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Need your opinion please

Lexi4582

New Member
I was referred to be assessed for autism and I'm waiting for this appointment, so I'm not diagnosed, it was mental health professionals that pushed the idea of me getting assessed and I keep going backwards and forwards between thinking I could have autism and sure I don't.

There are many reasons why the referral was sent but one thing that I've struggled with since I was a child was going into social situations with new people thinking I'd be fine (although this has slowly gone and now I dread it) then realizing I have no idea what to say or how to act and my mind is just blank, then this makes me very anxious because I feel like I stand out in groups because I don't say anything. I always feel like I've never met anyone who has this issue, and I feel completely different to everyone else there, its beyond just being socially anxious, although I'm better if its just with one other person, and I keep wondering if this is an experience of people who have autism or if people with autism experience it in a different way.

So I'm wondering if anyone here has shared this experience or if it's something else? Thankyou
 
I suspect many of us have had such experiences. Including myself.

With that weird feeling of being "detached". Always looking in from the outside, but never really feeling part of what was going on inside.
 
I was referred to be assessed for autism and I'm waiting for this appointment, so I'm not diagnosed, it was mental health professionals that pushed the idea of me getting assessed and I keep going backwards and forwards between thinking I could have autism and sure I don't.

There are many reasons why the referral was sent but one thing that I've struggled with since I was a child was going into social situations with new people thinking I'd be fine (although this has slowly gone and now I dread it) then realizing I have no idea what to say or how to act and my mind is just blank, then this makes me very anxious because I feel like I stand out in groups because I don't say anything. I always feel like I've never met anyone who has this issue, and I feel completely different to everyone else there, its beyond just being socially anxious, although I'm better if its just with one other person, and I keep wondering if this is an experience of people who have autism or if people with autism experience it in a different way.

So I'm wondering if anyone here has shared this experience or if it's something else? Thankyou

Yes. I have an incredibly difficult time holding conversation where I don't discern an actual point to the discussion. It's as if the areas of the brain related to language use just stop working and I often just stare at someone as I'm trying to discern the point of what they're talking about which often makes them uncomfortable I've been told.

Luckily for me, outside of my children, I'm not good at noticing when people are uncomfortable so I don't end up in a feedback loop with me being uncomfortable with my mind going blank then being uncomfortable that they're uncomfortable and down the spiral we go.
 
Hi Lexi, welcome! :)

Social anxiety is something I can relate to a lot, even though I'm technically an extrovert. I'm only "partially" verbal irl because I don't speak as well as I write, and I have difficulty processing conversations in real time and sometimes I just shut down and don't know what to say.
But it complicates things because I really do enjoy being social and being around other people. Although I do prefer to be around known, trusted people. With trusted individuals or groups, I have a lot less difficulty with anxiety and processing thoughts/speech.

Social anxiety is very common with autistic people and is something that a lot of us deal with. I can't diagnose you with anything but it may be comforting for you to know that a lot of us struggle with social anxiety and you're not alone. Social situations can be really hard!
 
I agree with @Luca, my main symptom has always been persistent, blatant social anxiety. Beyond the bounds of anyone I've ever personally met in my life. Completely crippling, honestly. The ASD diagnosis came way later.

None of this means that you totally have ASD, as only a professional can tell you that, but it's really worth seeking a diagnosis if you need that closure (or equivalent, I can't think of a better word right now). A lot of us have been in limbo for many years, wondering, trying to figure it all out until we finally got that answer.
 
For me this isn't social anxiety, it's a central issue of autism, and I think due to our different wiring. I have not been able to alter this in myself, so avoid situations where it occurs. Anxiety is inevitable if I and others don't understand the situation and how it comes about.

It appears that most people have an intuition around unstructured social interaction that I do not, and I think that's a typical difference that is misunderstood as seeming to have intent or to be ignoring others. Where in reality we have no cues how to proceed and are often unaware of or mystified by conventions others are following due to their NT wiring.

It's really common, @Lexi4582 , for us, and probably why they are wanting to diagnose you though I guess there will be other issues that seem typical too?
 
