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Eating disorders/aspies

Hi everyone,

I thought I'd give my two cents since I've had TONS of experience with eating issues with my 5 year old.

He was born with a sucking delay, problems with texture and GERD (severe reflux)- he was hospitalized for a week at CHEO his first week of life because whenever he drank milk, he would stop breathing and turn blue (feeding/GERD apnea spells). He was put on ranitidine and his milk was thickened.

We then had problems introducing real foods. Could not eat purees until he was about 15 months and could not eat whole foods until after he was 2. He had an occupational therapist for his feeding the first year of his life at CHEO and then on and off for the next several years to deal with his sensory issues (sensory integration disorder has a huge effect on the mouth/tongue/texture for some kids- and a lot of people don't realize this- they usually think of sounds and lights but it can really affect feeding/eating).

Anyways, what we learned was- gagging/throwing up is just the nature of things with children with texture problems- of course if our son gagged/threw up on a food, he refused to eat it again- which means a dwindling list of foods.

So the introduction of dips was VERY important. Kids love to dip and it might be easier, for some kids, to introduce new foods if you set it alongside a nice dip- just make sure the dip is fully pureed with NO lumps. So there's ketchup, mustard, hummus, salad dressing, yogurt, mayo, finaly pureed salsa, guacamalo, dip smoothies- and then you can get really creative and start pureeing fruit and vegetables- the point is to get your child used to these dips, only in small portions, to help dip whole foods. And what's great is all these dips are healthy and provide some great fats. In time, if you want to get really creative you can start adding a pinch of powedered flax seed or a tablespoon of olive oil, for example.

One difficulty we had was keeping mealtime fun- it is very stressful dealing with a non-eater who gags, throws up or stops breathing when he eats. You create a lot of anxiety- in yourself, your child and his siblings. We made the mistake of introducing the TV- this would keep our son's attention away from what he was eating (at the time purees) so we could stuff his mouth as quickly as possible. But this doesn't work because they don't learn to enjoy foods. So having family meals were hugely important- and having fun with the foods, showing off the foods, its colors, smells, etc. by having various plates on the table and everyone trying a few bites from each- and then discussing where the foods come from- and I know this sounds crazy, but even growing the foods in a small garden- just to get your child interested/curious in what they're eating- and thus getting them to try new things. Cooking with the family is another way to get them more involved in the whole process.

Anyways, hope this helps- I know how stresfull it can be dealing with eating disorders- and still at five, our son gags, throws up on foods- still refuses to eat certain foods due to texture, etc., but you just gotta keep going at it and remember to have extra fun doing it. Pushing food on kids will only heighten the anxiety for evryone in the family.

N
 
Ummm, this is a hard topic for me so I am going to tell you about a 'friend of mine'.

This friend of mine, he would only eat a particular sandwich when he was growing up and his family picked on him mercilessly for it, so to hide his shame he would sneak out of bed in the middle of the night, make ten sandwiches and hide them in his room to eat during the day. When he was going to school his mother told him not to waste food so he would force himself to eat everything and bring the scraps and wrappers home as proof, more family teasing ensued when he forgot to take them from his bag for many days.
By now because everyone was picking on him about food and the fact that he was now anorexic because of it, he assumed people were poisoning him despite what the doctors told him and so would only eat things he could get out of an unopened packet. His mother sent him to live with a family friend who forced him to eat liver if he didn't eat his meals and he didn't eat his meals!

When he got a girlfriend later in life he wouldn't eat over her house cause of the idea of poisoning and later when he slowly realized he was just being silly, she then would cook things with foods he didn't like and just not tell him, oh he knew and they had giant arguments which she didn't understand. But now he eats when he likes, usually he cant be bothered as he is alone now and does not see the point

Hopefully this case as I have relayed it, from 'the friend' I mentioned, will help you to understand how an adult looks at how this situation impacts a child once he has grown up ; ]
 
I have been diagnosed with both bulimia and anorexia at different times within the past 9 years.
It's more of a control factor for me, much like most people with eating disorders.

However, people with Aspergers often feels awkward within their bodies so the digestive process can be very uncomfortable for us.
 
