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Anyone else deal with constant pain?

I have the same issues with pain, and I was so annoying and persistent with doctors that they eventually did a lot of testing and said I have fibromyalgia. But yeah, pain meds don't help much with that :(
I also have chronic migraines, which I do take medication for.

The worst pain I've ever had was from endometriosis, and I had a hysterectomy in early October, so I am thankfully free from pelvic pain now.

I would keep being persistent until you can get an MRI. Other suggestions you've been given here are good as well. Best of luck! :)
 
So, I deal with a lot of issues that sound very much like what you're describing, particularly the headaches.

My own symptoms are:

1, headaches. These seem to arc sort over the top of my head and into my eye. I must say, I do not find these fun.
2. My right arm flares up a lot. Things like too much mouse use can do it, or a variety of other things. When flared up the pain is very intense.
3. Both my neck and my lower back can "lock up". Basically, I cant turn while in that state. Well, no... it's not that I technically cant. It's that it hurts so bloody much to do so that there's little point in trying. All I can do is wait... usually a day or two... until it wears off. This pain is not random though, it is triggered by something.
4. A variety of pain types along my spine, and also in my shoulders, particularly on the right.

Now, here's something I learned very early on with this stuff: going to just a normal doctor isnt enough. I'd STRONGLY suggest seeing a specialist (not a chiropracter, and I'll get to that in a moment). My own problems are both nerve and tendon related, and some of what you described sounds like nerve issues too.

What helped me isnt some magic medication or quick procedure... that's not how this worked. What helped me is physical therapy. But it takes a bit to get there.

Firstly, you need to get a PROPER examination... again, by a specialist... to determine the actual source of the problem. It may not be where you think it is. Like, when I have pain down in my hand, right. The problem isnt down there. That's not where the pain is coming from... that's just where I PERCEIVE it. It's actually coming from both my elbow, and up near my neck as well. "Referred" pain is one of the effects that nerve/tendon issues can bring, and it's typically the most frustrating.

It's the same with headaches. The pain, where I described it, isnt where it actually comes from for me. It's actually coming from a couple of small spots at the very back of my neck. That it shoots up over the top of my head is just the referred pain, not the actual location.

The reason I say not to go to a chiropractor is that the causes for this can be many, and the absolute #1 thing you DO NOT WANT TO FREAKING DO is pull/yank/twist/bend the wrong spot. And those four things are pretty much what chiropractors do, when you think about it.

But also... there's just no magic cure for this. You want a fix, you're likely going to have to work for it.

In my situation, what happened was, it started with an MRI, right. This was used to determine the nature of the pain. The type of cause, I guess. And also to rule out any more dangerous problems.

After that though, comes PT, or physical therapy. THAT is the one and only thing I've found that is effective. But it's not a magic cure, it's not a "WELL LET'S JUST YANK YOUR ARM PAST YOUR BUTT, THERE THAT'LL FIX IT" sort of quick fix. It's work. It's hard work. The point isnt just to relieve the pain: it's also to strengthen specific areas to make them more resistant. As well as to keep certain areas moving enough that you're less likely to tighten up, that sort of thing.

But also, some problems cannot be solved by the type of approach a chiropractor uses. Simply adjusting your spine and whatnot (which is what they do) can often have absolutely no effect whatsoever on the current issue. Or can just make it worse. And trust me, you do NOT want to mess with the level of pain that can happen if you screw that up. Whatever you're feeling now, it's nothing compared to what you'll feel if you get THAT wrong. So... yeah. Dont do that.

My own therapist frequently does something I usually refer to as "prodding". I'm not sure how else to put it. Basically it's like someone jams their fingers into your side/whatever REALLY hard, and pushes against that spot. It's not about just the joints, it's about the tendons as well.

That stuff, the procedures they do for me directly, combined with the exercises they give me, are what helps.

I'll put it this way: I had a period of about two years where I couldnt use a freaking mouse. Why? Because my arm would flare up bad every time. I actually used a game controller to EMULATE the mouse in order to bypass that issue. Because what else was I going to do?

Now though? Really not too much of a problem as long as I dont go totally overboard. I can use one now like I used to. But it's because of the work done in PT, over time.

But this is going to differ from one patient to the next, and that's exactly why you need a specialist to properly examine and diagnose, and also why the process is slow to do, done over a long period of time rather than in a couple of quick spine-mangling appointments.

Seriously: Take it slow, take it careful, see a real specialist, get fully examined. And then go from there.
Wow a lot of what you described about the pain you get is very familiar to me. It's like a spiral of pain I get that starts at the left of the top of my head and winds down my body like a progressively larger spring.

