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Quick question about my AS status on here

umbrellabeach

Well-Known Member
I put my AS status as Self-Diagnosed because I wasn't diagnosed by a professional or a doctor of some sort - but it wasn't I who diagnosed me; it was my mom. Does that technically count as a self-diagnosis since it was done from home by a close family member, or should I change to Officially Diagnosed since it wasn't actually me?
 
Self diagnosed is probably still the most appropriate choice, I think we should reserve 'officially diagnosed' for situations where someone has been diagnosed by someone qualified in that particular field to do so...
 
I have to respectfully disagree with the content (but not necessarily the conclusion) of your post, Chris. I say this for several reasons:

1. We do not know her mother's profession. Perhaps her mother is a psychologist, psychiatrist, or speech-language pathologist. Then her mother would be perfectly qualified to make a diagnosis. Who knows our new friend Anne better than those she lives with? Perhaps her mother is a special education teacher, or otherwise works with children who have autism spectrum disorders quite freqently. Then I would say her mother also would know enough about Asperger syndrome and about her daughter as a person to make that judgement.

2. Even when diagnosed by a professional, the tests are very subjective. For children, actually, the process tends to involve simply observation and having the parents answer a questionnaire. Asperger's (and autism) are not hard-and-fast diagnoses, and the label that is put upon you tends to reflect the experience of the professional who is doing the labeling. People tend to have a bias towards their own hypotheses. One professional might diagnose someone with Asperger's, while another professional, while looking at the same individual, and the same set of evidence (behavior, self-report, family-report), might choose the label of borderline personality disorder, based on having more experience with that and having the symptoms often look fairly similar.

3. Along the lines of bias, a person also has a tendency to put forward the symptoms of what they believe they have and "conveniently" (but not always intentionally) forget other symptoms. For example, if you actually had asperger syndrome, but were seeing a psychologist because you were feeling depressed, and you did not previously have a lablel, you would probably talk about the times when your emotions were low, when you couldn't re-regulate to feeling okay again, what makes you upset, how long you are sad. You might forget to mention that you have sensory issues--that loud noises hurt your ears, that you only eat certain textured foods, etc. This is quite feasible with adolescents with asperger syndrome, as it is often not diagnosed until mid-teens, often when something is going wrong (and they are becoming depressed or anxious--this happens quite frequently in teens with asperger's).

4. The attitude reflected in what you have said seems to hold the label of Asperger syndrome as something of a status symbol. I don't know if this is intentional or not, but that is the underlying message that I get from reading it. In actuality, the purpose of having any sort of label is to receive the services you need in order to live a fulfilling life, whatever that may be: occupational therapy, social skills counseling, psychological/psychiatric therapy (yes, there is a stigma there, but many/most people with and without AS could really benefit from this), disabilities services, etc, etc.

Based on what I have said, I would say that Anne should list her status as whatever she feels closest to what actually describes her. I assume this is why you included the "unsure" option in that mix. Only Anne can really decide how she wants to portray herself, both on this site and in real life. There are advantages and disadvantages to having a label; on this site, one of the advantages seems to be that it is a status symbol, and that some may take you "more seriously"--When I post on this forum, I often wonder if I will be taken seriously, or if people will ask "what does she know, she doesn't REALLY have AS," even when I have indeed have a doctor say that I do (but then I chose not to go for the full eval because I did not think that I wanted any of the services that would be offered, or possibly forced upon me).
 
No, my mom isn't a psychologist or anything like that. She's a stay-at-home mom and pastor's wife. She's homeschooled me and all my siblings, worked in the nursery at church and is sometimes a substitute Sunday school teacher, but other than that she doesn't really work with kids.
I don't mean for it to sound like a status symbol. I just see AS as what it is; a disorder that gives me obsessions and impairs my social skills, etc. I've actually felt inferior to others all my life because I never seem to fit in. I'm sorry it came across to you that way; it wasn't intentional. I'm just wondering if it counts as self- or not.
 
No, my mom isn't a psychologist or anything like that. She's a stay-at-home mom and pastor's wife. She's homeschooled me and all my siblings, worked in the nursery at church and is sometimes a substitute Sunday school teacher, but other than that she doesn't really work with kids.
I don't mean for it to sound like a status symbol. I just see AS as what it is; a disorder that gives me obsessions and impairs my social skills, etc. I've actually felt inferior to others all my life because I never seem to fit in. I'm sorry it came across to you that way; it wasn't intentional. I'm just wondering if it counts as self- or not.


Oh, Anne, I'm sorry, I should have quoted Chris's comment to make it clear that I was responding to him. What you did--to ask and request a clear, specific answer is actually quite typical of one with AS--things just are so much nicer when there's a clear-cut answer. And what Chris did, as well, was charactaristic, in replying with a nice, clear-cut response. If I were asking for information or giving it, I would probably do so in the same way.

In short, I was responding to Chris's answer that "officially diagnosed" should be "reserved" for people who have gotten their diagnoses from a professional, when really, even by a professional, the diagnoses may differ (I have examples for you if you are interested), and all the "offical diagnoses" really means is that you are eligible for services and may or may not be stigmatized by people who know about your dignosis (hence my reluctance to receive a full evaluation--I'm doing ok without special services, and I don't want to risk the stigma, particularly in my chosen field). In bringing up your mother's profession, I was simply stating that Chris and I didn't know if she was "qualified" to give that diagnoses. I did not mean to make you feel affronted in any way, I only meant to communicate to you that it's really up to your choosing how you portray yourself anywhere on the internet. That's one of the benefits; you can be who you want to be. If you feel that your mother's diagnosis was pretty official, I see no reason why you should be kept from putting your AS status that way. It seems you're in a situation where you're sort of "in between the lines" and that's a bit uncomfortable, but then it also gives you the leeway to express and portray yourself however you want.

Does that make sense? or am I just making it worse? I'm really sorry for making you feel like my (rather long and argumentative--that's an issue of mine) response was directed at you.
 
No, it's okay! =) Yes, I love clear-cut responses. I can't stand vague ones that leave me guessing and not really knowing what's going on. Sometimes I have to repeatedly ask questions to get the information I want... and sometimes, as a result, annoy the person I'm asking. XD I also am doing okay without special services. I live in a place where the people are very social and I've had to go to a lot of social events and be interactive, and through that I learned the basics of functioning in society even before I was diagnosed. It's better for me now, that and the fact that I'm older so I have a bit more freedom to do my own thing and don't have people all on my back so often. [/life story] Anyway, I do think it could be considered definite and official, especially considering the fact that while researching AS on the Internet after my mom told me, I was surprised to see how many signs of it fit me. I guess I'll think about it and decide for myself what to set my status as. :)
 
No, it's okay! =) Yes, I love clear-cut responses. I can't stand vague ones that leave me guessing and not really knowing what's going on. Sometimes I have to repeatedly ask questions to get the information I want... and sometimes, as a result, annoy the person I'm asking. XD I also am doing okay without special services. I live in a place where the people are very social and I've had to go to a lot of social events and be interactive, and through that I learned the basics of functioning in society even before I was diagnosed. It's better for me now, that and the fact that I'm older so I have a bit more freedom to do my own thing and don't have people all on my back so often. [/life story] Anyway, I do think it could be considered definite and official, especially considering the fact that while researching AS on the Internet after my mom told me, I was surprised to see how many signs of it fit me. I guess I'll think about it and decide for myself what to set my status as. :)

So judging by your status thing I guess you haven't gotten an official diagnosis yet :). Do the others around you know what you are going through besides your immediate family?

-sean-
 

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