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Self-diagnosed and Telling Others

Skylark

Active Member
I'm increasingly convinced that I'm an Aspie. I've suggested the idea to my hubby and he was unsure. I told my parents today that I'm fairly convinced. My Dad said "Oh no!" and my Mum said "But you're so bright!" I did explain that my intelligence could be part of it.

How do you deal with telling others if you don't have an 'official' diagnosis?
 
I have an official diagnosis and people still don't believe me.
Problem is that self-diagnosis is often shunned upon because it's easy to give yourself symptoms, the old example of googling a cough and ending up diagnosing yourself with SARS or something.

What I did was find some online test, can't think of he name but it had like 50 questions and gives you a score of how autistic you might be.

I made it and made my parents do it as well, then compared scores and answers. That way I had something tangible to talk about the symptoms and such without rambling on in the distance with no "proof".

If you don't know what test I'm talking about and want me to link it or something, feel free to ask.

You can also discuss the main symptoms with them. If they have no idea what aspergers is they might look at it as the stereotypical "rain man" sort of person.
And even I they don't believe you, don't worry too much about it, if they accept you for who you are, that's the most important thing I believe.
 
It is VERY HARD work!

Because aspergers is not widely known, most people either have very narrow minded view on what it is and others, have not heard of it at all and when we stumble in explaining what it is, generally get: oh but every one gets that and I feel that way sometimes!

I honestly do wonder if it is better to keep quiet sometimes, but such a catch twenty two because aspie traits come out in certain situations more than others and I want to say: I am like this because I have aspergers.

I do admit, I have two females in my life who both agree without question that I am an aspie and they are pretty good and one does actually help to put me at ease, if she sees me struggling.

Have a fairly huge gathering to attend sunday afternoon and both looking really forward to it, because I like most who are there, but also petrified and want to make an excuse to not go. I actually see me rooted to a seat all evening and not even being able to get up and get food, which sends me into a panic before I even get there!
 
How do you deal with telling others if you don't have an 'official' diagnosis?

I showed my husband this: http://www.help4aspergers.com/pb/wp_a58d4f6a/wp_a58d4f6a.html

Table 1 List of female asperger's traits.

I asked my husband to read it, he's an officially diagnosed aspie, but not familar with female traits. He disagreed with quite a few of the points. I pointed out that almost all the traits that apply, then gave examples, when I finished he understood.

After I read this, I was convinced. It read like the story of my life:

https://taniaannmarshall.wordpress....sperwomen-adult-women-with-asperger-syndrome/

I've also taken many online tests which indicate that I'm on the ASD spectrum.

I've not told many people, most are not familiar with ASD.
 
Thanks Mia, I've read those too and keep reading them, more convinced every time. I think I need an official diagnosis for others to really believe me, though. (Could that be black and white thinking?!)
 
ur parents don't seem to even know what aspergers/autism is, especially with your mom's reaction. You should make them go trough a boring lesson of what autism is so they actually know what you're talking about.

Also, you should do online test, and if you come out positive go see a psy to find out 4 realz.
 
My parents are in their late 60's and I think my Mum shows traits herself. I've done several online tests, enough to convince myself but since I'm going through another diagnostic process at the moment, it will have to wait. I'm overwhelmed and need clarity.
I'm only just learning about autism myself and find it hard to explain my situation to others. Yes, an official diagnosis would really help.
 
My parents are in their late 60's and I think my Mum shows traits herself. I've done several online tests, enough to convince myself but since I'm going through another diagnostic process at the moment, it will have to wait. I'm overwhelmed and need clarity.
I'm only just learning about autism myself and find it hard to explain my situation to others. Yes, an official diagnosis would really help.
 
I'm increasingly convinced that I'm an Aspie. I've suggested the idea to my hubby and he was unsure. I told my parents today that I'm fairly convinced. My Dad said "Oh no!" and my Mum said "But you're so bright!" I did explain that my intelligence could be part of it.

How do you deal with telling others if you don't have an 'official' diagnosis?


"Need-to-know" basis only. While it can be an amazing revelation for us, for others not so much. Be careful.
 
OK, thankyou Judge. I find it hard not to blurt out information about myself though, sometimes I say things and afterwards wonder if it was inappropriately personal information. I'm just so open and honest about myself and feel a great urge to share my experience with others, intending it to be helpful.
 
OK, thankyou Judge. I find it hard not to blurt out information about myself though, sometimes I say things and afterwards wonder if it was inappropriately personal information. I'm just so open and honest about myself and feel a great urge to share my experience with others, intending it to be helpful.


