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Occupational Therapy Sensory support information

Rachie

Well-Known Member
I have decided to share some of what I covered with an OT specialist last year on grounding techniques mostly. I have cut out my main personal information that I wanted and their details. If you can take anything away feel free, that is why I am posting it. It was free on the NHS and I look to it for grounding guidance myself when I need to as sometimes I feel a need to hit the floor when I cannot outside to ground myself. I know we have our own personal needs, but lots of this information is standard general for everyone. I saw them as I met the criteria under the ADOS scores for Autism for sensory they approached me after testing. Hopefully, it may help someone. I have do some issues sensory seeking as well hyposensitivity but I am more hyper it seems. I left some information on exercise that I cannot do it currently as my situation has changed, but it is healthy for most people so I have left them in. ASH scores was a spiral test for sensory.

I am going to it in a new post;. I purposely left in some personal information to get of my experiences.
 
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OT weekly notes

26/01/2023


To become more aware of sensory strategies that can help me

To continue to think about & use what I find helpful that alerts or calms me and to avoid what can trigger me

Goal for next week:

To take the following with me on Monday; blanket, fidget toys, ear defenders to help with anxiety (to keep in bag so that I can feel them discreetly if needed)

To practice a body mindfulness exercise by lying down on a flat surface and concentrate on breathing, feeling the sensation of the breath and focusing on my body, letting go of thoughts in my mind. Lavender oil may be good to use before & after

To include movement in my everyday routine

Goal for next week: to use my stepper for 10 mins in the morning and 10 mins in the afternoon. To think about other ways to receive proprioceptive feedback – the ‘proprioceptive’ sense is the one that helps us to feel grounded

02/02-2023

Daily routine

To begin completing a weekly timetable online to look at activities during day to include times to engage with sensory/grounding techniques

XX to email RO a timetable

XX to contact possible community services

RO reports at time not feeling connected to this world and wants to learn more about ways to ground herself.

Engagement with interests

RO spoke enthusiastically about her enjoyment of finding waterfalls, visiting the theatre for musicals and dance productions. Also brought up mixed feelings about turning 50 but then could identify that she is in a much better place than she was on past milestone birthdays, this acceptance can help her to move forward.

Sensory Integration

RO was supported to engage with a brief mind/body breathing exercise. RO was observed to engage with the activity whilst sitting down and she reported liking the brief time when she felt the rise and fall of her chest. RO was encouraged to practice and advised of the benefits or repeated practice.

23.02.23

Hi Rachel,

As promised, I’m sending you a summary of our conversation today;

– xxx gave recommendations on different strategies to try to manage this. Strategies include using different body postures such as rolling body up with head to chest (foetal position), walking and using large arm movements. Xxx to send other proprioceptive exercises

Rachel to use restorative techniques when returning home to help with the adjustment

XXX to send information on introception

Thank you & Kind regards,

xxx

Occupational Therapist

01/03/2023

Main points discussed:

Can feel overwhelmed when leaving the flat, discussed strategies to help manage such as sitting down to practice deep breathing, use of sensory hand item and looking at a picture of a waterfall and saying out loud ‘I can create a positive change’.

Discussed assessment findings and explored sensory items, particularly those that offer proprioceptive feedback

................................
Stand up and put your feet firmly on the ground

Move about: stretch, stamp your feet, jump up and down, dance, run on the spot, rub your arms and legs, clap your hands, walk, remind yourself where you are right now.

Try to think about different things, almost like playing mental games, for example: count backwards in 7s from 100, think of 10 different animals, 10 blue things, one animal or country for each letter of the alphabet, say the alphabet slowly, say the alphabet backwards etc.


Carry a grounding object with you. Some people carry a stone or other small object, perhaps which has personal meaning, to comfort and touch when you need to

Ask yourself questions in order to bring yourself into the present. Write down your own questions, for example:

  • Where am I, right now?
  • What day is it?
  • What year is it?
  • How old am I?
  • Where do I live?
.....................................
SENSORY WORK BELOW….

Problem areas to work on first:

Proprioception/vestibular/tactile & auditory problems

Gravitational insecurity



What can help?

