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Just Found Out at Age 44

Amy Stone

Well-Known Member
V.I.P Member
Hello Everyone,

My name is Amy and I am recently self-diagnosed with Asperger's at the ripe ol' age of 44! I decided to research and put myself through a battery of tests after I read about some of the symptoms online that matched my own. My son also exhibits the same symptoms and he, too, took the same tests and appears to also have Asperger's.

Honestly, I am still in shock. Behaviors that I thought were uniquely me are now a set of behaviors that belong to a syndrome. My mind is blown. But everything is starting to make sense now.

I have always been considered "odd". Never had more than one friend, if any, my entire life and for the last 10 years, I only have my husband and my 17yo son. I could never figure out why. I always wanted friends. I was always jealous of people who had them. I just never seem to be able to "mesh" with anyone. When I am in social circles, I tend to burn through my list of canned responses of politeness and after that I slowly test the water with my own personality and that is usually when things go south. People just don't like "me", no matter how hard I try or how amicable I try to be. Honestly, I still do not know what I do or say to turn people "off". My guess is it is that I come across as too factual, too logistical, too honest, and cannot connect to anyone on an emotional level. I have been told I come across as "stand-offish" when I stay to the side to observe a new crowd. Sometimes I am Spock. Sometimes Data. So over the years I have learned to limit my social exposure to a max of 1 hour. Any more than that and I tend to be exhausted anyway.

I avoid eye contact. I can force myself to look someone in the eye but it's uncomfortable. I tend to appear submissive and lying when I do that.

I have always been a "Jill-of-All-Trades". I have had many, many various jobs. I get into them, do them well, then get bored and move on. Same with hobbies. I will become obsessed with something for a year or two then get into something else.

Same with moving. I can't stand to stay in one place for more than 2 years. This has proven most problematic the older I get. Part of it is an obsession with the location. Part of it is I burn through "people" and am forever looking for friends. When I can't find them, I want to move somewhere to try a new group of people.

I don't like physical contact. Not a touchy-feely person at all. But I used to fake it for a bit to try and fit in. Now I am old and just don't, unless I feel I am going to offend someone then I will make an attempt to hug someone. I am sure my husband doesn't like this part of me. My son is like me. We tend to "get" each other. Sometimes hugs, sometimes not. I have another daughter who is 15 and doesn't associate with me at all.

I am really, really good at seeing patterns and making connections. I imagine a lot here are as well.

I am a bit OCD. A bit ADD. I like order. I like cleanliness. I am really weird about odors. I am a little weird about texture (like pickles and slimy foods). I am goofy (but only in private). I am creative. I am loving (but I guess I don't show it the same way). I am above intelligence. I am a health-nut. I find switching tasks extremely difficult. Interruptions are a task-killer. I love lists. I love spreadsheets. I love organization. Super sensitive to noises. I am still figuring this all out. I have learned to cope with almost everything except loneliness. I am lonely and fear I always will be.

I have other quirks as well. I am here to find out if they fall under Asperger's.

I have no intention of ever becoming officially diagnosed. The absolute last thing I want is to be discriminated against, especially in the work force. Besides, I don't feel I am "fixable". A psychologist may be able to tell me how to function better in a social situation, but that is just another set of "canned responses"...it would never be who I really am. But I am interested in talking to more people with Asperger's and discovering more about myself and understanding how other people cope.

Thanks for reading.

Amy
 
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Welcome! Many late self and officials dxs abound here. And no one is weird here. Lots and lots of super interesting people here, but no weird ones :-)
 
It's certainly a strange feeling when you read about the spectrum. I too can relate to feeling different/special but then feeling rather shocked how accurately the traits and behaviours of the spectrum described my life.

Social burn out is very real. I've been lucky in that I have had good friends throughout life. My unfortunate tendency was to make friends with people who wound up moving abroad. It's happened a lot in life, and at my current workplace I have no friends - the loneliness is hard.

I think some of us have a tendency to talk people's ear off with our topics/interests. A good thing to try is to ask questions and listen to people's replies - as opposed to monologuing.

For me, eye contact took a lot of practice. Even now, if my mood is poor and my anxiety or depression is bad - I very rarely make eye contact.

