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Opinions on the new diagnostic criteria in the DSM-V?

aatherto

Well-Known Member
Hey everyone! My name is Austin. I am a senior Psychology student at the University of Notre Dame. I am in a class specifically about the changing DSM - V diagnostic criteria for Asperger's Syndrome and Autism Spectrum disorders. We have talked and researched a lot on how the Aspie community has responded to the changing criteria (both positive and negative). But we haven't really looked into how people who dont have Asperger's but still are affected by the change. I am really interested in hearing some opinions from people who have a diagnosis of Autism or PDD and how they view the change in criteria. I have a lot of questions so if you are at all interested in helping me understand more about this interesting change and your opinion please pm me know!

But just to ask a definite question in this post, specifically to anyone who has a Autism or PDD diagnosis (though everyone is welcome!), how do you feel about the absorption of Asperger's into the Autism Spectrum Disorders? Do you think it is a good move or do you feel it should be a separate diagnosis?
 
Hey everyone! My name is Austin. I am a senior Psychology student at the University of Notre Dame. I am in a class specifically about the changing DSM - V diagnostic criteria for Asperger's Syndrome and Autism Spectrum disorders. We have talked and researched a lot on how the Aspie community has responded to the changing criteria (both positive and negative). But we haven't really looked into how people who dont have Asperger's but still are affected by the change. I am really interested in hearing some opinions from people who have a diagnosis of Autism or PDD and how they view the change in criteria. I have a lot of questions so if you are at all interested in helping me understand more about this interesting change and your opinion please pm me know!

But just to ask a definite question in this post, specifically to anyone who has a Autism or PDD diagnosis (though everyone is welcome!), how do you feel about the absorption of Asperger's into the Autism Spectrum Disorders? Do you think it is a good move or do you feel it should be a separate diagnosis?

I think aspergers should be a distinct diagnosis for sure and that Hans Asperger was pretty spot on. I think aspergers is a pretty serious and complex issue. I remain undecided as to what really makes aspergers tick because, on the one hand, aspergers people have unique attributes but, on the other hand, we struggle so much to relate to the normal environment, be accepted or even form stable relationships in some cases. The big danger is dismissing aspergers as a less serious form of autism and reducing it to a simple personality trait, when in actual fact aspies may experience serious stress as a result of the complexities of the condition.
It has helped me enormously to understand I have aspergers and not just autism. When I discovered aspergers, I could systematically identify each particular characteristic and had a framework to fit into. That has been a God send to make sens of years of ongoing difficulties and often isolation.
I don't think removing the term aspergers would make any difference now as I think the aspie community will continue to teach about aspergers and offer help to newcomers who discover they have the same traits Hans Aspergers diagnosed decades ago.
Hope this helps and good luck with your research.
 
Hi aatherto.

As for the new DSM to e released in Spring, I see some improvements & in other areas, I wonder about the judgement of the contributors. First off, getting rid of all those N.O.S. categories is wise since it never really described anything whatsoever in the 1st place. There were so many of them! How they made it into the IV tr is a mystery.

Deleting Asperger's as a diagnosis is absurd. Anyone who has it will tell you the same thing. We now get all lumped together with everyone else on the ever widening Autism Spectrum. We Aspies may be similar to Auties but we aren't the same. Many conditions share some similar traits: it doesn't make them the same.
 
I do not yet have an official diagnosis, but I agree with Soup's statement above. Now I am not so sure I want to pursue a diagnosis, since I'm not sure the psychiatric community has their head on straight. Waiting to see what happens...while wishing Hans Asperger's voice could ring out now above the din.
 
I am currently trying to pursue a dignosis myself. I know i've learned more about myself from the definition of Asperger's and the good folks here in this community than i have in my entire 37 years of living.

I know that the bullying that i've been dealing with my entire life is not because i'm a victim. I've got traits that normal people find submissive.

I know that the emotionless expression on my face doesn't mean i have few feelings. I have them, i just don't bother putting them on my face.

I know why i tell the truth all the time. I know why i rock back and forth, i know my OCD is related to this somehow, and somehow i want to put a name to this. I want to have the Americans with Disabilities Act protect me when i get told i have to go back to face to face interactions or telephone calls with customers, which i cannot handle....

Mostly, i want the diagnosis for myself.

First things first, second things second. Depression fixed, then diagnosis.

-p
 
Hi aatherto.

As for the new DSM to e released in Spring, I see some improvements & in other areas, I wonder about the judgement of the contributors. First off, getting rid of all those N.O.S. categories is wise since it never really described anything whatsoever in the 1st place. There were so many of them! How they made it into the IV tr is a mystery.

Deleting Asperger's as a diagnosis is absurd. Anyone who has it will tell you the same thing. We now get all lumped together with everyone else on the ever widening Autism Spectrum. We Aspies may be similar to Auties but we aren't the same. Many conditions share some similar traits: it doesn't make them the same.