Proprioceptive input is an active movement of muscles. Tendons and joints activate the proprioception system. The jaw house a high proportion of proprioceptive receptors, so many sucking and chewing motions provide calming effects.

Proprioceptive input can be calming, energising, and organizing.

Other ideas include sucking thick smoothie through a straw


What do the different sensory activities do?

Hand weights, you can use these whilst sitting and also in the exercise below;

Stand upright holding the weights above your head, slowly bend forward as far as you can with straining and then slowly raise the hands up and then lower to rest by your sides

Squidgy poppet & other handheld items

Blowing bubbles uses proprioception
- Other ideas include sucking thick smoothie through a straw

Shutting eyes and practicing standing on either leg with eye closed – this helps with gravitational insecurity which is connected to your balance

Try completing these exercises in the morning to help achieve a grounding, calming effect. If you feel that you need them later in the day, do them again!


At times when you become overwhelmed with thoughts practice using the foetal position and gently rocking. Also use the LED lights if you think that will help to distract from the thoughts and help to provide a calming environment whereby you can practice the positive mantra of ‘I can create positive change’.

Important points: Slow, linear and rhythmical movements are calming, and fast, rotary and erratic movements are excitatory


I am excited to hear about your experiences of using the sensory strategies. As you practice more we can explore when in the day you may need them more and what type of sensory input you need and then your sensory diet can be tailored to you.

XXX

Occupational Therapist

10/03/2023

Hi Rachel,

It was good to see you today, here is a summary of what we discussed, I have written it in the first person, is that helpful?:

  • I want to look after myself and keep physically well
  • I will use sensory strategies to help calm me when I start to feel overwhelmed
  • I will use postcards to write positive self-statements so that I can visualize the words when I need to use them
  • I will practice saying these out loud when the negative thoughts that say ‘give up’ become loud
  • Liz will make a referral to IMAGINE day services as this could offer opportunity to engage with support in the community and meet others


23/03/2023

Hi Rachel,

Please find a summary of what we discussed & forward plan this week:

. We explored again different ways to manage stress.

  • Rachel said that she has been practicing different sensory strategies to help when feeling anxious and found these helpful.
  • She said that she finds it difficult to remember what to do when she needs it, a visual diagram may help to prompt memory

Rachel expressed worry about upcoming family celebrations at her sisters this Saturday. She said that her parents do not understand her ED and she is fearful of what they may do.

Discussed coping mechanisms with what to do if she starts to feel overwhelmed.:

To go to a bedroom upstairs and use deep breathing, rocking and body tapping as ways to calm, to try this every hour may be helpful.

To further explore:

  • sensory diet with more specific times of when to practice certain activities
Plan: OT to send summary of discussions.

To email chart showing hyperarousal/hypoarousal to help map sensory activities to changing states - sensory diet

Next h/v booked for Thursday 30th at 10am

Kind regards,

XXX

Occupational Therapist

03/04/2023

Hi Rachel,

Please find below a summary of what we discussed last week;

Discussed the use of a sensory diet and thinking about timings of different activities. Rachel said that she would like to purchase herself a rocking chair and has begun to look online at the options. Rachel is also open to considering walking as an option of a grounding/calming strategy. This was discussed within the boundaries of walking to nearby park.

Rachel had visited Blenheim Castle last week and showed OT pictures she had taken on the day. Engagement in interests which are healthy was strongly encouraged.

Plan:
OT to send summary of discussions

Next appointment booked for Thursday 20th April at 10am

Xxx
 
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ASD Sensory Assessment Service
Sensory Assessment Report

Reason for Assessment

To provide support and advice with sensory difficulties from receiving a diagnosis of Autism.

Summary of Assessment

Sensory integration is the neurological process of receiving information through our senses, understanding and organising this information and using it to move and do things effectively in our environment. Problems in integrating sensory information result in difficulties in everyday life skills and can have a significant impact on people’s quality of life.

The sensory systems assessed were:

  • Vestibular (balance and movement)
  • Proprioception (awareness of body position and movement)
  • Tactile (touch)
  • Visual (sight)
  • Auditory (sound)
  • Taste / Smell
  • Postural Control
  • Motor Co-ordination
  • Interoception (understanding and feeling what is happening in the body)
Rachel received a diagnosis of Anorexia Nervosa at the age of 14yrs, this year she received a diagnosis for Autism which came from a referral.