Moving on from hobbies and finding new one's is more than a lot of people can say. I think it's good that you have tried various jobs and hobbies - it shows adaptability, which can be a struggle for a lot of people on the spectrum. The wanderlust aspect is intriguing as well. I understand the notion of wanting a fresh start though. I'm moving soon, to a new city. I'm scared though, because I won't know anybody there - it's quite a strange feeling. I guess it just means I have to make more of an effort to meet old friends from previous jobs.

OCD and ADD are common comorbidities with an ASD. In fact 30-50% of people with ASD exhibit symptoms of ADD.

I don't think an official diagnosis would lead to discrimination. At the end of the day - it's up to you who you shared this information with. I'm on a waiting list for an autism assessment as well as one for ADHD. I'm looking forward to them. I did numerous online tests, joined this forum over a year ago, and I've read a lot of books on both conditions. I know deep down that I have these - I guess an official diagnosis for me would lead to a better understanding, and also a feeling of gratitude I suppose.

At the end of the day, an ASD is just an aspect of our multi-faceted persona. Some people will live in the shadow of a diagnosis, whilst others will be happier to integrate new knowledge into how they already think, feel and process life and the world around them.

Anyway, welcome to the forum.

Ed
 
@Raggamuffin Yes I do believe you are correct on dominating a conversation with one topic. I tend to do this after I run out of my canned responses of politeness. I guess I am trying to sound interesting and engaging on something because when the topic changes to something else that I am not familiar with, I do not know how to respond. Plus I am usually not interested. This is a good thing to be aware of.
 
I tend not to take a lot in when people talk to me. Even when reading I can often skim read conversations and responses etc. It's actually one of the characteristics of ADD - issues with concentration when being spoken to, or when undertaking tasks which have no interest to you. Usually people with ADD do best when focusing on something they're passionate about, or if they're forced to concentrate because if they don't get something done there'll be unpleasant consequences. Could be a contributing factor as to why job, hobby and location burn out happens to you perhaps?

Ed
 
You are on the younger end of diagnosis I was nearly 46, oldest person in the UK 83.
One thing to be aware of! if you're blessed to never have health problems you'll never need to think this!if a therapy might be toxic ,people with autistic neurology are sensitive to medicines .
Lord Cavendish like you never officially diagnosed ,was thought to be the ironically named high functioning !,but that's the label therapists oh the irony! put on people and died never diagnosed.
 
@Raggamuffin I am still sorting out what is ADD/ADHD and what is Asperger's. I believe I do have ADD/ADHD and can relate to what you are saying. I do skim conversations/responses and have issues with concentration on tasks that have no interest to me. I am constantly in a battle with myself that there will be "unpleasant consequences" if I do not complete a task. I do not understand the connection you are making between that and job/hobby/location burnout though? Perhaps you can elaborate?

Amy
 
Hi there and welcome!

People just don't like "me", no matter how hard I try or how amicable I try to be. Honestly, I still do not know what I do or say to turn people "off".

Oh, you are not alone there :-) I usually come across as quite charming, interesting and charismatic at first but then with time I somehow become hardwork. I can totally relate!

You'll find a welcoming environment here with lots of interesting threads and a very considerate culture amongst people, its great!
 
@Raggamuffin Thanks for the link. This confirmed other tests I have taken:

ADHD: 29/48 High Probability
Anxiety: 21/40 Likely Suffering
Autism: 23/30 Strong Likelihood
OCD: 32/72 Moderate to High
 
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I spent a while hammering them out and scored very highly on most. I think there is a fair amount of crossover with certain traits and conditions.

Ed
 
Hello Everyone,

My name is Amy and I am recently self-diagnosed with Asperger's at the ripe ol' age of 44! I decided to research and put myself through a battery of tests after I read about some of the symptoms online that matched my own. My son also exhibits the same symptoms and he, too, took the same tests and appears to also have Asperger's.

Honestly, I am still in shock. Behaviors that I thought were uniquely me are now a set of behaviors that belong to a syndrome. My mine is blown. But everything is starting to make sense now.

