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What I wish I could tell my boss: ‘My autism is not a problem’

AGXStarseed

Well-Known Member
(Not written by me)

I need you to understand that while my condition may seem crippling to you, I actually have a pretty good life


When you offered me the job, it seemed perfect. You said I blew the competition away and you wanted me to start as soon as possible. You beat my current pay and promised a family-style atmosphere where emphasis was on the “right personality”.

As someone with autism, I wasn’t looking for special treatment. If anything, telling you about my condition has made my job worse. Now rather than being seen as “cutely eccentric” I am “the one with the developmental disability”.

I didn’t complain about the fluorescent lighting, or when you moved me from a quiet office to a busy one, or when you cancel our meetings and then lean in the doorway and regurgitate your weight loss goals to me.

If I mention that these things make me panic, want to vomit, make my ears ring – you tell me to get it together. Then you ask me for my personal input on autistic patients.

I am not here to tick boxes on an equal opportunities form. When I told you I needed support in the workplace you immediately extended my probationary period, knowing that this new insecurity around job safety was directly related to a disability.

Yes, I can hear you whispering two offices away through closed doors. Just like I can hear washing machines three doors down on my road or my partner opening a plaster. Yes, I know my eye contact is poor, but don’t bully me into making it. And do not touch me. It makes my skin burn so I’d rather you didn’t. Yes, I do have very rigid routines and travelling alone is difficult, but I manage.

I need you to understand that these things may seem crippling to you, but actually I have a pretty good life. A couple of good friends, partner, planned holiday and a mix of interests.

I wish I could tell you this is the first job where I have felt disabled. You remind me weekly of my special needs. That time you shouted at us in a meeting, I began shaking because the volume of your words made me feel sick. And afterwards everyone else was asked if they were OK, but I was avoided. You told people to leave me alone and whispered that I just couldn’t cope.

I wish I could tell you how confused I was when you encouraged me to make a statement against a discriminatory member of staff and said you’d back me. When your boss was there and told me I shouldn’t be pursuing it, you said nothing. Later, you told other staff that you thought I was trying to catch out the company for my own personal gain.

HR policies state I should take this up with your boss, but the one time I told them about it, I wasn’t allowed back in the meeting.

When you say: “Don’t you worry that if you have kids they’ll be autistic?” I need you to know that only you feel shame and worry about my disability. For me, my autism isn’t a problem.


Source: What I wish I could tell my boss: ‘My autism is not a problem’
 
Yeah, it's like we get treated badly as employees, which is nothing new for anyone, yet when you have this hanging over your head, it gets "turned up to eleven."
 
And as all this happens, at some point there will be the inevitable "you're using your autism as an excuse". Oh, well...
 

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