Rachel particularly finds difficulty with auditory & language processing. If in an environment with lots of people speaking Rachel will tune out as she is not able to process what is being said. A written summary of what has been discussed is helpful for Rachel to process slowly afterwards there is a complexity to Rachel’s difficulty with eating as she has a co-morbid mental illness of anorexia nervosa. Rachel has begun to use sensory strategies to help calm and restore, she uses these at certain times through the day.

Rachel reported that her sensory difficulties impact on her life, at times preventing her completing planned tasks and activities, especially where they involve time out of the house. Rachel also identified that she avoids certain activities as a way of reducing the sensory input.

Rachels’ AASH produced a total score which fell within the definite difficulties range. This included definite difficulties within modulation and discrimination.

The ability to regulate her responses to sensory input, in particular to:

Visual-spatial processing

Auditory & Language processing

Movement (Vestibular Processing)

Taste & Smell

Touch (Tactile Processing)

Proprioception

The assessment suggested that Rachel displays more difficult y with sensory over-responsiveness rather than being sensory seeking, particularly with:

Sensory seeking behaviours in:

Movement seeking

Sensory Over-responsivity in:

  • Discomfort with imposed touch
  • Tactile-related hygiene
  • Discomfort with water
  • Atypical pain response
  • Gravitational Insecurity
Recommendations

  • Continue to use strategies and techniques that Rachel has found to reduce sensory over-load
  • Use quiet, calming space to destress and self-regulation
  • Learn meditation and/or relaxation techniques to help contain stress caused by sensory difficulties
  • To continue to use headphones to minimize the sensory overload Rachel experiences from everyday sounds
  • Consider the use of sunglasses and / or hats with a brim to reduce some of the visual input while travelling
  • To continue to use the rocking chair at home as Rachel finds rocking motion soothing
  • To take regular movement breaks when at home, as this will provide proprioceptive, vestibular and tactile feedback and help with regulating sensory overload, thus improving Rachel’s ability to concentrate when she returns to the task
  • Rachel may benefit from reading some literature on sensory difficulties:
  • Carol Stock Kranowitz “Out-of-Sync Child Grows Up, Coping with Sensory Processing Disorder in the Adolescent and Young Adult Years”
  • Winnie Dunn “Living Sensationally, Understanding Your Senses”
XXX

Occupational Therapist
 
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Wow, thank you, yes it's appreciated, I can't even get a GP appointment at the moment, so this is gold dust!
 
Wow, thank you, yes it's appreciated, I can't even get a GP appointment at the moment, so this is gold dust!
That is my pleasure. Hope you can take something away from it. It is not good that you cannot even get a GP appointment. Not sure where you live. I live in London UK. I know some surgery do on the day emergency ones. You don't need to state your condition. I just got one on the day yesterday and got support on the same day for lack of sleep issues. As I wrote a lot of what I pasted is general really that will cover a lot of people. Now in the morning I try and ground myself before I start the day. I looked through the emails I was sent and complied it to try and help my situation move forward with my grounding overwhelming meltdown issues myself.

I have done the naming animals ones, where am I, breathing fidgets.rocking chair...been working my way through them all. May be I should leave the sensory brush alone and stick with body tapping as recommended.
 
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I have these LED lights for my ceiling, I use them rarely when I feel drawn to use it.
https://www.amazon.co.uk/gp/product/B09CHHLYRF/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1I found blue stars more natural than the green stars they sell.

