Still shocked

[Streetwise]

Hello
I'm from England and was diagnosed last year
I'm 46 ,I'm still shocked at the amount of people in their 40s and just diagnosed
The system in the UK is very restrictive if you get a private diagnosis nhs autism therapists may not accept so means you wait months or years
One man was 68
Got to stop

 

[Suzanne]

Hello there and very much welcome, Streetwise, to aspiecental.

Try being in France ( I come from the uk too) and finding out that they do not even recognise aspergers here! I am also 46 and first discovered aspergers when I was about 40 and now, know I have it and just wait for the time I can get diagnosed.

If I ever could return to England, that would be the first thing I would go about achieving.

What has to stop is putting things in a box where if you miss the ticks, it is conclusive you do not have aspergers or even the fact that they quibble about what it should be called and the result is confusing themselves!

I admit, I wish I could just diagnose myself offically lol

 

[ksheehan88]

I'm 28 and have just been told by my therapist she will refer me for assessment. She said its a waiting list time of around 9 months, which I didn't think was too bad... She said they send you out loads of questionnaires in the mean time, and decide with each one whether to continue with the referral or not, so I'm quite anxious about that.

 

[toothless]

Hello there and very much welcome, Streetwise, to aspiecental.

Try being in France ( I come from the uk too) and finding out that they do not even recognise aspergers here! I am also 46 and first discovered aspergers when I was about 40 and now, know I have it and just wait for the time I can get diagnosed.

If I ever could return to England, that would be the first thing I would go about achieving.

What has to stop is putting things in a box where if you miss the ticks, it is conclusive you do not have aspergers or even the fact that they quibble about what it should be called and the result is confusing themselves!

I admit, I wish I could just diagnose myself offically lol

are you not allowed to tell people you have high functioning autism in its place,or the more universally dreaded 'mild autism' which probably would get a bit more understanding as not everyone understands the point behind functioning labels.


hi streetwise welcome to AC.
i am not shocked unfortunately,this is the UK its got rubbish mental health and learning disability understanding,plus its still catching up on all those adults who missed out on a asperger diagnosis-it only became well known amongst MH professionals in the nineties to my knowledge.

 

[midlife aspie]

I don't think the US is much better. Mental health services are woefully inadequate in general and especially so for the lower income tiers.

 

[Myway]

Getting diagnosed can be frustrating because of wait time. I wasn't diagnosed until my teen years. The US isn't much better at things.

 

[Myway]

Oh and hello and welcome to AC.

 

[Elemental]

Hi Streetwise Welcome to Central

The UK provision for diagnosis referrals & autism care or provision in general, is really varied depending on location; I was pretty appalled at my own experience & submitted a formal complaint, which is ongoing in Wales. Good Luck on your journey

 

[Streetwise]

Hello there and very much welcome, Streetwise, to aspiecental.

Try being in France ( I come from the uk too) and finding out that they do not even recognise aspergers here! I am also 46 and first discovered aspergers when I was about 40 and now, know I have it and just wait for the time I can get diagnosed.

If I ever could return to England, that would be the first thing I would go about achieving.

What has to stop is putting things in a box where if you miss the ticks, it is conclusive you do not have aspergers or even the fact that they quibble about what it should be called and the result is confusing themselves!

I admit, I wish I could just diagnose myself offically lol

Hello Suzanne its streetwise
Apart from receiving welfare benefits for a few months until the fascist system denies everyone that has a neuro /mental disorder ,there isn't much use in official diagnosis if you're over 25 ,in my county there's a bit of help but employees or volunteers don't like autism its not benign enough like downs syndrome.
My cpn has an autistic son who has never been diagnosed but she supports him.
The team that diagnoses you don't help after a few appointments
I know there are some areas of the UK with no specialists to diagnose autism
And I think the government were considering declassifying autism probably aspergers as a disability
I don't know what else to suggest the DWP have killed my confidence

 

[Suzanne]

Hello Suzanne its streetwise
Apart from receiving welfare benefits for a few months until the fascist system denies everyone that has a neuro /mental disorder ,there isn't much use in official diagnosis if you're over 25 ,in my county there's a bit of help but employees or volunteers don't like autism its not benign enough like downs syndrome.
My cpn has an autistic son who has never been diagnosed but she supports him.
The team that diagnoses you don't help after a few appointments
I know there are some areas of the UK with no specialists to diagnose autism
And I think the government were considering declassifying autism probably aspergers as a disability
I don't know what else to suggest the DWP have killed my confidence

At first I was rather stubborn in saying that I do not need an official diagnosis, but in truth, deep inside me, I feel a sense of alienaty even in aspieworld, because the general sense I get is: at last! All my questions have been answered and I have had enough anguish in my life, to deal with this as well, since nt's do thrive on professionalism ie I was told this and that.

But until and if, France acknowledges as aspergers, I will argue that no one doubts I have chronic social anxiety and never ask if I had a professional diagnosis.

How wonderful that the little boy has support, despite a non diagnosis.

My husband feels that if I do get an official one, that I will stop trying. Not accurate, for I just want "closure" now.

 

[Suzanne]

I'm 28 and have just been told by my therapist she will refer me for assessment. She said its a waiting list time of around 9 months, which I didn't think was too bad... She said they send you out loads of questionnaires in the mean time, and decide with each one whether to continue with the referral or not, so I'm quite anxious about that.

I would be too and especially if the questions tend to be more adapted with male aspies or very yes or no, without requiring more information. like: did you develope at a normal rate? No would be the answer. ah, ok you can't have aspergers then. but actually the wider answer is: when a baby, I was neglected and even though I was late in doing things, I became brilliant. I learned to read when I was 9 and then, sped ahead of everyone in my class and even got a certificate for the best reader!

Sorry if I am adding to your anxiety.