I've been eating the same little homemade, square-shaped, frozen waffles every single morning since I was five. ^_^ When I was younger, waffles were *The* Breakfast, and if they weren't there I would refuse to eat anything else. Nor would I eat cheese on anything but pizza, pizza with sauce, mint, or french fries. School lunch consisted of four jumbo marshmallows, rendering all afternoon classes useless in terms of learning. Freshwater eel and freeze-dried bananas were fine though. (It's amazing I didn't drive my parents completely bonkers.)

Nowadays I have an ongoing list of "safe" foods that I eat almost exclusively when at home (currently pasta and peanut butter). I also have a habit of skipping meals when I'm stressed or distracted, which happens often. Somewhere along the way vegetarianism was also thrown in the mix.

Oh, and expiration dates! They are the law to me. Food kept just one day past its date is unfit for human consumption, except perhaps bread (after passing careful examination).
Fortunately, I'm becoming a lot more open to new foods than I was before. I've even attempted to structure a well-rounded diet thingy, and can cook meals decently enough. It's still a bit of an ongoing battle though.

On a positive note, at least I don't worry about gaining weight.
 
I started this thread ... Quintin is now 5 . Still an extremely limited & fussy eater, things are getting better. He stopped gagging & throwing up. I'm letting him try new things on his own . One day at a time. Less stress on my part as well. Still love reading the suggestions . Thanks
 
@ Quintin's mom,

I'm glad to hear that things have improved considerably with Quintin. He's lucky to have a parent who is willing to take cues from him instead of turning meal times into a battlefield.

I was Quintin when I was younger. Back then, nobody was talking about Asperger's & I suspect only a handful of specialists really knew much about it. Kids like me got branded as odd, difficult, spoiled, weird & other less flattering labels. One thing my mother did right was to supplement my sparse dietary options with a multivitamin & an iron supplement.

As a kid, I took a pb & honey sandwich on crustless bread (cut into 4 squares) for lunch every single day for a good 4 years straight. With that, there had to be a med sized RED apple & a small bottle of oj. That's it that's all! For supper I'd eat macaroni & meat sauce. As far as vegetables went, I'd eat peas (small ones only!) carrots (steamed & cubed) & corn (NOT on a cob). Sometimes spaghetti could be substituted for the macaroni or rarely mac & cheese. I'd eat some hamburgers or a hot dog (had to be made to strict specifications). I did like several fruits.

Now, as an adult, I've broadened my dietary spectrum. Still, foods cannot touch or be mixed on a plate. I won't risk eating mashed potatoes anyone else made for fear of encountering a disgusting lump. I'll eat most fruits but NEVER mixed together in a salad. I don't eat any sauces other than my meat sauce or my cheese sauce. Meat has to be free of any tiny fat lumps & must be cooked right through: no pink parts. I don't tolerate lactose & I get ill from any sea food. In order to remain healthy, I take a variety of supplements & according to my Dr. I'm not nutrition deficient in any area. Your son can still be healthy while remaining true to his finicky self. Pushing & forcing could trigger a power struggle that you're guaranteed to lose (& so will he as his stress level sky rockets & his health decreases).
 
Quin was enemic (iron deficit) and was given palafer ( liquid ) in juice daily . After a few months he had more energy. We stopped it for now. It tastes very metallic !
I am so happy he now eats bananas & some bagel with smoked salmon cream cheese.
 
Quintin chose Banana as his 'fruit' to try eating regularly and Potato as his 'vegetable' . I'm ok with this.
One day he may choose a green or red fruit or veg. I'm pretty sure I also have PDD NOS as well so I'm doing what I can to help him without giving myself a nervous breakdown .
Q
 
Good for him! Palafer was the one I used to take. It was a gross brown liquid & it did taste metallic. Now I take 1 x 300mg iron supplement (a pill called Eurofer) daily along with B100 & extra B12, a multivitamin, 1000 IU vit D & Omega 3. These have made a huge difference in my sleep, my moods & even my patience. The B100 unexpectedly made a difference in regulating the mild obsessive tendency I had.

His diet ought to slowly broaden as he grows up. The iron will help not only with energy but overall alertness & concentration. the brain fog many people feel (can make things much worse for Aspies) is often due to iron deficiencies & B12 and D deficiencies.
 

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