Updated 4/27/2022. Current situation update. I'm trying to decide whether to stay or quit and need some suggestions. Thanks to all! This is on #32.
Updated 3/14/2022. Compiled things I need help with without the triggering stories from my original post. This info is on #23. Please still proceed with caution, because as NT I can’t fully know what is triggering for you guys in ABA. I’ll probably update every once in a while to explain new situations and new things I need help with.
This story is very long so please bear with me.
Some background knowledge about me and the situation. I'm an NT who graduated from a US college (basically a 4-yr university if your English habits are different) last year with a bachelor's in fine arts and a minor in psychology. I'm mentioning US because I think some cultureshock elements are in play here. I'm not American and returned to my home country after graduation. My home country is not in the West as defined by geography and the culture. Here, homogeneity is a huge thing and ableism is VERY prevalent. Homogeneity as in, even if you are NT with no disability, people still feel pressured to actively fit in.
Anyways, in January this year I started a job working in a rehab center for children with disabilities. This center is set up like a special school, and the schedule consists of classes and a short break in between each class. The kids usually only do work here for an hour a day, four days a week. The goal was to eventually mainstream them, but I didn't realize at the time that meant mainstream with zero support (sometimes a parent helping them in a mainstream school is allowed, but that's nowhere close to having a professional imo). I would start as a TA for their art class and would slowly take over, and also start sandplay therapy for the children. I would predominantly work with children with cognitive disabilities and a lot of them would be autistic. I thought that would be a great starting point for helping people, something I always wanted to do, but I had no idea this would turn bad very quickly.
As of the time I'm writing this right now, I'm currently in training for ABA while TAing for the art class. I was told about ABA in January and did some research. I ended up looking at a lot of autistic people criticizing the approach. I have to admit, I did not disregard those opinion, but I should've taken them a lot more seriously. This center has a very high credential, and that's probably why I thought I should give them a chance. I thought I should wait until my training started to make judgments about ABA. Whelp, I'm judging it now.
The first few weeks I started training, ABA actually didn't seem too bad (ok, I was wrong). The people here always used reinforcement. The very few times punishment was used, it was in the form of a verbal reprimand. So I thought, not so bad. But then I started noticing people forcing autistic children to stop stimming and sit still like NT, and that was my first red flag. And then it got way worse. One of the kids here is not verbal and constantly stims, he would walk all over the classroom during group activities for games, and I was told to hold him by the shoulders to stop him from moving. Initially, I did not want to do that because most of the psych classes I took in college were about therapy and mental illnesses, and I was taught to respect personal space and never touch clients, things like that. But then other people showed me how to hold him and he didn't struggle, he was actually calm, so I thought maybe that was okay. (I'm sorry!) Actually, after doing more research on autism and reading some of the posts here, should I be concerned he's calm when he's held down standing still? He doesn't seem to mind physical touch, once he kneaded my palm for about 5 minutes stimming. But when he was held we were obviously stopping him from stimming.
Also with this child, I think he's very visual and understands hand signals. The group activities involved some commands like "stand" "sit" "go", and I could see him doing it when I added hand signals to oral speech. I don't know the local sign language so I can't teach it to him to make sure. But is it safe to think he has average intellectual abilities, just not speech? Sometimes we have the kids do tasks, but I don't know if it effectively measures IQ for autistics. For example, we ask them to color in a picture, and many would color in patches and not confine the colors in lines. Some kids have difficulties stringing beads in a specific pattern. Not sure if that's just autistic brains being different or really IQ, please comment! Anyways, back to this kid, before I discovered the hand signals, I used to tell him the commands orally and he wouldn't do anything, and once the teacher in charge told me, "He doesn't understand anything, just hold him down." That was just...I didn't even know how to describe the feeling, just so sad, I guess?
And then another kid I really need help with. I observe him in ABA one-on-one training four times a week, and he's also in the art class I'm TAing. He's 8. He is verbal but from an NT perspective he seems distracted when he's speaking, is that a sign he's struggling with this method of communication? He understands writing so I could try that. Anyways, in class he really likes to play with markers, but not necessarily use them. By that I mean, he's really excited when he's holding/playing with markers, but if we tell him to draw something, he stares at the paper with a frown and makes a mark or two and stops. The main teacher gets mad at him for doing this, which is really sad. But if another child is drawing something, he copies their drawing, so a lot of his work look like replicas of someone else's. He does not copy drawings that are already drawn, nor does he copy another adult. What might be the cause of that from an autistic perspective? I'm suspecting he's doing it to avoid being reprimanded, because if another kid his age is doing so, it's safe and possibly correct (he gets told he does things wrong A LOT). Part of his self-introduction consists of "I like art and basketball," but idk if it's genuine or if he was just taught that because of "obsession" with markers. Do you guys think he likes art from this description?
