• Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

Well then...

Twitch

Destroyer of worlds. Well, my own anyway.
Hey all. I’m Jay, 53, living in Florida. I’ve been diagnosed with a fun variety of things over the years. “Borderline personality disorder” (though I maintain I left the border in the dust years back), PTSD from years of physical and sexual abuse as a child (fun times). Some doctor once decided I was “bipolar” which made NO sense—I’m the most mono-polar person I’ve ever met. I think I’d rather enjoy nice manic episode once in a while…

I tried to off myself a couple of times as a young lad, been sent up to the flight deck on a handful of occasions—though (suicide attempts aside) rarely more than a week or two at a stretch; I know the game and can talk my way off a locked ward with some efficiency.

I am riddled with strange tics and have been my whole life. I pull my shirt out and blow on my chest. I tap the side of my neck with two fingers. If I’m sitting either my leg is bouncing or I’m slowly swaying back and forth but that’s only for private time—of which I require a LOT. Out in the world it’s the bouncing knee: only way to avoid the rocking and I NEVER do that in public. I never do a lot of things in public come to ponder it. The worst though—worse than the grunting, the tuneless humming, and the weird laughing fits—is the pacing…,

I can’t stop pacing. I only take jobs (which I rarely hold any length of time) where I move around a lot or am out of view for extended periods. I pace ALL the time. I’ve stopped writing this twice already to wander back and forth across my room talking to myself. When I was a kid it was down-right psychotic. I wore a hole through my rug. The paint was stripped off the walls on either side of the room. The palms of my hands were massive calluses because as I’d go, I’d start moving faster. And faster. I once gave myself a concussion.

By my mid thirties, I started to suspect I was autistic. While classified, studied, prodded, and pressed at length by the educational system as a youth (I was thrown out of three schools and only graduated for spite) the idea of autism never came up because back in the 70’s and 80’s it wasn’t autism if you weren’t completely withdrawn and mentally retarded.

I’m trying to get the process being diagnosed rolling but I’ll need the VA to pay for it and that means a murderously slow crawl up very a steep hill. I am NOT good at being patient, especially when I’m obsessing about something. I’ve sabotaged things I dearly wanted—and could have had—just because waiting and not being sure was so unbelievably painful, better to end all possibility and thus doubt.

I NEED to know. I mean, I’m pretty sure I already do. But I need to KNOW know—if that makes any kind of sense. Of course I thought I was an alien when I was six so maybe my judgment should be taken with a salt mine or two.

I’ve never understood people on any level. Social conventions are equal parts bizarre and nauseating to me. There are sounds that set my flesh crawling for no apparent reason. I’ve had relationships and friendships, very close ones, but I ALWAYS alienate people in due course. I can’t hold a job. I have practically zero useful life skills.

Oh, and my thing with eyes. I could never stand looking most people in the eye though I got good at being sly about it. I’d look for a second or two when it seemed appropriate but look away to nod at a point, or shrug, or I’d pick something up and play with it, or doodle on a pad. I’d use a lot of generic, broad hand-gestures (I grew up around Italians) to distract from my face. Sometimes, when it felt especially painful, I’d actually look at people’s foreheads, focusing directly above and between their eyes which, combined with situating myself at the maximum acceptable distance for a given setting and, whenever possible, being at an odd angle to them… Damn I’m a mutant.

I feel like a lair every time I speak to another human being even if I utter not a word but empirical truth. I’ve felt like a fraud and a freak my entire life. I’ve hidden myself from virtually everyone I’ve ever known for fear of “exposure” but, fact is, I’m just too damn tired to keep it up anymore. And bitter, frankly. I’ve become so angry I’m making myself sick from it.

I am, in short, a train-wreck of a human being. I am lost and broken. I am human wreckage. I feel like I’m being carried down a river, half frozen, waiting to drown or be torn apart by rocks and all I really want is for it to just happen already.

So anyway, self-pitying tantrum over; how you folks doin’?
 
Welcome. Sorry to hear about your journey and trauma. Hopefully you may get some answers and healing.
 
Welcome. You have had a rough journey. I understand the feeling of PTSD, though mine comes from my powerlessness of being able to change my social and sexual isolation until far past the age when socialization is developmentally important. I have found a therapist who has also treated Vets, and her guidance through CPT has helped me considerably.
 
Welcome!

A lot of us (especially those who were diagnosed later in life) really had to fight hard for a diagnosis as well. I had my fair share of diagnoses that made absolutely no sense prior to finally getting diagnosed with ASD, and when I eventually did, it felt like something made some kind of sense in my life for once. I hope the same (or better, even!) happens for you. I'm sorry it's taking so long to get that in order.

Sounds like we have pretty similar personality-types, and as unaccepting as NTs have been for me throughout my life (especially when I was younger), I can't really imagine what it's like for older generations to go through the same when the world was way less accepting of children / adults who were higher-functioning.

Hope you stick around!
 
Ahoy Twitch!
Another Floridian here and I like your pirate icon.

I wasn't diagnosed until in my 50's.
A long life of other diagnoses also. Mainly Panic disorder, anxiety and depression.
Socialization, eye contact, isolation, never lived on my own although I did have
a career for a while until I became disabled.

Glad to see you are here.
It's been a great resource for me to have this place to communicate with others
I can relate to, and I don't feel so alone.
Hope you enjoy it here too.
 
I pace a fair bit. Especially when on the phone. When I had wireless headsets at work I'd often pace whilst on calls. Especially on quieter shifts.

I wore a hole in the backseat of my mum's car from swaying side to side. That's my main stim. I'm doing it right now in fact - I sit cross legged on the floor and sway side to side. Sometimes upwards of 10 hours in a day. I wouldn't call it psychotic though. It's just how I do.

