• Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

‘To Siri With Love’ Author Fires Back: Book ‘Wasn’t Written for Autistic Audience’

AGXStarseed

Well-Known Member
(Not written by me)


Since its release in August, Judith Newman’s To Siri With Love has been greeted with critical acclaim and celebrity endorsements. Newman’s son Gus has autism, and he learned to communicate with others through conversations with Apple’s personal assistant.

But the memoir, which Jon Stewart called “beautifully honest and illuminating,” has a lot of critics too—namely, other people with autism.

Many people on the autism spectrum have criticized Newman on Twitter using the hashtag #BoycottToSiri. They claim she recklessly reveals details about Gus’ personal life

Marie Porter, a cookbook author who identifies as #ActualAutistic in her Twitter bio, laid out her problems with To Siri With Love in a long tweetstorm.

“Picture what would happen if someone distributed a sheet of paper with private information about you on it,” she writes. “Your porn habits. Discussion of bathroom habits. There’s even a statement about the Benny Hill song (“Yakety Sax“) playing during you having sex—but only IF you have sex, that is.”

Change that sheet of paper to a New York Times bestselling book and the “someone” to your mother and you have some idea of Gus’ predicament, Porter wrote.

Another sticking point is Newman’s plan to seek medical power of attorney for her son when he turns 18, so he can have a vasectomy if needed. Kaelan Rhywiol, an autistic woman with children of her own, wrote an opinion piece on Bustle equating this plan with eugenics.

“It feels to me as though Judith Newman does not believe I am capable of handling my children,” Rhywiol wrote. “As a teenager, I wasn’t much different from Gus. Yet, I’m here, and though I might not be considered successful by neurotypical societal expectations, I manage.”

“I find the book to be, in a word, gross,” Rhywiol told Observer in a follow-up email. “After reading the book, it felt like she hated us. She hates the autistic community because we’re telling her that she’s wrong.”

Newman told Observer she wants medical power of attorney for her son so she can make appointments and explain his symptoms to doctors. She does not, however, plan to have him sterilized.

“I am much less worried now and hoping to be a grandmother someday,” she said. “That’s a result of my son’s growth and my own.”

“I pity her future grandkids then if she’s going to be as cruel to them as she has been to her son,” Rhywiol rebutted.

Newman also said the revelations about her son’s personal life had been blown out of proportion. She said the book includes a “funny potty training anecdote” from when Gus was three years old. The porn joke referenced an incident when Gus’ twin brother looked at his web history and said it was weird he didn’t watch videos with “sexy Asian ladies.”

While Newman’s stories are meant to be humorous, one of the hallmarks of people with autism is that they think literally and have difficulty understanding jokes. Newman knew this and wrote it that way on purpose.

“This book really wasn’t written for an autistic audience,” she said. “It was written for parents, neighbors, people who may love and hopefully will work with someone who is on the spectrum.”

But autistic readers like Rhywiol say Newman isn’t giving them enough credit.

“I knew she was trying to make a joke, and failing miserably at it,” Rhywiol said. “It’s cruel. It’s the type of humor a schoolyard bully uses.”

Newman said she takes constructive criticism of her book seriously but that she thought many of the people angry with her were just spewing vitriol.

“I am trying very hard to listen to the autistic adults who have read my book,” she said. “I am ignoring people who are just screaming at me based on lies propagated online.

Rhywiol said this “screaming” could be educational if Newman paid attention.

“Autistic people have been going out of their way trying to educate her in the wake of this book,” Rhywiol said. “She’s not listening.”


Source: ‘To Siri With Love’ Author Fires Back: Book ‘Wasn’t Written for Autistic Audience’
 
Rhywiol said this “screaming” could be educational if Newman paid attention.

“Autistic people have been going out of their way trying to educate her in the wake of this book,” Rhywiol said. “She’s not listening.”

Exactly. She still doesn't think we are people!?!?!?
 
What a damaging book.

This woman would not want someone she trusts—her own mother— to publish a book in which she is degraded, made fun of. In her book, she says that when she imagines her son having sex, she hears a Benny Hill song playing, and that usually means things don’t end well. <—- making fun of, cruel, depersonalizing, insulting, disrespectful. She published this about Gus. He will, one day, likely read this book. Even if he doesn’t, others will have read such dismissive, cruel postulations about him. Further, this has damaging impact of what is thought/allowed in treatment toward us Autistics.

She mentions that she plans on sterilizing him at 18, rather than allow him the right to decide his own procreative future. This surgery, forced sterilization, reminds me of the eugenics movement, in that his personhood is not being perceived, his choices removed. He is 13. She now retracts her scheme to sterilize him, with the public censure of adult Autistics. My compassion for Gus if his mother is yet unable to see her son as a full person within, deserving of respect.

As different as we on the spectrum all are, we have in common that we all grow in self-awareness. Gus is only 13.

A smart move by this Mom would be to retract this damaging book, pass on the royalties, contact that publisher, but she won’t, as from neurotypical professionals and parents, she is getting acclaim, even at her son’s expense.

From the autism community, she is discounting/ignoring/minimizing our communication as merely “spewing vitriol,” as she’s discounting/ignoring/minimizing her son’s personhood, while paying much closer attention to other Moms and professionals.

I’m hoping this woman has an awakening, toward looking deeper, understanding more deeply. If she were better able to perceive Gus’s personhood, a respectful book would be written with her son, and his autistic peers, firmly in mind as audience. We are, after all, people.
 
"This book wasn't written for an autistic audience, this book was written for me! Me! Me only! I'm the VIP here can't you see!?! MEEEEEEEEEEEE"
 
Man I wish I can tell Gus up front to just run. Maybe not now but when he's legal I really hope he realizes what his mother is doing to him and just try his best to run away from her. I know if I were in his shoes I would too.
 
It's really not good to write a book for parents and loved ones of autistic people, or those with any other disability or difference, and not think about respecting those with the disability or difference. It promotes the attitude that those whose opinions on autism matter the most are the parents, not the people with autism themselves, and that autistic people don't have feelings worth taking into consideration.
 

New Threads

Top Bottom