“Nothing about us without us!”I suspect the idea will be researched and discussed, and conclusions drawn, without ever asking the people actually affected. As per usual.
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“Nothing about us without us!”I suspect the idea will be researched and discussed, and conclusions drawn, without ever asking the people actually affected. As per usual.
I didn't understand why people get bored all the time, I didn't link it to Autism. I practically could sit down and do nothing or little for hours, or a lifetime.I've been giving it some thought, this idea that it's boredom. For me that's not the right word. For me boredom is "wow, this is a task that I get no pleasure from, I wish I could do something else." And that doesn't sum it up, for me. It took me a while to go talk to the doc about ADHD, because it wasn't that something was boring, per se. So when I heard people say they get bored of things and always want to try something new, that didn't fit at all. I don't want to try new things, I like my routine. I can try stuff, sure, but against a background of structure. But I don't feel compelled to try new things. This threw me off for such a long time.
How to explain?
It doesn't matter if it's something one might find dull, or something I enjoy. I can't stick to it. I can't write a list, because halfway through my mind will wander. I can't have a hobby, because as soon as I start it I wonder what's happening next. The times in my life I should have been able to sit back and smell the flowers, my mind wasn't there, it was busy somewhere, doing goodness knows what. I don't get bored of things, they just cease to be of any relevance or focus. They are just gone, no longer thought about. The Amazon box I cut open but don't unpack isn't because I get bored of it. It's just gone, no longer focused on. The objects I put down as I walk through the house, that piece of work I had to hand in, that form half filled, that DIY project half done. I don't get bored of them, I just have an inability to focus, to stick to it, to remain on task. Because my head is like a box of chattering toddlers. It's busy the whole time. There's a 5 second song snippet on repeat in my head 24x7. So I have this non stop feeling of responding to everything, which makes it difficult to concentrate. A mental hyperactivity.
And it's perfectly possible for that to co-exist with feeling like I have zero instincts socially; with the feeling that sensations come in at 150db; with wanting to have a plan, and order, so negative experiences stay well, well away (because they come in at 180db).
In a simplistic world where autism is liking order, and ADHD is liking spontaneity, the two are in conflict. But in my brain, they both exist, both sensations and the emotions they provoke, at precisely the same time.
I've never been able to hyperfocus to that extent. I give up if something's really that frustrating, or ask for help. And I've heard a many autistics say they've hyperfocused so much that they ended up forgetting to go to the bathroom. I have never done that before, even as a child.When I began to read a lot of random stuff from autism, I encountered one particularly interesting concept:
Both ASDs and ADHDs can hyperfocus in one subject for a long time. Neurotypicals can hyperfocus too (sometimes, in theory), but less intense flow-state is more likely.
When ASDs and ADHDs hyperfocus, they just do it differently: As I recall, ADHDs hyperfocus on things that produce immediate and continuous enjoyment.
I interpret this that ASDs can do hyperfocus with more long term targets (in addition to immediate pleasure): For example, I really hate banging my head to wall when trying to make some piece of s**t software to work, but I do work with it intensively forgetting to sleep, eat, drink or visit bathroom (sometimes with embarrassing results, I admit) until I am finished with it which will finally release a big surge of satisfaction.
We shall have to agree to disagree then, because I hate arguing.This is just blatantly not true. Which is why I made the thread.
That is categorically 100% false. You can absolutely have both Autism and ADHD.I can assure you, you probably have ADHD. It is just impossible to have both, since they contradict each other in many areas and I know this, because a friend's daughter and a niece, both have ADHD and although we could relate ie both on the neurodiverse spectrum, there are things that show clearly the differences.
A few year's back, there was never an issue with ASD and ADHD being together.
Again, it is the fault of the mental health team, since they have no idea either.
In elementary school, I don't remember I don't remember spending a lot of time in class. I DO remember spending a great deal of time sitting in a classroom and being somewhere else.Due to being statemented and monitored closely in the classroom because of being an uncooperative brat during my first week of school, I kind of forced myself to behave in the classroom, probably a bit too much. I became very scared of being told off by the teacher, so I forced myself to sit still. But while I was sitting still looking very good, my mind was miles away and I would daydream my whole way through class and not pay attention to what the teacher was saying. I really masked in the classroom, like a lot. So recess was a relief, as it was a time where I could be myself (climbing on the playground equipment, running around with my friends, being loud and hyperactive). Then as soon as the bell rang for class to begin again I had to make sure I had my (metaphorical) mask on to survive class. I released my mask when I was taken to another room with a small group of other children for math classes, as children who had difficulty with math were often taught separately from the rest of the class. The teacher who taught us math was kind and nurturing, and I felt more comfortable to be myself, and I was often loud and show-offy and wouldn't sit still. I'd talk to the other kids and they found me funny. They probably wondered why the hell I'd go all quiet and good when we rejoined the rest of the class.
Could you explain what you mean by being both level 1 and level 3 ? I have both ASD (level was not specified )and ADHD (hyperactive symptoms included).Judging from responses around here, lots of us have ADHD. I was officially diagnosed with AD(no H)D ten years before my autism diagnosis. My basic reaction to research indicating autism and ADHD may overlap is "Well DUUH!." They are different enough that they should not be conflated together. It is bad enough having autism reduced to three simple levels, despite the wide variety of manifestations. I have written before that I am simultaneously ASD1 and ASD3. I hate to think what adding ADHD into the mix would do.
My own AD(no H)D and autism are frequently in conflict and vying for control. I am an explorer, but I like my exploration to be routine, surprises throw me off. I will work on something until it becomes routine, then I lose interest, yet I can be content doing the same thing over and over. I just can't see that as being two different manifestations of the same condition, yet the common overlap suggests some sort of commonality.
I suspect the idea will be researched and discussed, and conclusions drawn, without ever asking the people actually affected. As per usual.
Simple. I am considered ASD1, due to my intellect level and ability to live one my own (assuming I can find work). I am, however, socially non functional, even with help (this is why I could almost never get a job). Thus, socially, I can be considered ASD3. Sometimes I say strike an average and call me ASD2. I suppose you can say I have all the ASD bases covered. To make it clear, I refer to myself as AD(no H)D.Could you explain what you mean by being both level 1 and level 3 ? I have both ASD (level was not specified )and ADHD (hyperactive symptoms included).