I have always been considered "odd". Never had more than one friend, if any, my entire life and for the last 10 years, I only have my husband and my 17yo son. I could never figure out why. I always wanted friends. I was always jealous of people who had them. I just never seem to be able to "mesh" with anyone. When I am in social circles, I tend to burn through my list of canned responses of politeness and after that I slowly test the water with my own personality and that is usually when things go south. People just don't like "me", no matter how hard I try or how amicable I try to be. Honestly, I still do not know what I do or say to turn people "off". My guess is it is that I come across as too factual, too logistical, too honest, and cannot connect to anyone on an emotional level. I have been told I come across as "stand-offish" when I stay to the side to observe a new crowd. Sometimes I am Spock. Sometimes Data. So over the years I have learned to limit my social exposure to a max of 1 hour. Any more than that and I tend to be exhausted anyway.

I avoid eye contact. I can force myself to look someone in the eye but it's uncomfortable. I tend to appear submissive and lying when I do that.

I have always been a "Jill-of-All-Trades". I have had many, many various jobs. I get into them, do them well, then get bored and move on. Same with hobbies. I will become obsessed with something for a year or two then get into something else.

Same with moving. I can't stand to stay in one place for more than 2 years. This has proven most problematic the older I get. Part of it is an obsession with the location. Part of it is I burn through "people" and am forever looking for friends. When I can't find them, I want to move somewhere to try a new group of people.

I don't like physical contact. Not a touchy-feely person at all. But I used to fake it for a bit to try and fit in. Now I am old and just don't, unless I feel I am going to offend someone then I will make an attempt to hug someone. I am sure my husband doesn't like this part of me. My son is like me. We tend to "get" each other. Sometimes hugs, sometimes not. I have another daughter who is 15 and doesn't associate with me at all.

I am a bit OCD. A bit ADD. I like order. I like cleanliness. I am really weird about odors. I am a little weird about texture (like pickles and slimy foods). I am goofy (but only in private). I am creative. I am loving (but I guess I don't show it the same way). I am above intelligence. I am a health-nut. I find switching tasks extremely difficult. Interruptions are a task-killer. I love lists. I love spreadsheets. I love organization. Super sensitive to noises. I am still figuring this all out. I have learned to cope with almost everything except loneliness. I am lonely and fear I always will be.

I have other quirks as well. I am here to find out if they fall under Asperger's.

I have no intention of ever becoming officially diagnosed. The absolute last thing I want is to be discriminated against, especially in the work force. Besides, I don't feel I am "fixable". A psychologist may be able to tell me how to function better in a social situation, but that is just another set of "canned responses"...it would never be who I really am. But I am interested in talking to more people with Asperger's and discovering more about myself and understanding how other people cope.

Thanks for reading.

Amy

Welcome to Autism Forums! I am officially diagnosed with Asperger's Syndrome. I have never been discriminated against because of it. However, I do not tell many people about my diagnosis. Most people either will not or can not understand and you would not believe some of the things that they think. So for me. it is on a need to know basis only.

As far as "fixable" is concerned, of course your not fixable because you are not broken. You are just different than most people and that is not a bad thing. One of our smartest members, Warm Heart, once said "It is better to be a nerd, than one of the herd". I agree.

I cope with my autism by knowing that it is a good thing for me. It allows me to do thing and understand things that others can not. If medical science came up with a cure for autism and offered it to me, I would decline without hesitation.
 
Welcome to the forums, Amy :). I surprised no one identified your son as possibly ASD. Does he have any problems at school? Did anyone ever suggest getting him evaluated?
 
@MyLifeAsAnAspie Nope. No one mentioned it. He is pretty good at masking in public. He just moved in with me full-time last fall and to me it's blatantly obvious. Last fall he also started seeing a psychologist (for other reasons) but even she didn't mention anything until I suggested it to her. We think she was a "bum therapist" so we are trying a new one this week. Either way, he doesn't want identified because he doesn't want it on his record either.

He is like me, can't function in social circles but is fairly intelligent. When he was physically in school he was getting B's and C's...sometimes D's. With Covid, he was/is doing all remote classes and taking college courses and getting straight A's. I wish more schools would recognize the benefits of remote learning for kids (and adults!) with Asperger's.
 
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