of direction: For most of my life I always thought I had an excellent sense of direction – even thought I often got lost. I thought that since I always eventually found my way, I must be good at it. After marrying my wife and witnessing what a normal sense of direction really is, I realized that I really suck at it. Part of that confusion was because I am really good at reading and making maps. But now I realize the two skills are not really related.

#4 Telephone! Talking on the phone for me induces extreme anxiety. I am totally unable to talk on the phone while sitting still, regardless of the environment. I have to be pacing through the house or room when on the phone – regardless who I’m talking to.

#5 Crowds also elevates my anxiety, but I usually handle it ok if the nature of the crowd allows me to feel detached and isolated. I can feel that way in a shopping mall. Anytime I don’t feel there is any likelihood that someone is going to approach me for any reason.

#6 Multiple people talking at once is a major issue for me, especially if someone is talking to me at the same time. Being alone in a crowd, such as in a mall, I have a fix for that situation. I have a birth defect hearing issue. I simply unplug my hearing aid.

#7. I have always been painfully shy. Still, meeting new people or even people I know skyrockets anxiety.

#9. Dyscalculia. At first, I dismissed this one. I looked it up and found that it is the difficulty comprehending abstract representations. That can’t be me, because a core requirement of my life’s obsession are schematics of electronic circuits which is abstract. I find schematics to very easy to understand. But wait; difficult is only difficult, doesn’t mean can’t. Also, the concept of “difficult” is relative. Perhaps it became “easy” for me because I have lived and breathed schematic diagrams for the bulk of my life, driven by overwhelming obsession. But wait; Math is extremely difficult for me. It is a major element to my career and life’s obsession of electronic design, but I struggle through it for the sake of the design obsession. Also, I realize that reading, writing, English, etc. are all subjects involving abstract representation. All such subjects was major difficulties in school. I was also slow learning to talk; language is abstract. Now, I’m not so sure dyscalculia is not a fit.

#10 Check.

#12 Eye contact. I have never been able to make eye contact. I can’t even look at eyes in a photograph. Can’t say why, I just can’t. When speaking to someone I focus on their mouth. That has always seemed to satisfy people. Some have commented on it, but assumed I was reading their lips because of my hearing defect.

#13 Eating – check! Also, can’t stand hearing the sound of someone eating. It grosses me out, sickening to almost meltdown levels.

#14 check.

#15, #16 Ability to mentally picture objects in 3D, rotate and observe function and pattern recognition. Big check here. I thought that was a cancel for dyscalculia, but then realized, no this is imagining real 3D objects, not abstract.

#17. No check. I have trouble remembering faces and names.

#18. Big check.

#20. Check.

#21. Alone time! – Check. However, for alone time to work for me, it must be reliable. If I feel that I can be walked in on at any time, then my anxiety remains high.

#22. Big check.

#23. Not sure about jokes. I believe I usually get the point, but I’m never entirely sure.

#24. Clothes. I can’t stand clothes that are loose enough to feel the fabric draping on my skin, but I also can’t stand them being too tight either.

#25. I think I’m getting better at it, but I still sometimes blurt out corrections before I can think. It took me a long time to learn that was a bad thing, even with the abusive tirades my father would bash me with any time I corrected him. I also correct on how to do things. I will grab what someone just did and re-do it. All before thinking. I have found that correcting people, whether verbally or physically, can be catastrophic to friendships. Apologies never erase what I said or did.
 
Thanks @Ken. I had to keep scrolling back to see what I wrote. I couldn't rember any of it. :)
Regarding dyscalculia, I have to consider the abstract thinking part. I wasn't aware that was considered part of dyscalculia. I am self diagnosed.

My diagnosis is based on transposing numbers, or even not seeing numbers in a string. I kept getting in trouble at work for misfiling things or my maths not being correct. This drove me crazy because I was so careful to check my work. How could I be wrong? But one memorable job review gave me the answer. My boss wrote a number and asked me to read it back to him. It was a six digit number. Easy peasy. But after I read it, very confident in my reading, he asked me to read it again. The thrid time I read through it, the numbers shifted in my vision. It looked like one of those movie sceans showing dyslexia. Whoa! I had no idea this was going on.

This is only a problem with unknown number strings. I can easily read prices, addresses and the like. But I don't trust long number strings unless I break the number by covering the part I am not reading. If I leave the numbers uncovered things get a little dicey.

Ok, I've read up on abstract thinking on wikipedia. I think this may apply to me as well. Maybe, if I understood what I read. An example I can give from my recent experience is my husband describing the work he was doing on our solar arrray.
He kept giving me little bits of information about what he was doing.
He started my telling me was going to hook up a certsain panel to charge our dinghy battery. I understand the end goal. But he tells me later that he connected a new charger and seperately, at another time, tells me about another piece of the puzzle. I had a reallly hard time putting these disjointed parts together in my mind to understand that he needed to isolate the solar pannel from our array while charging the dinghy battery even though, he had mentioned this before.