He is also labeled as "aggressive," which I don't agree with, but I do have difficulties communicating rules to him. We have a group of kids in art, and we put a set of markers and one playdoh in a white box in front of each kid. Once he got up and took another kid's markers and started running around the classroom with it. Another time he went through three boxes grabbing playdohs when other kids were seated in close approximity to the boxes, and because there were things on top of the playdoh, everything ended up being thrown on the floor. That action did appear really aggressive from NT perspective but I don't think he did it intentionally. In fact, from NT perspective, it seemed like he couldn't control himself when he did those things. Can you guys provide input as to what happened there? Also, next time this happens, what can I do to calm him down quickly so he's not hurting anyone or taking other kids' stuff? During his ABA, he always needs a box of his markers in sight, and sometimes he would shoot up from his seat and grab the box. Sometimes he's yelled at for that, and once the instructor ripped the markers out of his hand. He clearly appeared distressed but was met with more yelling. It was really traumatizing even for me, an observer.
Right now I'm just waiting until my training is over. I have some relief in knowing I wouldn't be conducting ABA if I'm doing art class and sandplay therapy. I'm hoping to eatablish the sandplay room as a safe space for the kids. Comments and suggestions on that?
Some background info, more questions, and ethics in general:
I know what the instructors are doing here is bad, but they are not aware and think they are trying to help. Here it's different from the US, where you need a master's and training to do ABA. Many of the instructors started out being kindergarten teachers in mainstream schools. I think when they first started, they were just given ABA training for a few months and then evaluated. Also homogeneity and ableism is so strong here, most people think the only way to help people with disabilities is to (even some pwd agree) "make them normal." I'm specifically thinking about hearing aids and CIs for deaf/hoh people, I was really surprised when I learned those are not usually met with pushback by most Deaf people here. Also I've seen a lot of people with mild disabilities online wishing they were "normal" and saying they would never have kids. But then again, idk how much that represents everyone, pwd are basically invisible here and I have no other way to ask.
Anyways, my point is, I doubt the instructors are aware their ableist attitude is hurting the kids. I'm not even sure how much they knew about autism before ABA was shoved down their throat. ABA is also used with children with intellectual disabilities here and that really is working well. When mainstreaming, it is expected that the kids could be in school independently without extra help. That's just awareness on the governmental level and where funding goes (or doesn't go, I suppose). I'm not sure what to do at this point because some of the kids here are really bright, but if they don't learn to act NT, they would not have a chance to higher education. Mandatory education here stops after middle school. Social awareness and education is lagging about 50 years behind compared to the West, at the least. And even if I tell other instructors about this and they believe me, and best scenario would be them asking, what do we do instead, to which I apply, well, the medical field doesn't have an answer yet. I'm sure that's going to go well (extra sarcastic).
Updated 3/14/2022. Compiled things I need help with without the triggering stories from my original post. This info is on #23. Please still proceed with caution, because as NT I can’t fully know what is triggering for you guys in ABA. I’ll probably update every once in a while to explain new situations and new things I need help with.
This story is very long so please bear with me.
Some background knowledge about me and the situation. I'm an NT who graduated from a US college (basically a 4-yr university if your English habits are different) last year with a bachelor's in fine arts and a minor in psychology. I'm mentioning US because I think some cultureshock elements are in play here. I'm not American and returned to my home country after graduation. My home country is not in the West as defined by geography and the culture. Here, homogeneity is a huge thing and ableism is VERY prevalent. Homogeneity as in, even if you are NT with no disability, people still feel pressured to actively fit in.
Anyways, in January this year I started a job working in a rehab center for children with disabilities. This center is set up like a special school, and the schedule consists of classes and a short break in between each class. The kids usually only do work here for an hour a day, four days a week. The goal was to eventually mainstream them, but I didn't realize at the time that meant mainstream with zero support (sometimes a parent helping them in a mainstream school is allowed, but that's nowhere close to having a professional imo). I would start as a TA for their art class and would slowly take over, and also start sandplay therapy for the children. I would predominantly work with children with cognitive disabilities and a lot of them would be autistic. I thought that would be a great starting point for helping people, something I always wanted to do, but I had no idea this would turn bad very quickly.
As of the time I'm writing this right now, I'm currently in training for ABA while TAing for the art class. I was told about ABA in January and did some research. I ended up looking at a lot of autistic people criticizing the approach. I have to admit, I did not disregard those opinion, but I should've taken them a lot more seriously. This center has a very high credential, and that's probably why I thought I should give them a chance. I thought I should wait until my training started to make judgments about ABA. Whelp, I'm judging it now.
The first few weeks I started training, ABA actually didn't seem too bad (ok, I was wrong). The people here always used reinforcement. The very few times punishment was used, it was in the form of a verbal reprimand. So I thought, not so bad. But then I started noticing people forcing autistic children to stop stimming and sit still like NT, and that was my first red flag. And then it got way worse. One of the kids here is not verbal and constantly stims, he would walk all over the classroom during group activities for games, and I was told to hold him by the shoulders to stop him from moving. Initially, I did not want to do that because most of the psych classes I took in college were about therapy and mental illnesses, and I was taught to respect personal space and never touch clients, things like that. But then other people showed me how to hold him and he didn't struggle, he was actually calm, so I thought maybe that was okay. (I'm sorry!) Actually, after doing more research on autism and reading some of the posts here, should I be concerned he's calm when he's held down standing still? He doesn't seem to mind physical touch, once he kneaded my palm for about 5 minutes stimming. But when he was held we were obviously stopping him from stimming.
