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Neurologist?

vergil96

Well-Known Member
V.I.P Member
How helpful do you think it would be to visit a neurologist regarding oversensitivities? I have migraines and I'm not sure if they don't contribute. My auras become more pronounced, patches of my skin go numb during some auras, it's worrying. There are the oversensitivities that make it painful to go anywhere at certain times. Maybe it's something different than migraines? I'm not a doctor, I don't know. I have done everything that could be done about migraines already. I had an MRI before due to aura (ear ringing), nothing showed up.
 
I don't think it would hurt 2, especially if it happens often and you're worried. If it's an option, I would advise going to see a neurologist who specializes in the type of migraines you have. They might see something the others missed.
Regardless I wish you the best of luck with them.🌸
 
This does sound like you have some kind of disruption in brain signals. Namely in the ones that run specific parts of your nervous system.

I would definitely suggest going to a neurologist who knows what this phenomenon is.
 
I would advise going to see a neurologist who specializes in the type of migraines you have.
^^This^^

My wife has been a migraine sufferer her entire life and is under the care of a neurologist who specializes in migraines. In fact, there's an entire group of them together in an outpatient clinic. They even have special patient rooms for those that can't get the migraine to "break" with their home meds and will do IV medications in the clinic. Call up, walk in on a moment's notice.

The migraine-associated tinnitus is common enough. My wife has it, as well.
 
I think it would be an excellent idea to get a complete neurological workup, blood test and DNA screening for neurological issues. I have had "silent" or vestibular migraine for over 15 years and have a lot of weird neurological symptoms when I get migraine attacks. I rarely get headaches, but get tachycardia, numbness in face, scalp, arm and leg on the left side; ataxia, slurred speech, cognitive problems, non-epileptic seizure, fatigue & other stroke like symptoms. I also have severe dizziness, nausea and problems with my left ear, like ear pain, swelling, tinnitus and intermittent hearing loss. The severity of these symptoms is reduced by taking a preventative medication for migraine (Nadolol) daily. But, it does not keep me from getting attacks, and I get triggered very easily. My migraine specialists over the years have said that some of these symptoms are not typical silent migraine, but they did not check me for other neurological problems because my MRIs were pretty normal and I seemed to be pretty functional on the Nadolol. So I just chalked it all up to the migraines, even though a lot of it was not typical and pretty scary. But, as I am getting older, the silent migraines seem to be getting triggered more frequently/ easily.

Then 3 years ago I started having problems with orthostatic hypotension on a daily basis. I was diagnosed with dysautonomia with a tilt table test. Because I have comorbidities that are due to autonomic nervous system problems like, IBS, silent acid reflux, migraine, neuropathy and mitral valve prolapse, I was given DNA and blood tests to determine if I had a neurological disease causing the dysautonomia. I found out that I have mild Fabry disease, which could be the reason for the dysautonomia, and the ear problems....maybe not, the dysautonomia could be independent. Some symptoms are similar. I have also noticed that when I am having flare ups of the dysautonomia, I get more silent migraine symptoms and headaches as well, either at the same time or the day after. This has made me wonder if some of the symptoms that I have been attributing to the migraines are really just from the dysautonomia. It is hard to untangle.

My point is that there could be more than one thing going on with you neurologically, and that could explain some of your weird symptoms. If you do have another neurological issue, it could be triggering your migraines, and vice versa. Also, some treatments used for other neurological issues could possibly help the migraines as well. For example: the Nadolol that I have been taking for the migraines is also helpful for the dysautonomia. Good luck!
 
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I've been in a similar boat, and I wish you well.

Seeing a headache specialist for migraine is key, as well as finding a benign way (benign to you, not worse for side effects) to prevent attacks. What has helped me all falls pretty much into lifestyle - food, removal of things toxic to me, sleep, my Goldilocks environment, heavy stress reduction, withdrawal from toxic people and topics, and navigating any hormones, including serotonin/melatonin - rather than any Rx drug-based prevention. If you have no tests such as MRI, EEG, or bloodwork, that is a decent start to determine a baseline and possibly find dormant viruses. I see you got most of this done.

For migraine attacks that I cannot prevent, I use triptan/ondansetron. I went from attacks every 3 days to 6 per year, and thanks to the prodrome (ability to smell much smaller amounts of substances, etc., and yes, I feel bad for dogs), I can take one pill each and never get those nasty headaches anymore.

Please don't assume a neurologist will understand autism for what it is, nor stay at least neutral and admit to not knowing when they are clueless. I have seen double-boarded neurologists/psychiatrists who could not for the life of them see that I was clearly autistic, and they ended up damaging me further and wasting precious time during which I could have tended to my well-being in other ways. If you do disclose, many typical physicians will start subconsciously mistreating you, regardless of what you said and what they thought and tested before your disclosure.

Overall, I feel my well-being is based on my trial and error. Having a doctorate and other advanced degrees and being accurate and specific in my language has helped me to assemble physicians who trust my self-knowledge, respect my conclusions, even learn (!), and take on a supportive consulting role, so long as it is within their professional ethics and oath. I had my worst-ever burnout around the time of diagnosis and lost a lot of NT life features at that time. It took me over a year to admit to myself that I CANNOT live a masked, pseudo-neurotypical life anymore unless I am okay with burning out again, possibly for longer and worse, and losing what high-level skills I have. That is, trying to get rid of pain and symptoms but abusing your neurology in other ways by way of physicians who don't know enough not to be harmful will likely not work.

Lastly, I noticed you use the term "oversensitivities". Hm. There is no such thing. You are more sensitive than allistics, and hyposensitive autistics. You would not call a healthy dog oversensitive regarding their ability to smell stuff. Or a raccoon that does a lot through touch. You are normal for who you are.
 
I see a neurologist and am diagnosed autism and have moderate tested needs for sensory. It seems it times it might go higher as well.

Leaving for this for sometime I think it may come down to them not accepting you unless you can feel pain.
I could be totally off base but those are just my thoughts.

I wil say now I see a neurologist at Imperial under their neurology department. Now on their website they see certain conditions do you see justifing any of these conditions Perhaps another hospital may see different people. Now I have diagnosed with a moving part disorder and perhaps I even wrong about the pain.

  • stroke/transient ischaemic attack (TIA)
  • multiple sclerosis (MS)
  • movement disorders including Parkinson’s disease
  • epilepsy, including complex epilepsy
  • cognition and memory including dementia and Alzheimer's disease
  • acquired brain injury
  • headache/migraine
  • neuromuscular disease
  • peripheral nerve disease
  • neurogenetics
  • neuro-infection
  • neuro-ophthalmology
  • neuro-otology
  • neuro-oncology
  • neuro-rehab
This is the link to their website and I even think I may discharged soon by what they have writen and said to me.
Neurology
 
Ok morning time where I live and stared at the list and seen that headache/migraine is under my team. A possibility.....how long what can they do perhaps offer medications bloods but a GP can be switched back to soon if it to do that. Did you have a MRI scan of the head? How long describe. Any pressing pain? That is how I think of when something affects my head and more.
 
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