Yes, I have similar issues, and find socialising in groups very difficult. Whereas most people seem to intuitively know what to say, how to act and have a natural body language, and are able to join in or maintain a conversation, I have never been able to do this. I don't seem to be able to process a conversation in real time. By the time I've processed and have worked out what to say, the conversation has already moved on. When I start to speak, someone else in the group has already started speaking, and the others listen to them, and not me. People often ignore me, or interupt or talk over the top of me. One to one is ok as long as the other person is ok with long periods of silence; I often don't have anything to say (my mind is blank) and don't know how to keep the conversation going.

Also, I don't seem to process or get subtle nuances in body language, so I don't get the same feedback when talking to people that others get. Too much information coming at me at once, like a bottleneck.

Group conversations has always felt like watching TV to me - I feel kind of attached as if seperated by an invisible barrier. I know I'm not getting the same experience as they are getting.
 
One of the hallmarks of autism for most of us it seems.
I've never had close friends.
Didn't desire them as a child and only a few times as an adult.
Always that feeling of isolation and not being able to participate with others.
I have a pic for the way it feels for me.
shutterstock_79547737_man-in-bubble.jpg
 
I experience the same as you explain, shy of the blank.. I have sometimes experienced detachment or entirely zoned out into another aspect of the world.. I can’t garner much detail on it because I am usually quite absent when I do..

But more usually I always have too many conversations inside myself over what to say, what may be most relevant,
what is going on in this situation,
where is this going,
how do I feel about this,
are they actually wanting to talk further,
am I positioning myself properly to appear interested, crap my arms are folded and I’m directed away like I want to do something else, lean against something,

Another noise is interfering, cock your head to the side to strain some more audible detail and look at the bridge of their nose so they know they still have your focus, am I maintaining apparent interest or do I appear irritable, did i explain enough to show the connection in what I just said, wait did I say something wrong?

I still need to know what I said but seems asking what was wrong just made things worse, well now I’m going to have to rewind this two days later while I’m in the middle of doing something because the answer is right there In front of me but my selective memory feature inhibits any interpretations until 48hrs after any social award is achieved, but I didn’t unlo-
<Achievment unlocked: Duality - from disgruntled friend/co-worker, 50pts>
Ah, there it is. Now what was I doing?

Thing is, though I kinda perceive my actions as being robotic or designed in computer code and cold logic, I don’t feel I ever come off that way.

I definitely have anxieties but it doesn’t deter me from interacting, I do avoid group settings though, I haven’t found a way to be able to manage that much going on without having to be intoxicated and I don’t like being that way except for being more relaxed and less critical/inhibited, that only.

I can recognize and dismantle most anxieties but my problem is more with listening past that internal dialogue and thinking about what’s being actually said while I’m still talking about that internally, still defining my understanding of the conversation through compiling details to derive a larger picture that keeps going out of focus as more details are taken into account,

And then more apparently pointless conversation in between waiting for details and more internal dialogue distracting from each category discussed, having trouble commiting any information until I understand how to define it and losing track of everything until such point..

to me this is just one reason why I cannot manage much in unstructured or group settings because I wind up never having enough information to define and properly formulate opinion and so just wind up lost and spent, trying.

I as well have trouble processing in real-time. Unless I’ve experienced similar scenarios in past or planning, I need a bit of time between excerpts to analyze and refine my thoughts, often still changing before it leaves my lips.

That is, unless it’s something that I am already passionate about or intrigued by, then try to shut me up because even I have trouble trying.

I don’t know how that applies to various things but yes those social issues are some of many common characteristics of, as well as of others. Worth looking into, and labels or stereotypes aren’t what defines you, it may cause hinderance in some cases, help in others and hard to tell which is which because it never seems to be the same..

it’s just meant or supposed to help understand what’s going on, better. From what I gather, the human race would not be where we are today in innovation and adaptation without autistic genealogy,

I may be wrong but have read that it’s recognized as being responsible for majority of invention and creativity throughout history.

That’s not to say all were/are directly autistic, nearly everyone has some autistic traits as well as deficiencies but autistic individuals usually experience greater amounts or outside the normal range of, either in one way, the other or both and at varying degree’s. I hope i didn’t cannibalize representation of.

P.s. my apologies, I should state that I am as well currently awaiting diagnosis and should profess that this is occurring prior to even entertaining the possibility of ASD.
 

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