Being patient isn't my strong suit either. I've been waiting over a year for my assessment on the NHS in UK. My brother has been waiting over 2 years.

How do you alienate people? I've had close friendships and relationships, but for the most part all I make is acquaintances. I fair better than a lot on the spectrum socially - but it's still a huge mental and emotional drain. I find people tend to like me more than I like them. They enjoy socialising with me more than I do with them. Which makes me feel selfish and defective.

It took a lot of practice for me to look people in the eye. Riding month after month of my brain fizzing and my skin crawling. But with practice I got quite good at it. Depends on emotions though. My therapist noted that sometimes I make no eye contact until right at the end of what I'm saying.

I hear a lot of depression and self-loathing talking in what you say. But I get it. I go from one extreme to the next. Elation and despair. I don't view myself in a very healthy way.

Something I noticed recently was the qualities I love in my girlfriend - kindness, patience, warmth, understanding etc. I feel blessed to have met her, and yet it's these qualities that I need to bestow upon myself, and yet I don't. When viewing myself I can be cruel, impatient, cold and very very critical.

That needs to change. If we don't love, accept and understand ourselves - then of course the world is going to be a scary, unfriendly and troublesome place.

My partner's dad is on the spectrum. He said the other day "the world doesn't understand me, and I don't understand it. Let's call it a truce."

Rather poignant. But perhaps he should ask why the world SHOULD understand him, before he claims that it doesn't understand him.

All the best.

Ed
 
Welcome, dear, battered friend. I can understand your past. I was diagnosed at 55 years old, just this year, and have many a tale to tell of past horrors.
 
I can't really imagine what it's like for older generations to go through the same when the world was way less accepting of children / adults who were higher-functioning.
In the 50s through 70s quite a few of our behaviors were not accepted if they were disruptive, but otherwise not much attention was paid to those, like me, who fit in academically. Our social deficits seemed to be treated as choices and nobody thought that in many ways we may have normal social desires without the skills to realize them. Then, when we had to work to attain social goals, there was no help and doing so without knowing about asd had its own difficulties.
 
@Twitch, first of all, welcome,...and NO you are not a mutant.;) An alien observer like many of us perhaps, but not a mutant. JK:)

What you are describing with regards to symptoms is actually common in autistics,...perhaps not quite to your extent and depth,...but the repetitive, "stimming" behaviors, the depression (suicidal ideology), the "disconnect" when communicating with others, anxiety, perhaps a lack of quality sleep,...all common with autism. The PTSD, the attention deficits, and psychological effects,...also common with autism.

Physiologically,...what you are describing is an imbalance between "excitatory" and "inhibitory" neurotransmitters. When a neuron fires a neurotransmitter across the junction to another neuron, there are chemical pathways to quickly inactivate that neurotransmitter,...if not,...then that neurotransmitter chemical is just sitting there between the junction and can cause a refiring,...or at least leaving it "primed" for a refiring. There can be many reasons for this,...often gene transcriptional errors at the cellular level are at play,...and medications are needed to compensate for the lack of inhibitory chemicals. Other contributing things may be a lack of methyl-B12,...some autistics, especially females, tend to lack the ability to convert B12 to methyl-B12,...it's active form. B12 is an important co-factor for the production of neurotransmitters. Other contributors could be an unknown food allergy or diets that are too restrictive,...either causing inflammatory mediators to cause "havoc" in the brain,...or a limited microbiome causing some degree of neurotransmitter imbalance.

Autism is also known as one of the "low dopamine" neurological conditions,...and there are at least 3 different genetic transcriptional errors known in autism, alone. If the dopamine is below a critical level, then it can contribute to some rather severe bouts of depression and suicidal ideology.

So, NO,...you are not a mutant,...and regardless if you are truly autistic or not,...there are physiological reasons for much of what you are experiencing,...and once you sort it out with your psychiatrist and physician, I think you will start to feel better.

Take care:)
 
Last edited:
1662132013764.png
 
Pacing...my primary stim. Which is how I got the nickname "Judge" as a child.

Constantly pacing with a very serious look on my face, locked in my own thoughts. ......Yeah.
 
You write rather well.

Which treatments have you tried so far?
Thanks. Writing is the only thing I do well at all, the only thing I have any discipline with which is weird since I'm extremely dyslexic as well. What can I say? I'm a glutton for punishment. They kept me back in 1st grade and told my mother I'd likely be functionally illiterate my whole life. Never underestimate the motivational prowess of spite and ennui, lol! I've written several books and stacks of verse over the years--which I generally won't share with people even though I desperately want to.

As to "treatments"...

I HATE taking medicine. I'm hyper-sensitive to itand if there's a possibile side-effect I seem to get it. I'm trying to get into therepy but, again, I'm dealing with the VA so I can only be seen once a month and all they want to do is give me grief about not taking all the drugs they try to put me on.
 
Welcome. You have had a rough journey. I understand the feeling of PTSD, though mine comes from my powerlessness of being able to change my social and sexual isolation until far past the age when socialization is developmentally important. I have found a therapist who has also treated Vets, and her guidance through CPT has helped me considerably.
Thank you kindly. I think it's good to be here. I must ask, what in the cinnamon toast hell is that on you avatar; some kind of cactus? It's memorizing and horrifying, lol.
 
Thank you kindly. I think it's good to be here. I must ask, what in the cinnamon toast hell is that on you avatar; some kind of cactus? It's memorizing and horrifying, lol.
That is a trilobite of the Devonian period, from Morocco. Fishes were becoming dangerous predators and trilobites were starting to sprout an exuberance of spines and other defenses. My avatar is a pretty spiky critter, Drotops armatus. Far spinier is this.
received_767336050396537.jpeg
 

New Threads

Top Bottom