In simple terms his description of the work was like; goal, step c, step a, restated goal, step b, step d.

Is this your meaning of abstract?
 
I couldn't memorize formulae in maths, although my memory was above average, my brain just wouldn't retain formulae, so I had to sit in exams and try and invent formulae on the spot, which sometimes worked. I never finished maths exams though because it took so much time to do that. Barely passed easier level maths most of the time. In primary skewl they introduced a new method of maths teaching called 'cuisinaire rods', which really screwed me cos it uses an abstract concept (rods of different lengths and colours) to explain maths to kids, like if you add the yellow rod to the red rod, how much rod do ya got?

So, that's what abstract means to me, in maths.
 
Thanks @Ken. I had to keep scrolling back to see what I wrote. I couldn't rember any of it. :)
Regarding dyscalculia, I have to consider the abstract thinking part. I wasn't aware that was considered part of dyscalculia. I am self diagnosed.

My diagnosis is based on transposing numbers, or even not seeing numbers in a string. I kept getting in trouble at work for misfiling things or my maths not being correct. This drove me crazy because I was so careful to check my work. How could I be wrong? But one memorable job review gave me the answer. My boss wrote a number and asked me to read it back to him. It was a six digit number. Easy peasy. But after I read it, very confident in my reading, he asked me to read it again. The thrid time I read through it, the numbers shifted in my vision. It looked like one of those movie sceans showing dyslexia. Whoa! I had no idea this was going on.

This is only a problem with unknown number strings. I can easily read prices, addresses and the like. But I don't trust long number strings unless I break the number by covering the part I am not reading. If I leave the numbers uncovered things get a little dicey.

Ok, I've read up on abstract thinking on wikipedia. I think this may apply to me as well. Maybe, if I understood what I read. An example I can give from my recent experience is my husband describing the work he was doing on our solar arrray.
He kept giving me little bits of information about what he was doing.
He started my telling me was going to hook up a certsain panel to charge our dinghy battery. I understand the end goal. But he tells me later that he connected a new charger and seperately, at another time, tells me about another piece of the puzzle. I had a reallly hard time putting these disjointed parts together in my mind to understand that he needed to isolate the solar pannel from our array while charging the dinghy battery even though, he had mentioned this before.

In simple terms his description of the work was like; goal, step c, step a, restated goal, step b, step d.

Is this your meaning of abstract?

Sorry about that. I should have at least included the subject of each line.

Your husband's description of his solar panel work is what I would call non-linear. I can't handle that either. My wife drives me crazy with that same thing. Or worse, she commonly fragments sentences. That is; she does not complete a sentence before starting another. Sometimes the subject even changes mid-sentence. Leaves me totally baffled. My mind works linearly, so things have to presented to me linearly. It's hard for me to put an image together when the information is not linear - out of order. Watching a movie that jumps back and forth between time periods or events leaves me totally baffled. I have to watch the movie again, sometimes several times, to finally understand what happened.

I too have trouble with long, unknown numbers. Even to transcribe a number on paper or into a calculator. I have to read or transcribe it single digit at a time, sometimes covering the number with a finger and moving it along as I read it off.

My definition of abstract is communication in a form different from the subject, usually by previously learned symbols. For example; describing the appearance of an apple in a printed paragraph is abstract. A photograph of an apple is not. The printed text looks nothing like an apple, but is intended to translate the image of the apple into the mind of the reader.
 
Sorry about that. I should have at least included the subject of each line.

Your husband's description of his solar panel work is what I would call non-linear. I can't handle that either. My wife drives me crazy with that same thing. Or worse, she commonly fragments sentences. That is; she does not complete a sentence before starting another. Sometimes the subject even changes mid-sentence. Leaves me totally baffled. My mind works linearly, so things have to presented to me linearly. It's hard for me to put an image together when the information is not linear - out of order. Watching a movie that jumps back and forth between time periods or events leaves me totally baffled. I have to watch the movie again, sometimes several times, to finally understand what happened.

I too have trouble with long, unknown numbers. Even to transcribe a number on paper or into a calculator. I have to read or transcribe it single digit at a time, sometimes covering the number with a finger and moving it along as I read it off.

My definition of abstract is communication in a form different from the subject, usually by previously learned symbols. For example; describing the appearance of an apple in a printed paragraph is abstract. A photograph of an apple is not. The printed text looks nothing like an apple, but is intended to translate the image of the apple into the mind of the reader.
Oh, I see what you mean. I will still have to think on abstraction to understand better.

I definately think linearly for most things. The description of how your wife communicates reminds me of my mother. She interupts herself, pauses midsentance and drops subjects mid thought too.
 

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