Also, my rocking chair. Lol, I have a one bedroom flat and live alone and don't have the space for a big rocking chair. I'm 5ft5 about but my body fits the chair easily and my feet are firmly placed on the floor but get the rocking motion with no space taken up good one. I even got mine of gumtree for next to nothing and it was ready made as I would be useless at making it myself it works well. If you have small children and you are petite borrows theirs for 10 mins to ground yourself in morning 2 in 1 lol.
They sell it in Ikea

https://www.ikea.com/gb/en/p/sundvik-rocking-chair-white-80201740/
I like soft squishy fidgits the best. This is my best one. https://www.amazon.co.uk/dp/B01BLKGCBS?psc=1&ref=ppx_yo2ov_dt_b_product_details
 

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That is my pleasure. Hope you can take something away from it. It is not good that you cannot even get a GP appointment. Not sure where you live. I live in London UK. I know some surgery do on the day emergency ones. You don't need to state your condition. I just got one on the day yesterday and got support on the same day for lack of sleep issues. As I wrote a lot of what I pasted is general really that will cover a lot of people. Now in the morning I try and ground myself before I start the day. I looked through the emails I was sent and complied it to try and help my situation move forward with my grounding overwhelming meltdown issues myself.

I have done the naming animals ones, where am I, breathing fidgets.rocking chair...been working my way through them all. May be I should leave the sensory brush alone and stick with body tapping as recommended.
Until this year I didn't understand how important our proprioception sense is as the foundation for the other senses, if it is disregulated then so will my other sensory sensitivites. Im listening to Niamh Garveys book on audible, I might get a hard copy because its difficult to take the level of detail in, but Im finding it helpful from a physiology perspective in particular.
https://books.google.co.uk/books/ab...AAQBAJ&source=kp_book_description&redir_esc=yI'm in a remote corner of the UK, and my current ailments don't meet the ctiteria for an emergency GP appointment, but its difficult for everyone here it seems.
The rocking chair idea, we had one at home growing up and I've missed the sensation, I just might see what comes up on gumtree!
 
Ebay may be a good place to look as well for ready made rocking chairs. I didn't call my GP about my sleeping but it came up. She said my speech was pressured and I said it was because I was really tired and she supported me with that. I called her concerned if one of my stims talking to myself was safe and she said there nothing wrong with it, continue if it supports you. I was very relieved to hear that to say the least.

I looked through my emails and it seems I only had 8 sessions with my sensory specialist last year and I was expected to have 12 sessions for my sensory, but I went into hospital so it had to be halted sooner.
I have asked my consultant to approach my former sensory specialist on my behalf with a question about the sensory brush if she recommends it for me. I also asked if potentially I could have my 4 outstanding sessions that I never had, but we pretty much wrapped everything up though. Things have worsened for me since I saw her last physically and with some symptoms.

I have attached four more sensory photos of what I own. I have a litte waterfall as well and the gaming console with puzzle games and old 3DS XL from ebay with some retro games helps to distract me as well. I blew some bubbles this morning getting some morning air. I have a blended aromatherapy blend for relaxation. A friend of mine years ago bought me the little portable Eloise box. It has come in very handy. I preapre myself with grounding now in the morning before I really start to post online and then I hit my spiritual check in with my faith.
 

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Today I was in need of an extra long grounding session. It has helped but I would be expecting a lot. My other co-morbid conditions really kicked off and it is enough to say which impacts on my autism as well. I use the free weight for the exercise above my head. The OT responded to my question about the sensory brush and will give me a more conclusive answer on Monday. I don't know if I will get to do my missing sessions though. The giant bear I won in Thorpe Park holding on for 2 mins. My long limbs was useful. I woud fail on that today. I don't leave the bear on my bed for space now but sometimes get it out for a giant hug. Yes as I am writing this I can see everything I have done to calm down has helped. me to calm down. Thankfully I have some time at an aquarium tomorrow which I am hoping to go to tomorrow.

I have this as well grounding tips-

Look around the room, notice the colours, the people, the shapes of things. Make it more real.

Pinch yourself - that feeling is in the now, the things you are re-experiencing happened in the past. That was then, and this is now.


Rub your arms and legs. If you have lost a sense of your body, rub your arms and legs so you can feel where your body starts and ends, the boundary of you.

Wrap yourself in a blanket. Pushing against a wall with back, buttocks, hands, head, or shoulders.

Pushing against a wall as if to move it l
et and feel it around you.
 

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I emailed my former OT today and mentioned that I cannot do some of her physical exercises today and an update. I got the cubes Mots Dingues when I was in treatment and was finding it hard to speak at times. I do experience this at times.
 