Also with this child, I think he's very visual and understands hand signals. The group activities involved some commands like "stand" "sit" "go", and I could see him doing it when I added hand signals to oral speech. I don't know the local sign language so I can't teach it to him to make sure. But is it safe to think he has average intellectual abilities, just not speech? Sometimes we have the kids do tasks, but I don't know if it effectively measures IQ for autistics. For example, we ask them to color in a picture, and many would color in patches and not confine the colors in lines. Some kids have difficulties stringing beads in a specific pattern. Not sure if that's just autistic brains being different or really IQ, please comment! Anyways, back to this kid, before I discovered the hand signals, I used to tell him the commands orally and he wouldn't do anything, and once the teacher in charge told me, "He doesn't understand anything, just hold him down." That was just...I didn't even know how to describe the feeling, just so sad, I guess?
And then another kid I really need help with. I observe him in ABA one-on-one training four times a week, and he's also in the art class I'm TAing. He's 8. He is verbal but from an NT perspective he seems distracted when he's speaking, is that a sign he's struggling with this method of communication? He understands writing so I could try that. Anyways, in class he really likes to play with markers, but not necessarily use them. By that I mean, he's really excited when he's holding/playing with markers, but if we tell him to draw something, he stares at the paper with a frown and makes a mark or two and stops. The main teacher gets mad at him for doing this, which is really sad. But if another child is drawing something, he copies their drawing, so a lot of his work look like replicas of someone else's. He does not copy drawings that are already drawn, nor does he copy another adult. What might be the cause of that from an autistic perspective? I'm suspecting he's doing it to avoid being reprimanded, because if another kid his age is doing so, it's safe and possibly correct (he gets told he does things wrong A LOT). Part of his self-introduction consists of "I like art and basketball," but idk if it's genuine or if he was just taught that because of "obsession" with markers. Do you guys think he likes art from this description?
He is also labeled as "aggressive," which I don't agree with, but I do have difficulties communicating rules to him. We have a group of kids in art, and we put a set of markers and one playdoh in a white box in front of each kid. Once he got up and took another kid's markers and started running around the classroom with it. Another time he went through three boxes grabbing playdohs when other kids were seated in close approximity to the boxes, and because there were things on top of the playdoh, everything ended up being thrown on the floor. That action did appear really aggressive from NT perspective but I don't think he did it intentionally. In fact, from NT perspective, it seemed like he couldn't control himself when he did those things. Can you guys provide input as to what happened there? Also, next time this happens, what can I do to calm him down quickly so he's not hurting anyone or taking other kids' stuff? During his ABA, he always needs a box of his markers in sight, and sometimes he would shoot up from his seat and grab the box. Sometimes he's yelled at for that, and once the instructor ripped the markers out of his hand. He clearly appeared distressed but was met with more yelling. It was really traumatizing even for me, an observer.
Right now I'm just waiting until my training is over. I have some relief in knowing I wouldn't be conducting ABA if I'm doing art class and sandplay therapy. I'm hoping to eatablish the sandplay room as a safe space for the kids. Comments and suggestions on that?
Some background info, more questions, and ethics in general:
I know what the instructors are doing here is bad, but they are not aware and think they are trying to help. Here it's different from the US, where you need a master's and training to do ABA. Many of the instructors started out being kindergarten teachers in mainstream schools. I think when they first started, they were just given ABA training for a few months and then evaluated. Also homogeneity and ableism is so strong here, most people think the only way to help people with disabilities is to (even some pwd agree) "make them normal." I'm specifically thinking about hearing aids and CIs for deaf/hoh people, I was really surprised when I learned those are not usually met with pushback by most Deaf people here. Also I've seen a lot of people with mild disabilities online wishing they were "normal" and saying they would never have kids. But then again, idk how much that represents everyone, pwd are basically invisible here and I have no other way to ask.
Anyways, my point is, I doubt the instructors are aware their ableist attitude is hurting the kids. I'm not even sure how much they knew about autism before ABA was shoved down their throat. ABA is also used with children with intellectual disabilities here and that really is working well. When mainstreaming, it is expected that the kids could be in school independently without extra help. That's just awareness on the governmental level and where funding goes (or doesn't go, I suppose). I'm not sure what to do at this point because some of the kids here are really bright, but if they don't learn to act NT, they would not have a chance to higher education. Mandatory education here stops after middle school. Social awareness and education is lagging about 50 years behind compared to the West, at the least. And even if I tell other instructors about this and they believe me, and best scenario would be them asking, what do we do instead, to which I apply, well, the medical field doesn't have an answer yet. I'm sure that's going to go well (extra sarcastic).
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