Looking for participants!

[Tom]

The Facebook approach is reasonable. At this point the main goal is learning the survey/questionaire process which requires measurable data. I don't actually require donuts to complete surveys, but instead look for researchers that see the group as people, not just lab rats and a grade and invest the time to answer questions engage with the population. You passed the test so I did the survey.

 

[china autie]

I hate fakebok. And won't do it.

I have found autistic community on other sites though-- this one is the one I like the most.

If you want to say, what factors when into your decision to research something about autistic adults?
And are you familiar with The Disability Quarterly Review? (I may have the title mixed up but all three words are in it). It is a free online peer-reviewed scholarly approach to disabled people, including autistics. It is in my opinion worth your while to check out.

Are you autistic? Do you have autistic relatives or friends?

I am glad you are here. There are other allistics on this site too so if you are allistic, it is okay to be here.

 

[lana_psychology@ntu]

The Facebook approach is reasonable. At this point the main goal is learning the survey/questionaire process which requires measurable data. I don't actually require donuts to complete surveys, but instead look for researchers that see the group as people, not just lab rats and a grade and invest the time to answer questions engage with the population. You passed the test so I did the survey.

Aw thank you I appreciate that

 

[lana_psychology@ntu]

I hate fakebok. And won't do it.

I have found autistic community on other sites though-- this one is the one I like the most.

If you want to say, what factors when into your decision to research something about autistic adults?
And are you familiar with The Disability Quarterly Review? (I may have the title mixed up but all three words are in it). It is a free online peer-reviewed scholarly approach to disabled people, including autistics. It is in my opinion worth your while to check out.

Are you autistic? Do you have autistic relatives or friends?

I am glad you are here. There are other allistics on this site too so if you are allistic, it is okay to be here.

I'm not autistic, thank you for your kind words I will definitely have to look in to the 'disability quarterly review'. I appreciate the advice.

 

[Monachopia]

From what I've seen around the forum, quite a few people don't really use Facebook. I don't use it to post anything, only to keep in contact with my sister and to keep track of events. I know it's a good basis for social media research and autism, but there may be fewer participants than you'd like. As @Judge said, places like this forum are a better measure as we seek out places where we don't feel like outsiders - and most of our lives, we've always felt like we're on the outside looking in. Because of this factor, places like Facebook seem trivial and usually don't fit with our lives to the same degree as it does for neurotypical people. A lot of us have social anxiety too, which is a contributing factor to aversion to mainstream social media.
Personally Facebook only depresses me, it only reminds me how different I am. I'm more prone to use Instagram to post art I make, as it's less interactive and there seems to be less eyes/judgement there.

I hope you take some of these factors in and reflect on ASD people's frequent comorbids, such as ADHD, depression, social anxiety and OCD which might skew your results.

I'll forward your questionnaire to my sister, she uses Facebook much more and is strongly suspected to be on the spectrum, that's the least I can do.

Again, I wish you all the best with your study.

 

[lana_psychology@ntu]

From what I've seen around the forum, quite a few people don't really use Facebook. I don't use it to post anything, only to keep in contact with my sister and to keep track of events. I know it's a good basis for social media research and autism, but there may be fewer participants than you'd like. As @Judge said, places like this forum are a better measure as we seek out places where we don't feel like outsiders - and most of our lives, we've always felt like we're on the outside looking in. Because of this factor, places like Facebook seem trivial and usually don't fit with our lives to the same degree as it does for neurotypical people. A lot of us have social anxiety too, which is a contributing factor to aversion to mainstream social media.
Personally Facebook only depresses me, it only reminds me how different I am. I'm more prone to use Instagram to post art I make, as it's less interactive and there seems to be less eyes/judgement there.

I hope you take some of these factors in and reflect on ASD people's frequent comorbids, such as ADHD, depression, social anxiety and OCD which might skew your results.

I'll forward your questionnaire to my sister, she uses Facebook much more and is strongly suspected to be on the spectrum, that's the least I can do.

Again, I wish you all the best with your study.

Thanks for the feedback, the discussion on this post alone has provided a lot of information for me to think about. Regarding the comorbids you mentioned, it's a very valid point that I have considered and will definitely be discussed in the write up of my dissertation.

I'm incredibly grateful for you forwarding my research on. Thank you to everyone that has given me feedback, it really is interesting to read everyone's perspectives.

 

[Sarah S]

I can only agree with China Autie & Monachopia here 101 %. I tried to start said Question form but im afraid as im also NOT a FB friend (i do have FB account but as been stated above its only to keep contact with a few friends and a member in certain interest close groups i NEVER put in any content as ive been burnt one time to many for opening my mouth in there) + I couldn't actually understand this special code required and what not So might i suggest something less complicated to get started as well

 

[lana_psychology@ntu]

I can only agree with China Autie & Monachopia here 101 %. I tried to start said Question form but im afraid as im also NOT a FB friend (i do have FB account but as been stated above its only to keep contact with a few friends and a member in certain interest close groups i NEVER put in any content as ive been burnt one time to many for opening my mouth in there) + I couldn't actually understand this special code required and what not So might i suggest something less complicated to get started as well

The code is made up by you, and you only need it if you wish to withdraw your response. I have to ask for a unique identifier because of ethical reasons. I'm sorry for the confusion

 

[Sarah S]

No problems im shore you will get others to help better then i can in the questions anyway

 

[lana_psychology@ntu]

No problems im shore you will get others to help better then i can in the questions anyway

I appreciate everyone's responses, but I won't pressure you into answering Hope you have a nice day

 

[Sarah S]

Thank you

And as Monachopia stated before i would say based on my own
experience in interacting with others in said NPD spectrum in general id say youre research will probably conclude the opposite of whats suggested so far , that sadly that the majority of us are lone wolfs and stay out of Social medias al together (we end up in this kind of lovely welcoming forums were we can be accepted for what and who we are rather then be looked upon as complete idiots (speeking for my self based on my own experiences) And what few REEL friends we have in reel life is usely on line (in my case id say 98 % is on line , 1 % phone , 1 % RL =reel life )

Hope this helps some in youre resurch & i defenetly wish you a successful career in you're chosen profession (we need SO many of you willing to solve this NPD diagnose mystery. & also i might suggest you stay and hang around cause in here you will see the REEL NPD diagnose and the persons behind them

Oh and have lovely day as well