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I am really noticing now I think how helpful the grounding work is being. Sometimes I begrudgingly do the grounding work in the morning. Today I must have spent 40 mins on it. I went out and could see my head was much more quiet. Sometimes I am doing some in the unbelief and trying everything. I have been following to this and other things that don't need to be written here. This though I think has played its part and it is working.

Today, I did the body tapping, sensory brushing all my body, named 10 animals, asked myself where I was etc, noticed the environment details. Balanced on different legs, jumped up and down. stamped one foot, held the free weight and pushed against a wall. I used my rocking chair for 10 mins, used some fidgets, I played one game and went outside to blow bubbles and get some air and I did some breathing before I went about my normal day. I might just continue to do 3 at night.

I have got this timer as well, I should try and use it more at home.
 

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I bought an abascus to try and distract me as well. I am going to be offered two more sensory sessions in September at home. I had a bit of a visit yesterday which shocked me to six from my 8 year old me. I changed my name when I was baptised at 8 because people struggled to get my name right at school when I changed schools. I was a level 2 child and really misunderstood because of my sensory needs. My mum like needed props to get me in a photo. I hated wearing dresses, getting my hair combed and washed and was very noise sensitive. My hair is really short now and yesterday I looked in the mirror and because my hair is short now it reminded me of my childhood me who was quite classical autistic. Nobody knew her to have any illness and at 14 I became unwell with an ed after several difficult issues and trying to fit in and that became a label, but the young me was just herself and perfect and did not to have a label of an illness.
 

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Just extra
Calming Activities

If you are over‐stimulated, the following activities may help to calm you.
• Hugging/bear hugging with a partner
• Tightly wrapping your arms around your torso and/or crossing your legs
and/or squeezing your hands together
• Cuddling with a partner or pets
• Getting a firm massage or backrub with deep/firm pressure – light touch or
stroking could be alerting
• Pushing against a wall with back, buttocks, hands, head, or shoulders
• Pushing against a wall as if to move it
• Leaning forward with hands on edge of desk or table – gently pushing as if to
move it; doing pushups if table is stable
• Pushing into a chair with hands on the sides; holding self above chair with
both arms; doing chair pushups
• Rolling up tightly in a blanket
• Slow rocking in a sleeping bag
• Slow rocking, e.g., in a rocking chair
• Swinging with slow, linear, and rhythmical movements (e.g., on a hammock)
• Carrying books or other heavy objects across a room or up and down the
stairs
• Wearing a heavy backpack (Precautions: the conservative estimate to
prevent injuries is to carry no more than 10% of your body weight, with 15‐
20% being less conservative estimates; use a backpack with wide and
padded shoulder straps, a padded back, and a waist strap; distribute the load
so it does not become bottom‐heavy or top‐heavy, and wear the backpack
across both shoulders)
• Wearing a heavy backpack while carrying a few books
• Wearing weighted collars, pillows, or blankets (heed precautions, especially
with weighted vests)
• Taking a slow walk at sunset
• Walking/strolling in a park
• Swimming laps
• Lifting free weights
• Carrying the laundry basket
• Washing windows, mirrors, or tables
• Pushing and pulling heavy items (e.g., yard work): Mowing the lawn (with a
push lawn mower), raking, shoveling dirt or snow (heed safety precautions
to avoid straining), and pushing firewood in a wheelbarrow
• Enjoying leisure activities (e.g., reading or listening to books on tape) in a
quiet space filled with pillows for cuddling (Avoid over‐stimulating visual
5
distractions: Use dim lighting, close the drapes/shades or sit with your back
to the windows, use solid‐colored furniture and rugs versus patterned ones
and solid‐colored walls in soft or neutral colors versus patterned wallpaper
in bold colors, hide clutter in bins or boxes or behind doors or curtains – e.g.,
hang a solid‐color curtain over a bookshelf, and avoid wearing clothing in
colors that you find distressing – and consider asking your loved ones,
friends, and colleagues to avoid wearing clothes in colors that you find
distressing)
• Watching the fish swimming in an aquarium
• Watching and listening to the flames in a bonfire or fireplace, especially a
fireplace with real wood
• Listening to rain, a waterfall, and ocean waves
• Listening to a tabletop fountain or an aquarium
• Listening to quiet/soothing/relaxing music such as Mozart and Baroque
music, e.g., Bach, Handel, Pachelbel, and Vivaldi
• Listening to colored noise (e.g., white, pink, and grey); however, some
persons find colored noise to be irritating
• Taking a warm bath or shower, then rolling up in a large towel (avoid using
towels in colors that you find distressing)
• Using calming scents such as lavender and/or rose in oils, soaps, lotions, or
candles (strong scents can be alerting rather than calming, so experiment)
• Wearing compression clothing, e.g., short‐sleeved and long‐sleeved t‐shirts,
shorts, and pants
 
