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Posting anxiety...partially diagnosed 44 yr old woman

Hi! I usually avoid social media and online interaction (except Pinterest, the refuge for the socially awkward obsessives) because apparently I am doing it wrong. I hate this part (introductions and initiating relationships) but am hoping I have at long last found my "tribe."

I was dx with "something like hyperactivity" as a child, treated with special diets and a really bad school psychologist. My sibs were both pretty severely DD, so since I was very smart, my bizarre behaviors were chalked up to stress and anxiety. I do have bipolar as well, but ASD explains so much that has puzzled shrinks. I also have a potentially life limiting very severe GI disorder.

I was informally diagnosed with a communication processing disorder by a former boss who was an audiologist with a developmental focus. The diagnosis was solid, but we never finished the more specific testing and our agency wasn't funded for adults, so it is not in my medical record. Most of my life, though, I have been described as "kinda retarded, but super smart. And she's hilarious when she isn't freaking out." Not my favorite description, but I try to really focus on other's perceptions.

Ack, I am rambling...I am working on an official diagnosis...luckily my past work with folks with disabilities brought me in contact with the right people and the kids' agency is going to help me find resources and fight with Voc Rehab (VR won't serve me because they know me and I was very successful in my professional work with them and worked really, really, really hard to socialize right there... so now they think I am just a hypochondriac).

I desperately need help improving my social skills. I read and read stuff for Aspies but it's soooooo hard to remember everything... between controlling my face, remembering back & forth, trying to find the other person's interests (apparently lots of people don't have them or they consider reality tv, facebook, and top 40 music actual interests...when i mean comparative religion, ethnobotany, evolutionary biology, feminist theory, good stuff like that). I love the people in my life, but we frustrate each other. And I still don't understand why people can be completely illogical and unable to correctly do their jobs, but it's okay if they are nice ??? It just doesn't make sense...honestly, I am not sure NTs are suited to a technological future where science and accuracy are essential.

Ok, if anyone has any suggestions, websites, etc., I would really appreciate the guidance. I have a feeling the diagnostic process will be long and aggravating, but after a recent dangerous meltdown and elopement incident (i am 44 and i literally ran away from a party at midnight and walked 5 miles home, much of it on the highway. Amazingly i was not arrested or assaulted but i am in danger of hurting myself), i know i have to get help.

I would normally go back and correct, edit and sanitize this, but I am hoping it's ok to relax a bit here.

Heather
 
Welcome Heather! :)
I'm sure you'll find a lot of interesting info around the forum (there's a section with recommended books in case you want to have a look, but I bet you had read a lot of those).
I don't really know of many websites, all I came to know about Asperger was through reading, talking with diagnosed people and reading this forum's threads as well.
I can tell you that I have looked around quite a lot and haven't found a better place than this in order to know about the syndrome.

In any case, if you find it difficult to socialise I think the best option is to put all you can remember from the things you've read into practice (it will help you memorise that info). As far as I'm concerned AS try to mimic NTs' behaviours in order to improve their social skills.
And don't worry about making mistakes: NTs, AS... doesn't mind. We all make mistakes the important thing is to learn from them. So, for instance if you say something that seems to offend people ask them why and try to understand their reaction. It will take time but it's not impossible.

I hope your diagnose doesn't take too long.
See you around!
 
Welcome aboard! :)
I hope you enjoy the site. I come here to practice my social and conversational skills. It is tiresome working on these things in the real world, and I find comfort and friendliness here, to help refine my communication. I also have processing difficulties. Best wishes
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Thank you! I just got home from work...was overwhelmed so badly today I couldn't think at all. Trying to decompress....finding my hand running all over my head and face, while I try to moan and hum quietly...does anyone else do that? Is that stimming? I only flap in severe distress, few people ever see that. I also pull my own hair when melting down, but it doesn't hurt...it actually helps (pulling a large section held close to the head is usually pleasant).
 
Oh, lol, I just realized I flap happy too. I love going to Deaf events (i am not Deaf) because I love deaf clapping (hands up, flapping away) and I hate hate hate Hearing clapping. It hurts and it's too noisy. When i am really happy, I literally tremble with excitement. (I am realizing how many times I have shared good news with my hands just flapping away,..
 
No complaints on less then perfect English here!:D Spelling baffles me the most, and it is sooooo slow to have to look up words, and frustrating cause its the same words as last time. So I just throw up a bunch of vaguely close letters and hope for the best.

I hope the diagnosis and knowledge helps put all the pieces together for you. I think it does help knowing where some of the confusion is generated, and why, in our minds.
 

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