New Here And Out Of My Comfort Zone

[Nemo]

 

[Blast off]

One thing you should do if possible, is to get reassessed, the reason being is that aspergers is no longer considered a diagnosis under the new manual DSM5 . I don't know where it went, but according to whomever wrote the manual it somehow no longer exists... Which screws A LOT of people over, and forces them to be reassessed. Make sure like warmheart said, to get assessed by someone who is experienced in ASD diagnosis, due to the misdiagnosis factor, especially in women. Hope this helps, and good luck!

 

[Blast off]

Welcome by the way, I enjoyed chatting with you in the chatroom.

 

[Nitro]

 

[KarFaiN]

@Blast off


I'm aware of the DSM changes. I feel like it's a step in the right direction. Labels only serve to hurt people. But I do have to get reassessed now, and I am completely broke, so I'm not sure how that's going to happen.

 

[toothless]

hi karfain welcome to AC, i hope you get used to it here-its good once you finally stop lurking and join in, its a pretty jolly 'chilled' community you dont get childish drama here.

you will know already but itll be harder for you to get support as the medical community isnt trained enough on female presentations of autism,so you need to get as much of your developmental history and current experiences as possible together.
even i present a bit differently-i am biologically female [though female to male trans] and i was classified as severely classic autistic up until a few years ago,and some people assumed i wasnt because im not totally introvert and im very caring and polite.

I agree.

I take care of my dad while my mom works. She is a nurse. If I didn't he would end up in a nursing home. He says if that happens, he will stop eating and die.

That plus living in the country, with no transportation of my own, I'm pretty much stuck, for the foreseeable future.

dudbomb,you are a good guy for doing what your doing-id do the same for my parents if they were in the same situation and i had the functional capacity.
i have lived in institutional and residential care since 18 and i totally understand your dads decision as care homes are vile-especially for people who are independant or need a lot of stimulation for physical/ mental/ intellectual etc reasons,theres very little stimulation in them for the service users although some of them do try harder,the worst thing is every thing in the facility is done one size fits all,the food budget they recieve from everyones money is usually spent on absolute crap.

and some service users dont get much support in them so theyre effectively housebound as theyre not allowed out without staff,despite having always had my own 2:1 support i never got out of a particular autism specialized facility despite having my own motability car-i wasnt allowed to go in the mini bus with the other service users as my risk assessment said i was violent around others but that was due to an incident where a profoundly autistic lady took a chunk of flesh out of my arm while i was away in my own world and i reacted out of fight or flight and broke her nose,funnily enough-they didnt say anything about her being violent when sat with other service users...anyway sorry i apologise i waffle onto a totally different subject.

older people lived all their lives being independant,then they get stuck in institutionalised care homes with patronising staff who are paid so little that their resentment about their wages passes onto the older person.i see it so often in the company im supported by.

 

[KarFaiN]

I read the male-female bias on autism on Pinterest, of all places. I found a chart of "aspie" woman manifest symptoms and found it to be extremely accurate.

I was referred here by Facebook. I follow a Facebook group for autistic people, and someone asked the group opinion of WrongPlanet. Someone replied saying WrongPlanet was terrible and suggested this instead. I like this place better

 

[KarFaiN]

 

[Blast off]

I'm aware of the DSM changes. I feel like it's a step in the right direction. Labels only serve to hurt people. But I do have to get reassessed now, and I am completely broke, so I'm not sure how that's going to happen.

Hmm you don't have any healthcare? I thought it was now possible for everyone back home or not? Haven't checked into it for a while. I know how hard the healthcare game is, its part of the reason I live in Japan. I wish I had more advice to give you, but I haven't really been in your shoes, so to speak. Lots of people here have some really great experience and are literally fountains of knowledge. Keep asking, listening, and learning, the answers will slowly come.