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I saw the OT on Thursday for my 11th session.
She adjusted some of the exercise approaches for me which she did initially and told me how to adjust some exercises to just holding the weight in my hand and forewards and backwards, no stepper and she didn't recommend for me jumping up down on the spot, but good to go with the rest. She also said she thinks I should do this daily and that a prospective drama course she felt was too much for right now and directed me to more local services.

Anyway, this is my revised plan for my sensory needs and the brushing with the brush has been given the go ahead.

Appointment 1 of 2 12.09.24

Reviewed the sensory approaches that Rachel has tried before.
Rachel spoke about the overwhelm that she experiences:
• Changes to care plan
• Thoughts in head – loud and repetitious

Rachel uses grounding techniques and has used suggestions made.
Rachel quired how often she should use the sensory approaches. OT said to use often so that the benefits are greater then if only trying to use at crisis points.
Regular use is to help regulate nervous system and emotional regulation.
• Tapping – to practice for 5-10mins and as often as you are comfortable with
• Brushing – to practice for 5-10mins
• Deep breathing – to practice after waking and then at regular intervals in the day
• Rocking – to use as a calming technique
• Aromatherapy/massage – to use each day, perhaps after the breathing exercises
Distraction techniques:
• Nintendo
• Clockwork toys
Discussed other activities that Rachel can/is engaging with:
• Podcasts
• Radio
• Church
Have a go at trying to make a small routine which includes the sensory approaches with other activities.
 
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I asked at the end of last week when I was sent my last summary some more clarification about the body brushing and this is the reply I recieved which was helpful.

Hi Rachel,

With the brushing, use firm, gentle strokes on arms, it is best to go in one direction in one area i.e. lower arm and then change to do the upper arm, so that you are covering small areas at one time. You can brush upwards from the hand towards the elbow and then from elbow towards shoulder. Slow circular motion over the shoulder can be invigorating. You can also use on hands and legs and chest but not the face.

I hope this is helpful?
 
Dear all
This is my final notes for my OT support for last week summary.
Sometimes I edit them to take out stuff that is too personal. This one I feel compelled to leave as it is showing all edges of me. My borough we are very lucky to have this service. There is pretty much nothing for adults with autism who do not have a learning disability. There is OT support and it is a shame that you need to be a certain level to access it. I left it out of this it doesn't matter when many cannot get it. Most of it is general and especially what I did share. This OT was the eptiome of everything good. Lol with me and my wardrobe it is like my collection right, nothing do I part with. I bought it for a reason but it needs to stop I have limited space.

This is the last summary.

Summary notes from 2nd session 19th September.
Explored what sensory approaches have been in last week. Rachel said that she hasn't been able to do them as feeling stressed & tired.
Confirmation given that it is ok not to do rituals if sleep was bad the night before
Ideas to help:
Use of a daily wipeable board planner
If Rachel needs to wrap in a blanket and lay down that is ok
Gentle, soothing activities of aromatherapy, massage, skin brushing and tapping
Listening to soothing music and looking at pictures of waterfalls
On days that she has the energy and feels mentally ok, there are 2 projects to focus on:
Making space in the wardrobe – going through and identifying which clothes you do not want to have/will not wear again and putting in a bag for charity
Organising paperwork - going through the folder of past medical letters to sort through in date order
Challenging eating disorder thoughts – Rachel said that she has thoughts about being fat and that everything would be better if she did not eat anything. She was helped to use sentences that challenge those thoughts.
Rachel has received results from recent scan which confirms osteoporosis.
Rachel was advised to take regular rests when moving around at home and if she is out
Rachel needs to re-apply for PIP. OT to write supporting evidence
 
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