I agree. I am not happy about the change at all. After all these years of depression and struggle, I finally got a diagnosis that fits. I feel like Aspergers helps establish my identify and to take it away just doesn't seem right. They may change the categories but I am not giving up my identity.
 
@ Holly: Too ad Hans Asperger has ascended to that big nuthouse in the sky (probably right next to Freud, Jung & all the other fruit loops who spent too much time analyzing off-kilter folks...)

I'd like to see Asperger's categorized as an entirely different specrum in its own right. Anyone who has spent time around (if it is even possible!) real Aspies knows that we are a ...condition...unto ourselves. Many if not most of us are unusually intelligent or at the very least average. We do tend to stim like Auties do BUT look at humans in general. NTs stim all the time! Tapping their feet, twiddling their thumbs, bouncing the eraser of their pencils up & down...We tend to have developed many strategies for disguising ourselves a la NT when we must BUT like Cinderella's get-up, it comes with an abrupt expiry date before we revert to Aspiedom.

We Aspie women tend to blend in more simply because female fashions are so diverse & permissive that you'd really have to look completely bizarre before we'd stand out (unless you live in a small conservative 'everyone looks alike' type town). Our voices & experiences are grossly under-represented in the Spectrum discourse. Now that we're about to be lumped in with all Auties, we'll be further undermined.

Another thing that I see here, the venerated compilers of the DSM 5, in having eliminated all those absurd NOS diagnoses remind me of the short-sighted Catholic church in their eliminating of LIMBO (NOT the dance, but I wouldn't miss that either). Used to be, they intoned, that unbaptized babies who die go directly to Limbo (do not pass go, do not collect $200). Okay....now that there's no Limbo, where are they? Do they get sent to Purgatory? No can do: they hadn't had the chance to commit a bunch of sins that they must do penance for & earn karma points. Hmmm...do they vanish? Get fast-tracked to heaven or what?

THink of all the PDD NOS people who will now abruptly cease to exist (in diagnostic terms). Where do they go: do they get crammed in with Auties? Are they no longer certifiable but merely weird? What about all us Aspies? The new 'criteria' will push some of us out of the 'diagnostic circle' because we aren't that far gone. Some of us do well in some areas but score really poorly in others. Depending upon how the individual practitioner 'weights' the categories or how he perceives the patient, they won't get the diagnosis.

Seems like the DSM's compilers are working quietly in conclave with big pharma to add & broaden 'conditions' for which readily available medications can conveniently be prescribed. Soon, with the new DSM, a person in mourning of the loss of a loved one will be certifiable IF s/he remains in that state for the amount of time the DSM states & if their mourning 'symptoms' meet those described. What the hell are they doing?!? Someone who loses a child SHOULD be devastated & inconsolable: they aren't sick & don't need to be chemically 'rescued' from their emotions! The diagnostic age for Asperger's used to be 11 or so. Now, with us being lumped in with Auties, shrinks will be diagnosing infants (like tantrum throwing, anti-social, narcissistic 2 yr olds) with a treatable medical condition when all they have is a bad case of normal. Since there are no known medications for Asperger's, now that we're all Auties, they'll be plunking us full of chemical concoctions. I don't think we Aspies sick: just wired differently like left handed people & gay people (now, if you're a gay left handed Aspie, you've got really really nifty wiring indeed!).

Most of the 'co morbid' issues many of us have are due to having to force ourselves, like square pegs into round holes, to constantly cope & adapt to cultures & societies designed by others for others. We have different operating systems & the NT world just does not compute for us.

 
Should we be trying to get our diagnosis before the change so we get grandfathered in as autistic, just in case we don't quite fit the diagnosis
 
Should we be trying to get our diagnosis before the change so we get grandfathered in as autistic, just in case we don't quite fit the diagnosis

That's kind of what i was thinking too Pella. Should we be worried if we don't have a diagnosis at this point?
 
I don't have an official diagnosis either. Part of why I chose not to get one is that, in my profession, the effect of being labelled, in the eyes of NT society as a 'retard'or as someone who is potentially dangerous (because of Autistic people's reputation for loud meltdowns & head banging) would be ruinous. I'm in QC: it is different to being in Canada, the USA or Australia. We do have some excellent resources for Auties/Aspies- BUT you'd be expected to remain within the stifling & often severely disabled world of defined by their (the system's) parameters. I'm not prepared to consign myself to chronic poverty & dependency on others for my & my husband's support. We Aspies are too intelligent & capable for that.

Once the new DSM & its confounding vagaries gets published & 'experts' attempt to put it into practice, it won't be long before the ensuing chaos forces them to reverse many of their decisions & run around in circles to conjure up the DSM 5 Revised Edition! The same happened to them before with the DSM IV. The vague wording forced them to pen the DSM IV tr <--- text revision! All those scholars couldn't render themselves clearly understandable to each other! (cue the circus music here).
 

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