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Not disabled enough - yet not quite able enough.
- Thread starter MROSS
- Start date
Do you think it might be more helpful to discuss what services are appropriate for adults with low support needs?
Are you looking to introduce more support into your life?
MROSS
Well-Known Member
For further details, an 'Autism Forums' discussion-thread, (LINK) 'Best Practices for Services Geared Towards Adults With Low Support Needs - Best Practices Almost "Unheard Of." may be helpful.
LINK: Best practices for services geared towards adults with low support needs - best practices almost "unheard of."
LINK: Best practices for services geared towards adults with low support needs - best practices almost "unheard of."
I tried applying for services with the Office for People With Developmental Disabilities (the local agency in my city), and they said I wasn’t eligible. I’m told these days they’ll only accept those who have lots of trouble, and apparently I’m too “high functioning.” Now I get services from paid programs.
Ultimately resources are finite and often, when funding is limited, service providers will have to establish cut-offs for who they can provide supports to.
This also means that someone who might not receive services in one jurisdiction could receive benefits in another jurisdiction.
As for what happens to those who need supports but don't qualify for (fully or partially) funded services, quite often UT means the burden is shifted to their families, along with friends and neighbours who are willing to help, or that they simply go without supports.
This also means that someone who might not receive services in one jurisdiction could receive benefits in another jurisdiction.
As for what happens to those who need supports but don't qualify for (fully or partially) funded services, quite often UT means the burden is shifted to their families, along with friends and neighbours who are willing to help, or that they simply go without supports.
Maybe, but could be different. Have to wait to see if I am accepted yet.
I live in France and here, they say that to be acknowledged as disabled, you must be at least 70% incapable and it says that includes those who cannot function as a "normal" person, in every day situations.
You also have to not have worked for at least a year before applying. Well, I have been here for nearly 21 years, and only did a few change overs ( gites) with my husband at the beginning, therefore, not worked for at least 18 years. I was also diagnosed with ASD here and did try to apply just before covid hit, but perhaps due to that and well, a rather foolish psychiatrist I was seeing, no further developements.
One can have ASD and hold down a full time job. Drive and basically get by in life. However, if unable to do those things, it means that there are other things besides, or the ASD is severe enough to stop one working and basically functioning well in life.
I also have severe agoraphobia, where I literally cannot go out on my own to do things. So, that alone, ought to qualify me to be registered as disabled, but coupled with ASD level 2, seems a strong case for me.
One has to be clever with the government. So, to this, I often say to my husband that he should look at the list of critera for applying and see if any could apply to him? Of course, he doesn't. I also said it to a friend, who now cannot work, due to arthartis in her back ( probably weight related). She tried to apply and was turned down. There was one time, she did return to work for a day and even her boss said that they were shocked to see her there and I believe this went against her case.
I should receive an answer June/July next year. As I was told that it takes a year. It will either be back dated a year, or at the point I tried to get registered in late 2019.
I live in France and here, they say that to be acknowledged as disabled, you must be at least 70% incapable and it says that includes those who cannot function as a "normal" person, in every day situations.
You also have to not have worked for at least a year before applying. Well, I have been here for nearly 21 years, and only did a few change overs ( gites) with my husband at the beginning, therefore, not worked for at least 18 years. I was also diagnosed with ASD here and did try to apply just before covid hit, but perhaps due to that and well, a rather foolish psychiatrist I was seeing, no further developements.
One can have ASD and hold down a full time job. Drive and basically get by in life. However, if unable to do those things, it means that there are other things besides, or the ASD is severe enough to stop one working and basically functioning well in life.
I also have severe agoraphobia, where I literally cannot go out on my own to do things. So, that alone, ought to qualify me to be registered as disabled, but coupled with ASD level 2, seems a strong case for me.
One has to be clever with the government. So, to this, I often say to my husband that he should look at the list of critera for applying and see if any could apply to him? Of course, he doesn't. I also said it to a friend, who now cannot work, due to arthartis in her back ( probably weight related). She tried to apply and was turned down. There was one time, she did return to work for a day and even her boss said that they were shocked to see her there and I believe this went against her case.
I should receive an answer June/July next year. As I was told that it takes a year. It will either be back dated a year, or at the point I tried to get registered in late 2019.
