Hi elspeth , thanks for your feedback. I can relate to your experience.
I used to control his relationship with his family too (we've been together for 18 years, 15 married), reminding him to call his family every week or two. That brough a lot of problems in my relationship with him, and I didn't understand why.
But a few years ago, in the middle of another marital crisis, he started going to therapy and some unresolved issues from his childhood came up. The thing is, his family is very dysfunctional, and I didn't know the total extent of it.
He suffered a lot growing up in his family.One of his older brothers, 8 years older, used to hit him in a regular basis and none of his older brothers and sisters (older even than his brother) stopped him. Not even his dad, and worse of all, not even his mom, who usually was around the house and could hear him screaming, when his brother was beating him.
So, there was a lot more than just having AS. That was the real reason why, every time I would remind him of calling anyone in his family, he would get angry at me. It took me 16 years to learn the truth because he was too embarassed to say it. And then, it took me another year to realize that it was his right not to call them, if he didn't want to.
Anyway, right now, that's the least of my problems. I almost totally stopped asking him about his family (he would even get angry at me for asking "do you know something about your parents?").
What really troubles me is the "lack of emotional intimacy", as they say in one of the books that I'm reading (Adult Children of Emotionally Immature Parents; I have issues with my parents too).
Regarding the issue of stopping to help him, well, it's been difficult for me to change my habits, but apparently it works. I think he looks happier and he's volunteering to do stuff around the house a lot.
The most difficult part for me is when I have to bite my tongue because I should not praise him or encourage him (according to the book Women who love too much). But really, what I can see in this couple of weeks that I stopped doing that, is that is difficult for me, not for him. He really looks happier these days.
So we are both changing, but most important of all, I am changing (by stopping to help him, and helping myself instead).
In my opinion, a person with AS is like a person with half a leg. Do not expect him to grow the part of the leg that's missing. But I think that it is possible to change to better adapt to reality; buy a pair of crutches, get a wheelchair, and be kinder to the person that helps you. But, the wife has to stop pretending that he has a leg. It's ok if he moves awkward, or slowly.
Who knows, maybe that's what I have to do. Stop pretending we're going to be "perfectly" intimate at an emotional level (he can't grow that missing part of his leg). Maybe just a little bit of emotional intimacy is good enough .
Well, and being able to share my experience here is great too.