The first issue I had was caused, I think by a pretty full on session of welding beneath my car. I had to twist like a pretzel and I had my arm up in the same position for hours at a time. I'm fairly ambidextrous, so the right of the car involved using my left hand mostly and the left side mostly my right hand. But more work was required on the left of the car.

About a week later my right shoulder and neck were extremely sore, but I'd been through it before so I didn't worry. But it became increasingly worse and my right arm started to really hurt. It was like I couldn't let it rest, letting it fall naturally was painful, it kinda felt like it wanted to go into the position it was in when I was welding.

After a while I could barely move without shooting pains right up and down my arm. The pain would come in waves. I phoned the NHS advice line and they were concerned enough that they offered to send an ambulance. I refused the ambulance as I felt it may deprive someone in a more dangerous position. But I agreed to go to the emergency department.

When I got there I was treated really badly. To be honest, at one point I did get a bit snappy (and I mean just a little bit) as I was trying to suppress my reaction to the pain. Apparently, I was told by the nurse assessing me, she was "not allowed" to help me remove my coat. It had taken me half an hour to put it on before I left.

I was given the run around by the doctor I saw which amounted to him trying 2 pain killers and then announcing "it's a mystery" and sending me home. This resulted in me returning to the hospital 2 hours later where a different nurse helped me wriggle out of my coat and a different doctor took all of 10 minutes to diagnose a badly trapped nerve and "referred pain" and gave me diazepam. A very different experience to the first time. This did help and I was told to make an appointment with my GP asap.

But my arm never fully recovered and it can be pretty useless sometimes. Like I say I've got loss of sensation in my hand.

I think due to my arm, I started to adapt to using my left more on top of the pain in my right. I used to do quite physically demanding work. I think this strained other parts of my body which lead to other injuries piling up.

But as I usually do, I tried to keep going. Only this caused yet more pain and it was really bad. I kept trying but it never improved.

The problem you described concerning using a mouse is spookily familiar! It was like I was getting electric shocks up and down my arm and pain between my shoulders. My arm felt like it wanted to float upwards. I couldn't play my digital piano anymore without my arms becoming fatigued very quickly.

I used to be very active to the point I was always slim due to the physical demands of the sorts of things I did regularly.

There seems to be a hard limit on what I can do, like I've got a very limited "energy or power up bar".

Like you, turning can be extremely painful. Just adjusting my position when I'm trying to sleep really is damned painful. Its like I forget for a moment try to turn and I get a while host of shooting pains.

The problem is, I've gained weight. So when I go to the doctor, they blame these problems on weight gain. Which makes no sense as the same problems were there before the weight gain. Basically the pain contributed to the weight gain :-(

So getting a doctor to do anything at all here in the UK has been a real uphill struggle. They seem to only be interested in finding the most expeditious way to get you out the door :-(
 
I have the same issues with pain, and I was so annoying and persistent with doctors that they eventually did a lot of testing and said I have fibromyalgia. But yeah, pain meds don't help much with that :(
I also have chronic migraines, which I do take medication for.

The worst pain I've ever had was from endometriosis, and I had a hysterectomy in early October, so I am thankfully free from pelvic pain now.

I would keep being persistent until you can get an MRI. Other suggestions you've been given here are good as well. Best of luck! :)
I'm sorry you get so much pain too Luca :-( I also get migraines, I started getting them when I was a kid and they kinda slowed down for a few years but then they came back with a bit of a vengeance :-(

Actually I've had a few times where I've wondered if I could have something like fibromyalgia, some friends have pointed out that my experience is similar. It certainly seems possible to me, but on the other hand it all seemed to start with one problem or injury. So I'm not sure. The problem is I feel like I'm treated with such suspicion at the doctor's, I tend to avoid going :-(

Thank you for your kind words :-) I guess I should try to build myself up to be more assertive at the doctor's next time! :-)
 
Nerve pain for about 13 years myself. Doctors and therapies can help but it can be very difficult to identify the exact problem. Having a Doctor you think is competent and whom you have good communication with is a starting point I think, so I would look into changing Doctors and starting fresh. The best over the counter I found is Naproxen backed up by Tylenol if necessary. I'm on Gabapentin perscription also but it does not seem to help much, if at all. Sometimes small inprovements can be made by informed gentle experimenting. For Examples: Try walking regularly and see if that helps. Try a warm shower before bed. Try changing the type chair you sit in, etc. Only make one change at a time to be able to clearly evaluate the change, and try to give it enough time to be valid. Be aware of other thing that might be contributing (ie. Anxiety) and consider if treating the one might help the other.
 
