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Nearly 4 years on and now doubting that I am recognised as on the spectrum!

Suzanne

Well-Known Member
V.I.P Member
When I got diagnosed, it was not a quick action. It was two visits, with two different professionals and a lot of tests and finally, a sort of questionare was placed before me. A scenario of each item and give a count from 1 to 10 of how I felt in each one. He scored it on a piece of paper and I came out at 38, which is beyond moderate but just hovering on severe. So, grade 2 to 3 and then, signed and dated it and handed it to me. I did not question further, because I did think he would send an official document in the post and his last words were: good luck for the future.

I did not get an official document and it is not on my medical records. I only have that - now, very scruffy piece of paper, which I have had to photocopy.

Still felt it was proof though, on seeing a new psychiatrist and showing him this paper and his reaction, made me panic! His reaction was quite the opposite to what I supposed.

A friend ( could be on the spectrum too) very kindly phoned the establishment ( because she speaks almost fluient in French) and was told that the expert in autism who evulated me, would send me via email and detailed description on how I was diagnosed. However, so far, not received in and spent a horrible, anxious night, that perhaps after all this time, I am not going to be recognised after all, for being on the spectrum!!!

Surely it is logical that if it is an expert, that also the information would be expert?
 
When I got diagnosed, it was not a quick action. It was two visits, with two different professionals and a lot of tests and finally, a sort of questionare was placed before me. A scenario of each item and give a count from 1 to 10 of how I felt in each one. He scored it on a piece of paper and I came out at 38, which is beyond moderate but just hovering on severe. So, grade 2 to 3 and then, signed and dated it and handed it to me. I did not question further, because I did think he would send an official document in the post and his last words were: good luck for the future.

I did not get an official document and it is not on my medical records. I only have that - now, very scruffy piece of paper, which I have had to photocopy.

Still felt it was proof though, on seeing a new psychiatrist and showing him this paper and his reaction, made me panic! His reaction was quite the opposite to what I supposed.

A friend ( could be on the spectrum too) very kindly phoned the establishment ( because she speaks almost fluient in French) and was told that the expert in autism who evulated me, would send me via email and detailed description on how I was diagnosed. However, so far, not received in and spent a horrible, anxious night, that perhaps after all this time, I am not going to be recognised after all, for being on the spectrum!!!

Surely it is logical that if it is an expert, that also the information would be expert?
maybe you could try contacting them again to ask? I dont really know The process for diagnosis in adults. Hope that you have something resolved soon.=)
 
Are you in the US? Sometimes it feels like ASD isn't even recognized at all if you hadn't been diagnosed as a kid, and honestly if I ever lost my sheet of paper I'm pretty sure nobody would ever believe me again because the specialist is now deceased.

In your case, it sounds like they were very thorough up to that last step though. I hope you can get that sorted
 
maybe you could try contacting them again to ask? I dont really know The process for diagnosis in adults. Hope that you have something resolved soon.=)
I chatted via phone to my friend who phoned them and she calmed me down, saying that I am the witness to my own condition.

Also, that the therapist will take time in responding, since it is a lot of data he needs.
 
Are you in the US? Sometimes it feels like ASD isn't even recognized at all if you hadn't been diagnosed as a kid, and honestly if I ever lost my sheet of paper I'm pretty sure nobody would ever believe me again because the specialist is now deceased.

In your case, it sounds like they were very thorough up to that last step though. I hope you can get that sorted
Nope. Live in France, but come from the UK.
 
I chatted via phone to my friend who phoned them and she calmed me down, saying that I am the witness to my own condition.

Also, that the therapist will take time in responding, since it is a lot of data he needs.
Yes, I think that is the case here that it takes A bit of time. Really hope that you get something soon.=)
 
maybe you could try contacting them again to ask? I dont really know The process for diagnosis in adults. Hope that you have something resolved soon.=)

Are you in the US? Sometimes it feels like ASD isn't even recognized at all if you hadn't been diagnosed as a kid, and honestly if I ever lost my sheet of paper I'm pretty sure nobody would ever believe me again because the specialist is now deceased.

In your case, it sounds like they were very thorough up to that last step though. I hope you can get that sorted

Here, the diagnosis (whether child or adult) comes as a report, where the last page has the diagnosis itself.

If diagnosis is required for access to certain services, most usually ask for a MD, PhD, or PsyD to sign off on a designated form, but some will also accept a copy of the first and last page of the report. (the cover page would identify the clinic, date, the doctor(s) who performed the diagnosis, and whom the diagnosis is for).
 

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