It's just that no matter with whom you share this, you can't guarantee positive responses. No matter how close you may think you are to someone. I've learned this the hard way a few times...but enough for me to be far more guarded about it than I really want.
 
OK, thankyou Judge. I find it hard not to blurt out information about myself though, sometimes I say things and afterwards wonder if it was inappropriately personal information. I'm just so open and honest about myself and feel a great urge to share my experience with others, intending it to be helpful.

Like I'm hearing myself talk. I often say things and later wonder if I should have said it. Up until now I haven't really gotten into trouble with it, but if it's really deep stuff people could even blackmail you with, I would try to keep it down.

My psych actually made me compose a list of things I wouldn't tell anyone/strangers, just so I know beforehand what topics to avoid at work/school wherever. I haven't really needed it myself but it could be an idea?
 
Have a terrible habit of doing that too. Open, honest and much too truthful. That's an excellent idea Riding Dutchman:cool:
 
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Lists work for me. I get a good compilation, read it off to them, and carefully verbally edit out all words like "autism" and "Asperger's". Then quiz them. If they say that sounds like me, it then turns into the game show and I show them what we won. :p

Immediate family are the only ones I'm open about it with though. Everybody else just gets "it's the SPD". You're judged a lot less harshly when you have wacky nerves rather than when you're on the "mentally braindead, defective, broken, and outright uselesss" or "psycho knife-bladed chainsaw off-their-meds serial killer" lists.
 
Thanks for your replies. Yes, good idea, RidingDutchman.

I'm glad I joined this forum. You're all affirming my self-diagnosis and giving me self confidence!

I always knew I was different but never understood 'how' before. It has taken me 41 years to discover two fundamental things about myself that had been missed by the medical professionals I've crossed paths with. I've had to lead the enquiry myself and provide 'evidence'. It has been a challenging journey so far, to say the least!
 
I've had plenty of information in my life to decide to reveal, share or keep to myself. I find sharing works well for me when the topic is not painful for me.

If it's emotionally important for me to get validation and understanding I only share with a very few friends, whom I know for certain will support me. If it's more like a case of been there / done that or educating, like with some of the other parents in the children's psychiatric ward, I'll happily use myself as example (as in the case of talking about autism).

One of the gifts my vertical brain has given me is the ability to translate almost any kind of impression into words. So I'm always working on finding good, logical explanations to the more complex things in life. This includes giving strangers an insight into autism but I wouldn't if I found it difficult.
 
The period between my self-diagnosis and making it official was very brief (under two weeks), but I did tell my parents and siblings in that interim. I showed them the results of online self-tests, like RidingDutchman suggested, and I would have also presented the table that Mia shared, if I had known about it at the time. Back-up is always helpful!

It may be wiser to keep your suspicions to a very limited number of people at first, sort of like Judge recommends. Self-diagnosis is very common among autistic adults, but most NTs won't understand that this is acceptable in spectrum culture. There is a lot of skepticism about self-diagnosis of any identified medical condition these days, as the rise of sites like WebMD have made many people into armchair self-diagnosticians. (They're wrong about as often as they're right.)

For the people you do tell, you might want to explain that Asperger's often goes unidentified for many years if it isn't recognized in childhood, and that the disorder wasn't listed in diagnostic manuals until 1994, after you were past that early window. You might also include that it can get harder to identify in adulthood because we learn to adapt over time, making traits less evident.

You should definitely say that you've done a lot of research on the subject, that you've consulted with others who are either diagnosed or identify as Aspies, and that you see yourself fitting the Aspie shoe very well. You could mention that the stereotypes about Asperger's are no more applicable to all Aspies as stereotypes of any other group are to them (a handy example would be helpful; Black people, gay people, whatever your audience would understand and accept).

Finally, you might mention that diagnosis by a doctor can be a lengthy process, and that you're only telling people close to you right now because you're learning to accept the likelihood that you are indeed on the spectrum and would appreciate their support.

Be prepared to answer questions and concerns with facts, and an assertion that this is okay with you -- an answer to a very old question, or many of them. If you make your disclosure with a question in your voice, people will perceive that and likely be less confident in your assessment. And of course, your general attitude about having Asperger's will help shape the attitudes of those you choose to inform (though like Judge said, you can never be sure about reactions).

This is what has worked very well for me. I am open about my AS and have had very little resistance from anyone I've told. I hope you find what works for you.

I wish you well with your journey on this! :)
 

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