PIP renewal support UK

[Rachie]

On the 15th September I was sent a text message that my PIP forms where up for renewal. It did worry me because who wants to fill in those forms, although we need to at times. I found it very overwhelming. Shortly after getting the forms I asked and rang up for a two week extension which was granted to me.
Even though it was more stripped the form compared to claiming for the first time, the questions pretty much are the same for the the PIP first time application and renewal forms it seems.
So, it is pretty much done. They have said I can just print my form from word instead of writing by hand which I cannot. When I started typing it got easier.

I have read some useful information. There has been a vulnerable group historically and you may want to check if this still exists, the link to the vulnerable groups is the last one I linked to
Chapter 30.06 Reassessment DLA Helpline
Vulnerable claimants

The claimant is identified as having additional support needs if when the claim is taken
and recorded in PIPCS, they advise the telephony agent they have one of the following health
conditions:
severe depression, for which they have been hospitalised, psychosis, schizophrenia,
severe ADHD, or
down’s syndrome, Fragile X syndrome, severe autism, severe developmental delay, or
any form of dementia (for example Alzheimer’s, Lewy body dementia, or vascular
dementia, severe brain injury resulting in cognitive decline)."

Not everyone knows guides exist to help write these forms. I found the below guides helpful and wanted to share the links as I have no use it for it and it may help people with their forms and make it less overwhelming the process. It is the 1st guide that I used the most and the rest was for checking really. I tried to not overwhelm myself with information as possible.

How to fill in the PIP form

https://www.carersuk.org/media/3yin...24 If you are looking after someone who has a

https://www.leicester.gov.uk/media/178164/personal-independence-payments.pdf

https://www.actionforme.org.uk/uploads/pdfs/PIP-overview-Sep-2022.pdf

https://www.google.com/url?sa=t&sou...0QFnoECB4QAQ&usg=AOvVaw0fHeAq8HuaFi_4hPHOJlGy

 

[Outdated]

A really clever lady helped me with all my forms when I first applied, it's called the Disability Support Pension here, and she helped me avoid a few pitfalls.

One of them, she had a specific form she wanted filled out by a general practitioner, and this form had a tick box for "Life long illness, no treatment possible". Getting that means they never reassess my claim again, I just keep getting paid with no reviews for the rest of my life.

 

[Rachie]

A really clever lady helped me with all my forms when I first applied, it's called the Disability Support Pension here, and she helped me avoid a few pitfalls.

One of them, she had a specific form she wanted filled out by a general practitioner, and this form had a tick box for "Life long illness, no treatment possible". Getting that means they never reassess my claim again, I just keep getting paid with no reviews for the rest of my life.

The process can be overwhelming wherever you live. I do have a lot of supportive information. Some I am still waiting on, but they are not necessary. I do wish not to have to do another one in my lifetime. It has been detrimental to me doing the forms to my health. So much overwhelming came from it. I try to do a bit every day and take some days off as well. Some questions can be hard to understand so checking multiple links can help you get it right.
Too many questions and I don't like to answer them.

 

[Outdated]

All that sort of stuff stresses me out too, for no real reason that I can fathom because I'm very literate.

Australia and UK have very similar systems so it might be worth you looking in to to see if you can get the same.

 

[Roisin]

I've not done the PIP route Rachie, but I have heard much about it and just wanted to say fair play to you for getting through the forms.

 

[Rachie]

Thank you everyone. It really needs to be posted. The more time I spend on it I get wound up and my head starts spinning and everything loses meaning and I wonder if I have made sense of anything. Some seem straight forward. I had some old forms of mine saved as well and that helped me to see them. I must get it sent this week. I have to the 18th October for them to receive it.

 

[Rachie]

Oh my word. I will be frank. You try and eat your words more when you get older but come on. I saw my OT last week Thursday. It was blurry and I was not very well. I made my woes known about the form to them. They said they would write me some support and well thought it needed to go back before the 18th. The time is up if it was the original time. This was above and beyond their actions to offer to help write me some support. I already have their written evidence from last year. This would have been a top up. We established at our renuinon lets say this year that the staff are stretched. I think I would I should perhaps stop expecting anything. Just our usual summary would be fine. I haven't heard anything though since and I adore them they was so helpful. I don't want to put them under more strain when I didn't suggest it. Taken to much on or what. Who can blame them if they backed out as well. It is the waiting. Move on or what. It is just two times I saw them this year. I have had now full OT sessions for autism 10 or 12 in total.
Edited to add
Liquid paraffin=no more no more. That means I would do it on the whole thing. It is deserving of it. Breathes. Of course in real life there is no paraffin and never will be.

 

[Rachie]

Wow, when life goes like this and you have no words sometimes I just say things like sig a ling and laugh. I looked in my hotmail and you know there was a response today at 3.15pm so she came through. It would have been to late as the original date was 4th October. But, with the extension I am good. I haven't read it yet but it is in there. My OT usually sends summaries much before now since our last sessions. My eating disorder said she may have some more updated things. I probably have enough. The PIP have said don't ask for more material send what you have. I was seen yesterday in neurology, but those findings won't be known for sometime and it is not a good idea to wait.

 

[Rachie]

I have read both attachments and my OT support really delivered. I want to share what she put in her email. She said she helped someone write evidence previously and they sent their forms and it was lost in the post..goodness. She really dealt with both conditions my eating issues and autism interplay.
" I would recommend recorded delivery as I have recently helped someone else do this and unfortunately the documents were all lost in the post".
Just send it if you can by trackable delivery, it is worth it.

 

[Rachie]

I just came across this guide myself and think it is worth sharing here.
What I do think is useful with it is that it provides some help for those on the spectrum in the examples how you can reply. For me I think my initial post and this link the information is enough to answer the questions.
https://www.familiesinfocusessex.org.uk/wp-content/uploads/2023/01/PIP-helpful-phrases.pdf

The planning journey question is really for people mental health and co issues and your reply should strongly reflect that.

 

[Rachie]

My last OT report I was waiting on and that last link I posted just helped me tie things together. My OT came up with things I never even imagined. I just asked them to read her report as I couldn't add it all in.
I will send it Special delivery on Monday. It doesn't make any sense to post it before and it let it sit there because of the weekend postage. I got an update as well from my eating disorder consultant. That is everything. I can go to print on Monday morning and just use the weekend to tweak here or there, but I am done really and thrilled.