That was something else the chiro told me: don't keep your wallet in your back pants pocket. Usually wallets end up quite thick with all the different cards and bits of paper you end up with. If you've got one side of your hip elevated while driving the car, and likely got one arm on the window ledge as well, hitting a bump can crunch your back in an unwelcome way.
 
Nerve pain for about 13 years myself. Doctors and therapies can help but it can be very difficult to identify the exact problem. Having a Doctor you think is competent and whom you have good communication with is a starting point I think, so I would look into changing Doctors and starting fresh. The best over the counter I found is Naproxen backed up by Tylenol if necessary. I'm on Gabapentin perscription also but it does not seem to help much, if at all. Sometimes small inprovements can be made by informed gentle experimenting. For Examples: Try walking regularly and see if that helps. Try a warm shower before bed. Try changing the type chair you sit in, etc. Only make one change at a time to be able to clearly evaluate the change, and try to give it enough time to be valid. Be aware of other thing that might be contributing (ie. Anxiety) and consider if treating the one might help the other.
I'm sorry you also have bad pain too and for so long. I guess this has been going on for quite a while with me too. About 8 years now :-(

I have changed my doctor, but I haven't yet tried the new one as I guess I've become rather cynical after what I have experienced. But of course things will definitely not change if I don't try.

I do pretty much walk everywhere and I try to remain active. The problem is I've got a bad knee too. It puts a limit on how far I can walk or certainly how long I can walk. It's hard not to push my various joint problems too far. Sometimes I feel like "wow I'm doing pretty good today" but then when I try to sleep it all hits me at once. So my sleep is all over the place too.

There seems to be a very fine line between just enough and too far :-(
 
That was something else the chiro told me: don't keep your wallet in your back pants pocket. Usually wallets end up quite thick with all the different cards and bits of paper you end up with. If you've got one side of your hip elevated while driving the car, and likely got one arm on the window ledge as well, hitting a bump can crunch your back in an unwelcome way.
That's something I used to do actually! But since moving to a smart phone I tend to keep my cards etc in my phone case which usually just goes in a jeans or coat pocket. But what you said makes me wonder if the pain in my right lower back and hip may have been caused by doing precisely what you said. :-(
 
So getting a doctor to do anything at all here in the UK has been a real uphill struggle. They seem to only be interested in finding the most expeditious way to get you out the door :-(

Aye, a normal doctor honestly just cant do it for this sort of thing. That's not what they're trained for. You need someone who is JUST about this sort of thing to check you out. Someone who specifically can handle nerve/tendon/whatever stuff.

I will say, I remember the exam that I did related to this (before the MRI) and I recall it being a very different experience from what a normal doctor visit is like; they did different things and focused entirely on just that specific type of issue. And then once that was done, THEN it was time to get an MRI. And then back to the specialist, and we went from there. I got sent to PT after that, and I've been going there for years now. I dont know what I'd do without them.

Honestly one way or another you'll have to find someone else as far as docs go who can give you a proper look, instead of general doctors who dont specialize.

Just take some time and do some research and see who you might find around you that focuses on this sort of thing. That'd be my advice.
 
Aye, a normal doctor honestly just cant do it for this sort of thing. That's not what they're trained for. You need someone who is JUST about this sort of thing to check you out. Someone who specifically can handle nerve/tendon/whatever stuff.

I will say, I remember the exam that I did related to this (before the MRI) and I recall it being a very different experience from what a normal doctor visit is like; they did different things and focused entirely on just that specific type of issue. And then once that was done, THEN it was time to get an MRI. And then back to the specialist, and we went from there. I got sent to PT after that, and I've been going there for years now. I dont know what I'd do without them.

Honestly one way or another you'll have to find someone else as far as docs go who can give you a proper look, instead of general doctors who dont specialize.

Just take some time and do some research and see who you might find around you that focuses on this sort of thing. That'd be my advice.
I think as you and other have said I wil just have to try and see a proper specialist. I guess I will have to repeat over and over to the doctor that I need to see a genuine specialist, not a physiotherapist, who, last time I checked, do not possess x-ray vision.

I sometimes feel a bit like @Outdated mentioned earlier. I get a bit annoyed at the appeals to authority doctors use and their attitude when their attempt to gaslight me into believing I'm not actually in pain, fails to work.

I've had blood tests and ECG results come back with results that warrant investigation and several times I was told there was nothing wrong. It turns out there was. But this was only addressed when I had a phone appointment with my family in the room and my phone on speaker phone mode.