MROSS
Well-Known Member
Anybody seriously considering "giving up' with state govt. supported services for the developmentally disabled, and hiring private services (no, this is not just for the wealthy)?
Personally, I'm able to budget to hire a private service (a fiduciary might "fit the bill") to provide consultation services.
Services will usually be necessary once annually - services to augment support from trusted relatives, and family friends.
A private service (such as a fiduciary) might be able to offer face-to-face thrid party services to assist clients in those rare, challenging consumer issues: Issues such as the purchase of motor vehicles, and even assisting clients with bank issues - as is discussed in the 'Autism Forums' thread: Paying bills
In short, private services to ahndle those agendas that developmental services have failed to understand!
Personally, I'm able to budget to hire a private service (a fiduciary might "fit the bill") to provide consultation services.
Services will usually be necessary once annually - services to augment support from trusted relatives, and family friends.
A private service (such as a fiduciary) might be able to offer face-to-face thrid party services to assist clients in those rare, challenging consumer issues: Issues such as the purchase of motor vehicles, and even assisting clients with bank issues - as is discussed in the 'Autism Forums' thread: Paying bills
In short, private services to ahndle those agendas that developmental services have failed to understand!
MROSS
Well-Known Member
To expand: It's possible to budget (or earmark) for private services to handle those agendas that developmental services are unable to provide.
For example, let's reassess the term 'services' - trusted private services offering consumer/financial related advice, guidance, etc. are best treated like consultations - the delivery of services appropriate for adults on the Autism Spectrum who have low-support needs, and least restrictions to independence.
The 'services' for developmentally disabled adults with high-support needs are 'services' often treated as 'help' and 'assistance' - the furthest things from regular professsional serivces consulation practices.
high-support needs
Many 'service staff' for high support needs clients are low-paid, and have very little experience e.g., some staff are interns. Often, staff who themselves seem to be struggling with personal economic life concerns, staff who are disabled themselves, and sometimes both.
In short, staff who are only qualified to handle the routine supports tasks face-to face with special needs adults - those very routine tasks in which staff can readily "stamp their forms.' I sensed staff couldn't be trusted to handle those consumer/financial services - I even mentioned to staff that "it raised a red-flag" to be asked about specific details about personal finances.
In short, the notions that private, trusted professional services are only for the wealthy is a self fulfilling prohecy of sorts that unnecessarily makes it harder to find trusted professional advisors - a self defeatist propehcy that must stop!
For example, let's reassess the term 'services' - trusted private services offering consumer/financial related advice, guidance, etc. are best treated like consultations - the delivery of services appropriate for adults on the Autism Spectrum who have low-support needs, and least restrictions to independence.
The 'services' for developmentally disabled adults with high-support needs are 'services' often treated as 'help' and 'assistance' - the furthest things from regular professsional serivces consulation practices.
high-support needs
Many 'service staff' for high support needs clients are low-paid, and have very little experience e.g., some staff are interns. Often, staff who themselves seem to be struggling with personal economic life concerns, staff who are disabled themselves, and sometimes both.
In short, staff who are only qualified to handle the routine supports tasks face-to face with special needs adults - those very routine tasks in which staff can readily "stamp their forms.' I sensed staff couldn't be trusted to handle those consumer/financial services - I even mentioned to staff that "it raised a red-flag" to be asked about specific details about personal finances.
In short, the notions that private, trusted professional services are only for the wealthy is a self fulfilling prohecy of sorts that unnecessarily makes it harder to find trusted professional advisors - a self defeatist propehcy that must stop!
MROSS
Well-Known Member
CORRECTION: The paragraph, 'The 'services' for developmentally disabled adults with high-support needs are 'services' often treated as 'help' and 'assistance' - the furthest things from regular professsional services consulation practices.' is a paragraph that is "to the point."
** The term 'high-support needs' is irrelevent, and does not apply to the context of the above paragraph. **
About support, in my country there is none, except if you are disabled you get some support money.
MROSS
Well-Known Member
Any feedback regarding resources in California?
Follow-up to above thread begins as, 'To expand: It's possible to budget (or earmark) for private services to handle those agendas that developmental services are unable to provide.'
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