I never used to answer my phone, especially from a number I didn’t recognise and definitely if it was a number withheld. Now I tend to answer it but often I just wait and hope that the person who speaks doesn’t just launch into loads of words but if I remain still enough I can make it work.
Even things that are not surprises, like things that are coming up that need renewing like Insurance for example, can create tremendous anxiety in knowing that I’m going to have to do it. I used to live in a small campervan full time and when I knew that the MOT (annual roadworthiness test) was coming up I would hate it. I didn’t want anybody going inside my home, have to leave it for several hours with a stranger. But these are not exactly surprises.
Surprises like, discovering something is wrong with the van and I needed to have it sorted, was terribly anxiety filled because I didn’t have any time to prepare for the issues as I’ve just described.
If I know I’m going somewhere, especially if it’s by public transport I have to Check every aspect of the route several times on my phone just to help me deal with the reality of taking the journey. I used to be somebody who enjoyed taking journeys alone (and still do if things are simple) but now I function much better if I have somebody sitting by my side when I do.
Each day I am constantly surprised by the return of my housemates (I live in a shared house with four other people). The noise of their arrival, the banging of doors, the needlessly putting on of lights (in my opinion), and then leaving them on making me have to turn them off, is a constant issue that I struggle to deal with. I’ve taken to immediately putting earplugs in when I suspect people will arrive and then I just leave them in, or headphones if I’m watching something, so that it attenuates their inconsideration. They don’t know I’m on the spectrum, we don’t really know each other, but I am sure this is normal behaviour for them and yet it seems unreasonable when you share a house not to always be considerate, close doors quietly move slowly especially in the early hours of the morning.
But there seems to be no escaping surprises. One of the wonderful advantages of living in a camper was to be able to take myself away into the wilderness for awhile and just live amongst nature. But even then something unexpected can occur; a tree branch falling onto the roof can create the same reaction in me. I can’t expect the world to accommodate me and it seems that I can’t really adjust to living in the world either. But I’m making progress again. Acceptance of things I cannot change seems to be the key.