The doctor wasn't aware they were there until they heard the way he tried to fob me off and then he panicked a little and started to finally offer referral to a specialist.

I just feel that I shouldn't have to "go into battle" every time I need medical attention if that makes sense? :-(
 
I sometimes feel a bit like @Outdated mentioned earlier. I get a bit annoyed at the appeals to authority doctors use and their attitude when their attempt to gaslight me into believing I'm not actually in pain, fails to work.
There are some very good doctors out there, but they're very few and far between. With most doctors it really did seem to embarrass them that some low born pleb might know a little bit about their own bodies. What I got from most of them was a defensive attitude and many would completely defy logic and their own training in order to prove me wrong. Like it's some sort of contest.

I'd rather pay good cash to see s specialist without a referral than go through a string of hopeless GPs.
 
There are some very good doctors out there, but they're very few and far between. With most doctors it really did seem to embarrass them that some low born pleb might know a little bit about their own bodies. What I got from most of them was a defensive attitude and many would completely defy logic and their own training in order to prove me wrong. Like it's some sort of contest.

I'd rather pay good cash to see s specialist without a referral than go through a string of hopeless GPs.
I'm sad to say, I feel that most doctors I've encountered over the last 8 years have been exactly as you describe :-(

I had a conversation (read argument) with a doctor where he said I was questioning his "expertise". I just responded that I wasn't claiming to be anything other than an "expert" on my own body and experience.

The problem is doctors are human beings and human beings are largely like electricity, they take the path of least resistance.

There is a statistical phenomenon (I can't remember what they call it) where for example 20% of a carpet receives 80% of the wear. In work environments 80% of the work is completed by 20% of the employees.

I'm quite sure, based on my experience in work, that this is very true. I see no logical reason why the same doesn't apply in a health service or doctors.

The way I see it, if someone had actually been motivated to figure out how to fix my arm then 80% of my current physical issues could have been avoided :-/
 
Since 2008. And other pain before that. I was born with mild hip dysplacia, so I've always walked kinda funny, and been clumsy at some sports. I've endured everything from fibroids to cancer.

One thing is that if you can, please stay off the opiods, benzos, and neurotransmitter medications. They're all very addictive, and as you come down, the pain gets much worse than your original baseline, as the addicted part of your brain craves more.

I think, and I'm no expert, that rest, movement, and topical pain relievers are best. Also treating the cause, and not just the symptoms. But I sound like such a hypocrite, because pain sucks. And relief is bliss.

After all these years, though, I've gotten used to constant pain, and I really don't feel it anymore. Your endurance goes up. Whatever doesn't kill you makes you stronger.
 
Since 2008. And other pain before that. I was born with mild hip dysplacia, so I've always walked kinda funny, and been clumsy at some sports. I've endured everything from fibroids to cancer.

One thing is that if you can, please stay off the opiods, benzos, and neurotransmitter medications. They're all very addictive, and as you come down, the pain gets much worse than your original baseline, as the addicted part of your brain craves more.

I think, and I'm no expert, that rest, movement, and topical pain relievers are best. Also treating the cause, and not just the symptoms. But I sound like such a hypocrite, because pain sucks. And relief is bliss.

After all these years, though, I've gotten used to constant pain, and I really don't feel it anymore. Your endurance goes up. Whatever doesn't kill you makes you stronger.
I'm so sorry that you went through so much pain and illness :-( I'm glad that you don't feel it anymore. You've done extremely well to overcome such challenges! :-)

You are correct that opioids etc can cause addiction. This is one of the reasons why I don't tend to take them unless the pain is impossible to ignore. But to be honest, I've gotten to a point now where the over the counter meds don't touch the pain. The only thing they are good for is migraine these days :-(

I'm in a kind of, always in pain state. Most of the time I can cope but I have to be careful with physical activity as it really is like poking and angry bear :-(

As @Outdated mentioned, nerve pain isn't really mitigated by a lot of pain killers anyway. I suspect that quite a lot of the pain I get is nerve pain. But probably with a good dash of muscle/joint pain too.

I tend to test myself once in a while by going without opioids, (the OTC ones are low dose anyway). And I can just carry on without them but when I do something that sets off the big pain, usually I can't sleep properly for days. And as I say, I don't think the therapeutic value is sufficient to take them any more in most cases.

I suspect there may very well be some more effective pain medicine out there that doesn't involve potential for addiction. But I do think the doctors tend to think I'm after the "goodies".
 

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