 

[KarFaiN]

Hmm you don't have any healthcare? I thought it was now possible for everyone back home or not? Haven't checked into it for a while. I know how hard the healthcare game is, its part of the reason I live in Japan. I wish I had more advice to give you, but I haven't really been in your shoes, so to speak. Lots of people here have some really great experience and are literally fountains of knowledge. Keep asking, listening, and learning, the answers will slowly come.

Nope, I have minor vision and dental through my mom's job but that doesn't help much...

 

[xudo]

Welcome

 

[KarFaiN]

The ACA made it easier for people to get healthcare, but not if you don't have steady income...and it will likely die soon, due to current events.

 

[Crossbreed]

I do have to get reassessed now, and I am completely broke, so I'm not sure how that's going to happen.

1. See if you are eligible for Medical Assistance.
2. When applying for SSI/Disability, they provide a free evaluation (though my examiner wasn't versed in ASDs).
3. Your attorney may have other ideas. Be sure to tell them of your school history and the Autism Society of [your state] for seeking qualified examiners.

 

[KarFaiN]

The Autism Society in my state (Florida) meets in Orlando, Niceville, Sunrise and Jupiter. I live in North Florida, so it might be able to provide something, but I can't meet anyone.

I'm working with VR and The Arc right now-they have an apartment complex in my city that I'm trying to get into. I have to apply for SSI anyway bc that's part of the info they need.

 

[kay]

Welcome. Wish I had some helpful information for you. I'm also female and diagnosed with aspergers. My favorite blog was Musings of an Aspie but I found it just as it was put into what seems to be a permanent hiatus. It is written by a female and even though nothing new is being posted it's still worthwhile reading.

 

[Ambi]

Posting on public forums makes me uncomfortable. But I'm looking for a community, and I don't think I'll get it by lurking, so here I am.

I was diagnosed with Asperger's at 12, but aside from accommodations in public school, I haven't had much education or help with it since then. I was convinced I could live without them, if I tried hard enough, and my goal was to fill the gaps in me to become a normal person. Predictably, I hit freefall pretty much as soon as I started college. I used to think my mindset just came from the world around me, but being stuck at home with family has made me realize that that is their mindset, as well my school and the world at large. Now I have to change, not only because my mindset is changing, but because I believe I have something to do here, and everything I am is a part of that.

So I'm attempting to apply for services-not easy to do when all your diagnosis paperwork is 12 years old-and trying to connect somewhere. Anybody have any pointers?

I'm sorry, I don't have pointers, but I just wanted to say welcome, and I really relate to what you said about feeling uncomfortable about posting on public forums, but wanting community, and then being convinced I could handle education without accommodations, and then not doing so well. I recently crashed and burned. But I am at a stage where I can hopefully just land a job. I hope you get everything you need to be successful in your goals!

 

[KarFaiN]

I'm sorry, I don't have pointers, but I just wanted to say welcome, and I really relate to what you said about feeling uncomfortable about posting on public forums, but wanting community, and then being convinced I could handle education without accommodations, and then not doing so well. I recently crashed and burned. But I am at a stage where I can hopefully just land a job. I hope you get everything you need to be successful in your goals!

I'm glad you can relate. Do you want to compare experiences? I'd be nice to talk to someone who fully understands.

 

[Ambi]

I'm glad you can relate. Do you want to compare experiences? I'd be nice to talk to someone who fully understands.

Sure! That would be nice for me, too. Let's PM about it.

 

[KarFaiN]

Sure! That would be nice for me, too. Let's PM about it.

I can't access your page.

 

[Warmheart]

Welcome! If you have a diagnosis of Asperger's, (or any of the other earlier categories) you do NOT need to get reassessed. Your diagnosis stands. It is simply now documented with current specialists as "Autism Spectrum Disorder." You already have a diagnosis, save your pennies.

If you're in USA, find a local chapter of The Arc. Ask if they have an "Autism NOW Center." They help support adults as well as kids on the plectrum, and this means help with independent living, job skills training, social skills classes, support staff to help you in the community running errands or going to appointments, etc.

Best success to you, and again, welcome to AC!